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eLetter #938 | October 8, 2021  
KGS2 Kids Get Scleroderma Too logo SF

Conference 2018 Youth Parents

Kids Get Scleroderma, Too! Virtual Conference for Parents & Guardians

ZOOM: October 23, 2021; 11 a.m. - 3 p.m. Eastern

The 2021 Kids Get Scleroderma, Too! conference (KGS2) is geared toward educating parents and guardians with up-to-date information to help them best navigate their child’s disease. To relieve the pressure of yet another virtual meeting for children, youth are not the primary participants this year.

This conference is free. The one-day, virtual event takes place Saturday, October 23 from 11 a.m. to 3 p.m. Eastern via Zoom.


KGS2 Virtual Paint Party 2021

Kids Get Scleroderma, Too! Virtual Paint Party

ZOOM: October 23, 2021; 3:30 p.m. - 5 p.m. Eastern

Join us for this very special virtual paint party. We know that the last 18 months have been difficult and seeing your friends hasn’t been easy. Grab your brush and get ready for this fun and interactive Halloween-themed paint party. Catch up with your friends and learn from two very special guests: Maggie Sepkowitz, LCSW, and Jill Blitz, PT, DPT, ATP.

The Virtual Paint Party is for youth who have scleroderma, ages 10 to 17, and their siblings. The event is free and open to international participants. Once registered, a paint kit with all necessary supplies will be mailed to your home. Max limit of two paint kits per household.

The registration DEADLINE is October 13. Space is limited, so sign up today!

If you have questions about the virtual paint party, please contact


United Therapeutics PHPal Patient Ad
YouTube 2021 Conference African Americans

Scleroderma in African Americans

VIDEO: Recorded July 2021

Watch this presentation by DeAnna Baker Frost, MD, PhD, of the Medical University of South Carolina (MUSC), recorded during the 2021 virtual National Scleroderma Conference. Studies suggest that African Americans experience more severe scleroderma and complications. Learn about these complications and the research happening in this space.


Lupus Foundation

Tips for Making the Most Out of Your Doctor's Appointment

WEBINAR: October 13, 2021; 1 p.m. Eastern

Join the NeedyMeds' partner, Lupus Foundation of America, to learn how to prepare for your next health care appointment. This webinar provides tips to make the most out of your next medical appointment. The more prepared you are, the more likely you will be to discuss the issues that are most important to you and leave with a plan in place.


Mended Hearts


Becoming an Empowered Patient

WEBINAR: October 20, 2021; 2:30 p.m. Eastern

Join Andrea Baer, Executive Director of Mended Hearts (a NeedyMeds partner), as she walks us through how to become an empowered patient. Learn how advocating for yourself and being an active part of your own healthcare team can improve your health. Register today as space is limited!


Black Health Matters Summer October 2021

Building the Bridge Summit: Closing the Literacy Gap

VIRTUAL: Sat., Oct. 9, 2021; 9 a.m. - 5 p.m. Eastern
Presented by Black Health Matters

Join Black Health Matters for a glorious day of renewal as leading clinicians and advocates convene to inspire you to get healthy and stay healthy. Enjoy information on conditions that impact African Americans: Clinical Trials, COVID Vax & Variants, Skin Discoloration, and much more.

Building the Bridge is the newest offering in the Black Health Matters summit series. Summits are designed to be interactive forums where experts share knowledge and people ask questions openly.


Ticket to Work - WISE

Debunking the Three Biggest Myths About Disability Benefits & Work

WEBINAR: October 27, 2021; 3 to 4:30 p.m. Eastern

If you receive Social Security disability benefits (SSDI or SSI) and you want to work, mark your calendars for October 27 at 3 p.m. Eastern to attend the October Work Incentive Seminar Event (WISE) webinar. Learn the truth about the three biggest myths surrounding disability benefits and work. Get info to help you make a decision that work may be right for you, to look for a job and successfully transition to work.


Kadmon Ad eLetter 2021
Emerald Clinical Trial EHP-101 Diffuse SSc
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Disclaimer: The Scleroderma Foundation in no way endorses any drugs, treatments, clinical trials, or studies reported in the eLetter. Information is provided to keep the readers informed. Because the manifestations and severity of scleroderma vary among individuals, personalized medical management is essential. Therefore, it is strongly recommended that all drugs and treatments be discussed with the reader’s physician(s) for proper evaluation and treatment.

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