January | February | March | April | May | June | July | August | September | October | November

December

• Insights: Food and Fluid Daily Diary App for iPhone
• Early endoscopy in systemic sclerosis without gastrointestinal symptoms
• Medical conditions and special situations: Travelers with disabilities and medical conditions
• Give a Gift: Your Contributions Matter
• CaringBridge: Connecting Family and Friends When Health Matters Most
• What is celiac disease?
• Raynaud's - Try these seven ways to prevent syndrome attacks
  
• Digestive Disorders Health Center: Caregiving and Digestive Diseases
• Fact Sheet on Scleroderma
• In the News: Calcium and Vitamin D
• Important Rolaids Recall
• We Need You to Help Pass the "Scleroderma Research and Awareness Act" in the Senate
• Participate in a Research Interview for Digital Ulcers
• Juvenile Localized Scleroderma: Fewer Flares With Methotrexate
• Sjogrën's Syndrome Survival Tips
• Pulmonary Hypertension Association e-Learning
  

November

• Lower Extremity Ulcers in Systemic Sclerosis: Features and Response to Therapy
• Strategies for Special Holidays Caregiver.com
• Thirteen Things About Rheumatic Diseases That Just Aren’t True
• Participate in a Research Interview for Digital Ulcers
• Update on Pulmonary Arterial Hypertension (video)
• New ANA Testing Does Not Diagnose Disorder in 40% of Scleroderma Patients
• Erectile Dysfunction Drug Potent in Raynaud's
  
• Finding Reliable Health Information Online
• Easing Chronic Pain With Anti-Inflammatory Drugs
• Important Consumer Recall Information on Methotrexate
• U.S. Senate Call-in Day, Wednesday, November 17, 2010
• Caregiving: Insights for Caregivers
• About Multiple Health Problems
• Check for Arthritis Symptoms

October

• NCCAM's Director, Josephine P. Briggs, M.D.,on Excessive Claims
• The Legal Issues Behind Caregiving
• What is Palliative Care?
• Understanding Autoimmune Disease
• A Comprehensive List of Camps for Specific Diseases
• Questions to Ask About Your Prescriptions
• Understanding Arthritis and Inflammation
• Disposal of Certain Unused Medicines
• Travel Tips from Kristin at Creaky Joints
• PHA Launches Mentor Program
• FDA Approves Additional In-use
  Conditions for Administration of Veletri®
• NIAMS ARRA Funds Push Skin Research Forward
• U.S. House of Representatives passes "The Scleroderma Research and Awareness Act" (H.R. 2408)
• Filling the Medicare Part D “Donut Hole”
• Clinical Trials for (Systemic Sclerosis and SSc)
• Pain Medication Safety
• Free 2011 Calendar

September

• Screening and Therapy for Malnutrition and Related Gastro-intestinal Disorders in Systemic Sclerosis
• Targeted Therapy for Systemic Sclerosis: How Close are We?
• UTHealth Scientists Zeroing In on Genes Tied to Two Immune Disorders
• Joint Involvement Predicts Aggressive Systemic Sclerosis
• Tips and Techniques for Dealing with Stress
• National Congressional Call-in Day, September 15, 2010
• "Be Your Best Advocate" Workbook
• One Size Doesn't Fit All - Steps to a Healthier You
• NIH Announces Five Botanical Research Centers
• A Guide for People with Disabilities Seeking Employment – Americans with Disabilties Act
• National Congressional Call-in Day, September 15, 2010

August

• Fearless Caregiver Conference at Sea
• Be Wary about Health Information You Get on the Internet
• Actelion Pharmaceuticals Announces FDA Approval of Brand Name for Commercially Available VELETRI® (epoprostenol for injection) for Pulmonary Arterial Hypertension
• "Scleroderma: Cyclophosphamide Or Transplantation" Trial
• Be an Informed Consumer … Do Your Homework
• Information on Systemic Sclerosis
• Sjögren Syndrome
• Pulmonary Hypertension Patients and Families Education Forum
• Medical Advisory Board Members Featured in "Ask an Expert About Scleroderma"
• Diet and Food Tips for Sjögren's Syndrome
• Q&A on Autoimmunity
• Tips on Winning Your Disability Claim
• FitDay Health Resource
• A Historic and Memorable 2010 National Patient Education Conference!
• National Meals On Wheels Rolls Out Into Rural Areas
• How to Help a Friend or Loved One Suffering From a Chronic Illness
• Scleroderma Foundation Receives Highest Rating from Charity Navigator
• Coping with Stress

July 2010

• Long-Distance Caregiver – Caregiver.com
• Colorectal Cancer Screening
• Questions and Answers about Shoulder Problems
• Tufts University School of Dental Medicine Research Survey for Scleroderma Patients
• Employment, Disability and Insurance Issues for People with Scleroderma Newest Workshop Added
• "Be Your Best Advocate: Improving Your Life with Scleroderma" and "The Art of Camouflage Makeup" Newest Workshops Added
• Rural Caregiving – Caregiver.com
• Sell on eBay and Make a Donation to the Scleroderma Foundation
• Appropriations Action Alert!
• New Interactive Workshop: Gastrointestinal Issues
• Sjögren's Syndrome
• Swollen Ankles and/or Swollen Feet Symptoms
• IBS Community

