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Scleroderma Foundation
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eLetter #908 | March 12, 2021  

Dr. Tracy FrechDr. Christina Zampitella

     Frech             Zampitella  

Dr. Daniel FurstElaine Furst, R.N., B.S.N., M.A

Furst               Furst

20th Annual Cheri Woo Scleroderma Education Seminar

WEBINAR: Saturday, March 13, 2021
10 a.m. ‑ 3:30 p.m. Pacific Time

Organized by the Oregon Chapter, the annual Cheri Woo Scleroderma Education Seminar takes place virtually this year and is free. Speakers include Tracy Frech, M.D., M.S., University of Utah Hospital, 2020 Scleroderma Foundation Doctor of the Year, presenting Systemic Sclerosis Digestive Issues; Christine Zampitella, Psy.D., F.T., The Center for Grief and Trauma Therapy, Integrative Psychology Group, presenting Disenfranchised Grief; Daniel Furst, M.D., M.A.C.R., ACR Fellow, presenting Changes in Treatment: Past (2000) vs. present (2020-2021); and Elaine Furst, R.N., B.S.N., M.A., presenting Sexuality in Scleroderma.

The webinar takes place via Zoom, and everyone is welcome to attend, especially our friends in Alaska!

REGISTER

Young Adults March 6 Chronic Illness

Young Adult Panel: Coping with Mental Health Issues & Living with a Chronic Illness

Watch the March 6, 2021 recording of our young adult panel discussing the effects of chronic illness on mental health, including the struggle to cope and how the people we love (and who love us) are affected. Facilitated by Amy Gietzen.

VIDEO

planning compass logo

Have You Thought About Your Legacy?

Estate planning is for everyone and the Scleroderma Foundation is here to help you.

Please visit scleroderma.org/waystogive to learn more about all the different way we can assist with your future planning.

For more questions or to have a conversation please email development@scleroderma.org.

SPIN CHAT

SPIN-CHAT: Relaxation Techniques (Part II)

WEBINAR: Wednesday, March 17, 7 p.m. Eastern Time

Join Ghassan El-Baalbaki for Part II of Relaxation Techniques on March 17 at 7 p.m. Eastern. This webinar is part of the SPIN-CHAT (COVID-19 Home-isolation Activities Together) 11-week series related to coping during COVID-19, tailored to the needs of the scleroderma community.

SPIN-CHAT

Scholarship Annabelle Carter Memorial Foundation

Anna Belle Carter Memorial Scholarship

Anna Belle Carter was a wonderful 13-year-old living a full life with scleroderma, who passed away in July 2020 from COVID-19. The Anna Belle Carter Memorial Foundation was established by her family to financially assist deserving students who are affected by scleroderma in furthering their education goals at an accredited college, university, or technical school to attain an undergraduate degree, an initial graduate degree, or certification. The ABCMF awards scholarships on the basis of academic potential and demonstrated achievement, exemplary citizenship, personal character and need.

Read complete application criteria.

All applications are due by April 14, 2021 to be reviewed and awardees selected by May 5, 2021.

APPLY

MSAB COVID-19 eLetter Graphic

COVID‑19 Information & Recommendations

Updated February 10, 2021

The American College of Rheumatology released clinical guidance on the COVID-19 vaccines. This information is available on the ACR website and has been added to the Foundation's website.

Information and frequently asked questions regarding the COVID-19 vaccines have been addressed by the Scleroderma Foundation's Medical & Scientific Advisory Board, to be used in consultation with your rheumatologist or other health care provider.

These guidelines, along with more information and recommendations for individuals affected by scleroderma about COVID-19 are posted at scleroderma.org/covid19. Please check this page from time to time for updates.

COVID‑19

myPHteam risk assessment

myPHteam

Since PAH can change rapidly, regular risk assessments and disease monitoring are vital. Even if you cannot make it to a clinic in person, there are many tools and approaches your doctor can use to perform risk assessments during telehealth visits. Learn more about risk assessment and why it is one of the most important tools used to manage PAH on myPHteam:

myPHteam

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Disclaimer: The Scleroderma Foundation in no way endorses any drugs, treatments, clinical trials, or studies reported in the eLetter. Information is provided to keep the readers informed. Because the manifestations and severity of scleroderma vary among individuals, personalized medical management is essential. Therefore, it is strongly recommended that all drugs and treatments be discussed with the reader’s physician(s) for proper evaluation and treatment.

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