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Scleroderma Foundation
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eLetter #910 | March 26, 2021  

BIPOC Support Group Faces

Coming Soon! BIPOC Support Group

VIRTUAL: May 2, 2021, 4 p.m. Eastern Time

The Scleroderma Foundation’s BIPOC Support Group was founded to address the needs of Black, Indigenous, and People of Color affected by scleroderma. This new virtual support group will provide innovative educational opportunities, emotional support, and scleroderma related resources. Save the date and keep an eye on this eLetter for more information on how to attend the meeting.

If you have any questions regarding the BIPOC group, please send an email to

Stepping Out 2021 Virtual eLetter

Walk Season is Quickly Approaching!

Stepping Out to Cure Scleroderma is a fun and easy way to help raise awareness and funds for the Scleroderma Foundation. You can create a team, join a team, or walk on your own. Regardless of where you choose to walk, we are one community working together to help "stomp out" scleroderma.

Tell the world that you're "Stepping Out" by positing pics and using hashtags on social media (#SteppingOut #StompOutScleroderma) and tag the Foundation on Facebook, Twitter, and Instagram.

We need you! For more information on how you can join us, please visit

If you don't see a walk in your area, please continue to check our website for updates, or reach out to

SYNC Meet Up 04-09-21

SYNC Meet-Up

VIRTUAL: April 9, 2021, 7 p.m. Eastern Time

The young adult group, SYNC (Scleroderma Young Adults Needing Connection), will hold a virtual meeting on April 9 at 7 p.m. To receive the meeting link, send an email to group facilitator Amy Gietzen.


Ohio Sunday Sit Down

Sunday Sitdown

FACEBOOK LIVE: March 28, 1 p.m. Eastern Time (12 p.m. CT, 11 a.m. MT, 10 a.m. PT)

Join the Ohio Chapter for Sunday Sitdowns on the last Sunday of every month at 1 p.m. Eastern Time via Facebook Live. This is a time to connect with others who live with the challenges caused by scleroderma.

Please note, given the open, unsecure nature of Facebook, do not share private, personal information during this conversation.


MSAB COVID-19 eLetter Graphic

COVID‑19 Information & Recommendations

Updated February 10, 2021

The American College of Rheumatology released clinical guidance on the COVID-19 vaccines. This information is available on the ACR website and has been added to the Foundation's website.

Information and frequently asked questions regarding the COVID-19 vaccines have been addressed by the Scleroderma Foundation's Medical & Scientific Advisory Board, to be used in consultation with your rheumatologist or other health care provider.

These guidelines, along with more information and recommendations for individuals affected by scleroderma about COVID-19 are posted at Please check this page from time to time for updates.


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Disclaimer: The Scleroderma Foundation in no way endorses any drugs, treatments, clinical trials, or studies reported in the eLetter. Information is provided to keep the readers informed. Because the manifestations and severity of scleroderma vary among individuals, personalized medical management is essential. Therefore, it is strongly recommended that all drugs and treatments be discussed with the reader’s physician(s) for proper evaluation and treatment.

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