June 2010

• ABILITYJobs
• It Takes Two to Tango: Become an Active Partner in Your Health Care
• Can Foods Trigger Arthritis Pain?
• Panel on "Advances in Basic and Clinical Research" and "How to Cope with Chronic Pain and Scleroderma" Newest Workshops Added
• Scleroderma Patients with Painful Foot Problems in New Clinical Trial 
• Additional Block of Discounted Hotel Rooms for Conference at the Hilton Boston Back Bay Hotel
• Heat Safety Tips – Caregiver.com
• Choosing Medical Treatment
• Find Help When Living With Chronic Pain
• "Assessing Patient Assistance Programs/ NeedyMeds" and "Biofeedback Therapy" Newest Workshops Added
• Raynaud's Disease/Vascana Confirmatory Clinical Study Completes Patient Screening
• Is Anybody Out There? Finding the Care You Need – American Pain Foundation
• Characterization Of Connective Tissue Disease Associated Pulmonary Arterial Hypertension From The Reveal Registry: Identifying Systemic Sclerosis As A Unique Phenotype.
• Tips to Avoid a Flip-Flop Fiasco
• "Pain Management: A Holistic Approach" and "The Oral Complications of Saliva Hypofunctions Experienced in Autoimmune Patients" Newest Workshops Added
• Understanding Clinical Trials
• Barrett's Esophagus
• Intestinal Pain
• United Therapeutics Launches Living PAH Program for Patients with Pulmonary Arterial Hypertension
• "Surgical Options for Hand Involvement" and "Lung Transplantation" Newest Workshops Added
• Foundation Announces 2010 Scholarship Fund Awards
• Scleroderma bills H.R.2408 and S.1545 continue to gain support on Capitol Hill

May 2010

• Announcing the 2010 Scleroderma Student Essay Contest Winners
• "Juvenile Scleroderma - Patient Family Discussion" and "Pulmonary Arterial Hypertension in Scleroderma" Latest Workshops Added to National Conference
• Dysphagia (Difficulty Swallowing)
• Antinuclear Antibody Test (ANA)
• What Are Accelerated Death Benefits
• For Male Patients Only with Edward Lally, M.D.
• "Social Security Administration - Overview and Application Process" Added to Conference Workshops
• Fitness at 50+: Five Barriers You Can Beat
• Sjögren's Syndrome
• "Other Manifestations of Systemic Sclerosis," with Janet Pope, M.D. Learn more.
• "Scleroderma and Cancer," with Thomas A. Medsger, Jr., M.D. Learn more.
• Walks are coming up! Find one near you.
• Scleroderma Family Registry & DNA Repository: Critical Need for Control Samples
• Laughter Can Stimulate a Dull Appetite
• Ask the Expert: Raynaud's Phenomenon
• National Center for Complementary and Alternative Medicine Facts-at-a-Glance
• Active Isolated Stretching: Empowerment Through Flexibility
• Thyroid Health
• "Making Pharmacy Fun" and "Talk to Who About What? Discussing your traditional and complementary care with your primary care physician" Newest Workshops Added
• Newly Diagnosed with PAH? What You Need to Know, Thursday, May 20 Call
• Scleroderma Foundation Announces Call for Proposals for 2011 Research Grant Program
• Study Reveals New Genetic Link to Scleroderma

April 2010

• Richard Silver, M.D., Speaks on Pulmonary Fibrosis
• Finding Low-Cost Dental Care
• "African Americans and Scleroderma" and "Maximize Life, Minimize Stress" Newest Workshops Added
• PHA's 9th International Pulmonary Hypertension Conference and Scientific Sessions, June 25–27
• Build a CarePages Web site and the Scleroderma Foundation receives a $10 donation!
• Actelion Pharmaceuticals Announces Commercial Availability of Epoprostenol for Injection for the Treatment of PAH
• Exercising With Arthritis: Prescription for Health
• New Book in the Scleroderma Foundation Store - "Be Your Best Advocate"
• My MedSchedule.com - Get reminders to "take your meds"
• Patient Advocate Foundation
• A Clinical Trial Opportunity for Adults with Scleroderma
• Conference Workshops: "Occupational Therpay/Physical Therapy"and "Yoga for Scleroderma and Assisted Yoga for Scleroderma"
• Improving Doctor/Caregiver Relationships
• 11 Tips for Living with Chronic Pain
• Get a Caring.com To-Do List
• Pain Common in Systemic Sclerosis
• Three Camps Your Child Could Attend - www.campsunshine.org, http://csdf.org/latest/camp-wonder-for-kids.html, www.campdiscovery.org
  

March 2010

• "Cooking Up a Storm for Scleroderma" Success Stories
• Conference Workshops: "Dental Issues Related to Scleroderma" and "Scleroderma 101: An Overview"
• Keeping Bones Strong and Healthy
• Don't Let Auto-Immune Diseases Ruin Your Life
• What Is a Pediatric Rheumatologist?
• Report on the 2010 Systemic Sclerosis World Congress
• H.R. 2408: "Scleroderma Research and Awareness Act" -- The Final Push -- ACT NOW!
• The Scleroderma Foundation Is Excited to Announce: Dame Dr. Carol Black Is the Opening Keynote Speaker at the National Conference
• Your Guide to Stress Management
• Scleroderma - Systemic Sclerosis
• The Internet as a Drug Information Resource
• The Department of Defense (DoD) Announced Iits National Resource Directory (NRD) Web site
• The Scleroderma Foundation Is Excited to Announce That Dr. Stephen Katz Is the Closing Keynote Speaker at the National Conference
• Fighting the Fires of Systemic Sclerosis (to read this story, you must first set up a free login and password)
• Home Care Safety for the Caregiver
• Collagen Vascular Disease
• Living the Celiac Life: Stores Increasingly Offer Products That Ease the Burden on Those With an Intolerance of Gluten
• Coalition for Pulmonary Fibrosis and American Thoracic Society Continue Commitment to Pulmonary Fibrosis Research
• How to Prepare for a Doctor's Appointment
• Cincinnati Researchers Awarded Grant to Study Interstitial Lung Disease
• Comprehensive Report on Global State of Autoimmune Diseases Released
• N.Y. Teen Wins 1st Place at JSHS for Scleroderma Research Project
• Reporting Problems to FDA (video)
• Study Findings from University of Medicine Broaden Understanding of Autoimmune Diseases
• National Family Caregivers Assn. How-To Guides

February 2010

• National Conference – You can reserve your room online!
• Calcium Deposits
• Mortality Rates for Pediatric Rheumatology Patients Significantly Lower Than Previously Reported
• Survey from Elaine Furst for the Scleroderma Foundation Community
• Employment Status and Socio-Economic Burden in Systemic Sclerosis: A Cross-Sectional Survey
• The Caregiver As Employer
• Movement Tracker – "Let's Move Together" from the Arthritis Foundation
• Rituximab Shows Promise in Scleroderma
• Health Effects on Breathing Wood Smoke
• Eye Inflammation: When Is It Serious?
• Understanding Your GI Tract
• Benefits Counselors: Who Are They and Do I Need One?
• Systemic Sclerosis
• Air Pollution Linked to Autoimmune Diseases
• Support the Scleroderma Research and Awareness Act
• Online Registration Is Now Available for the 2010 National Conference!
• 2010 National Patient Education Conference Scholarships Available
• Please Help Support the Scleroderma Foundation National Conference Scholarship Program
• February Work Incentive Seminar Events (WISE): Helping Beneficiaries Make Informed Choices About Work
• Crest Syndrome
• Radiologists: Get Mammograms Early, Often
• Osteoarthritis: Pain Relief "Only a Phone Call Away?"
• The 2010 National Conference Is Coming!
• DOD Announces: New Funds Available to Scleroderma Researchers
• Find Out If Your BENADRYL® Product Has Been Recalled
• Blue Fingers Linked With Breathlessness
• “Will New Tax Laws Affect My Estate Plan?”

January 2010

• Eating for Longevity
• Blissing Out: 10 Relaxation Techniques To Reduce Stress On-the-Spot
• Researchers Revisit Pulmonary Arterial Hypertension Survival
• Extra Help with Medicare Prescription Drug Plan Costs
• What's New in Pulmonary Arterial Hypertension?
• 2010 Research Grant Awards
• Do You Have Pulmonary Hypertension and Scleroderma? Join PH Plus, PHA’s e-mail group for patients living with multiple illnesses. (Membership requires a free Google account.)
• Scientists Are Available to Comment on Autoimmune and Autoinflammatory Diseases
• Slideshow: 15 Immune Boosting Foods
• Telangiectases in Scleroderma: A Potential Clinical Marker of Pulmonary Arterial Hypertension
• Coping with Chronic Illness
• Give Your Skin Relief from the Winter Weather
• What's Added to Your Food?
• Why Does the Cold Make Our Joints Hurt?
• Your Health: Winter Can Be Tough on the Body
• Health Info 2010 Pocket Bone Planner
• Small Intestinal Bacterial Overgrowth (SIBO)
• Take Charge of Your Health
• Tips for Low-cost Health
• Safe Treatment Options for Raynaud's
• Musculoskeletal Rehabilitation in the Person with Scleroderma

300 Rosewood Drive, Suite 105, Danvers, MA 01923 · Phone 978-463-5843 · 800-722-HOPE (4673)
Newly Diagnosed | Donate | Contact Us | Free eLetter | Membership | National Conference | Online Support Community | Store | Calendar
2009 ANNUAL REPORT | 2010 IRS FORM 990 | Careers | Search Site | Search Internet | Home