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December 2009

• Jefferson Awarded Multi-Million Dollar NIH Grant To Create A Center Of Excellence For Autoimmune Diseases
• Researching Morphea: UV-A1 Phototherapy Recommended for Darker-Skinned Patients
• Childhood Arthritis and Rheumatology Research Alliance (CARRA)
• Patients Turn To Online Community For Help Healing
• What Is a Colonoscopy?
• Urinary Tract Conditions: Examining the Evidence on Cranberry and Saw Palmetto
• Conference Scholarship Applications Available for PHA's 9th International Pulmonary Hypertension Conference and Scientific Sessions
• 7th International Congress on Autoimmunity, Ljubljana, Slovenia, May 5–9, 2010
• Window Decal with Cookbook Purchase Our cookbooks make great holiday gifts? The first 100 people to order one or more get a FREE window cling. It is never too early to shop!
• Toward the Early Diagnosis of Systemic Sclerosis
• Water Exercise
• Scarring Alopecia Causes
• NIH Announces First National Research Study Recruitment Registry
• Food Safety Tips for Healthy Holidays
• How to Be Tax-Smart at Year-End

November 2009

• Color Changes in Fingers, Toes May Cause Wintertime Blues
• Energy Savers
• Why Are Women Predisposed to Autoimmune Rheumatic Diseases?
• Scleroderma – A Simple Blood Test Could Save Lives
• Find Your Way to Contribute to the Scleroderma Foundation
• Three Foundation Medical Advisory Board Members and One Grant Recipient Named to arGentis Board
• FDA Approves Intravenous Formulation Of Pfizer’s Revatio® (Sildenafil) For The Treatment Of Pulmonary Arterial Hypertension
• Sally Harrick, wife of long-time UCLA basketball coach, Jim Harrick, died last weekend from scleroderma
• Discovery of New Type of Immune Cells Regulating Inflammation in Chronic Diseases
• Scleroderma Foundation Participates in 2009 American College of Rheumatology (ACR) Annual Scientific Meeting
• Swine Flu Vaccine Shortage Creates a Dangerous Waiting Game
• FDA, WebMD Expand Health Information Partnership
• Nutrition Ideas for Stress Reduction
• Fortify Your Knowledge About Vitamins (video)
• Plasma cytokine profiles in systemic sclerosis: associations with autoantibody subsets and clinical manifestations
• NHLBI Awards $11 Million for Molecular Roadmap to Chronic Lung Diseases
• Pelvic Floor Muscle Exercises Can Help Manage Urinary Incontinence in Older Women

October 2009

• Changes in Scleroderma After SCOT Treatment
• South Carolina Support Group Leader Interviewed About Scleroderma
• 5 Tips to Optimize the Financial Sustainability of the Gluten-free Diet
• Making Sense of the ANA Hodgepodge
• Geneticists hunt for scleroderma triggers
• Additional Information on Gleevec® in the Treatment of Scleroderma
• Patients With Interstitial Lung Disease Need Not Avoid Air Travel, Study Finds
• Nine Supplements to Avoid
• How a Marriage Survives When One Partner Gets Sick
• Treatment of Closed Lock of the TMJ
• Drug Could Provide First Treatment for Scleroderma
• Greater Awareness and Earlier Screening Improve Outcomes for Scleroderma Despite a Lack of Proven Medications, Patients Are Living Longer Lives
• Flu Myths and Realities
• Information on Flaxseed and Flaxseed Oil
• Tips to Fight Osteoporosis
• 2009 SF Capitol Hill Visit A Great Success
• Psychological Distress in Patients With Morphea and Eosinophilic Fasciitis
• Randomized Placebo-Controlled Crossover Trial of Tadalafil in Raynaud's Phenomenon Secondary to Systemic Sclerosis
• Use of Influenza A (H1N1) 2009 Monovalent Vaccine
• FDA Approves Metozolv
• President Obama Announces New Initiatives During National Disability Employment Awareness Month
• NeedyMeds Drug Discount Card
• Scleroderma (CME Study) – This multisystem disease can cause fatigue, disfigurement and depression
• Vaccines Approved for H1N1 Influenza Virus
• Scientists Identify New Genetic Risk Factor for Rheumatoid Arthritis
• New NIH Tool Makes Funding Data, Research Results and Products Searchable
• Longterm Survival Among Patients with Scleroderma-associated Pulmonary Arterial Hypertension Treated with Intravenous Epoprostenol
• Digestive Health Tips

September 2009

• September "Voice" Is On Its Way
• 2009-2010 Seasonal Influenza Vaccines
• "Challenges of Pulmonary Hypertension in Scleroderma," (handout from 2009 National Patient Education Conference
• Systemic Sclerosis
• Lowering Salt in Your Diet
• Advocacy for Patients with Chronic Illness, Inc.
• Generic Drugs: Questions and Answers
• Newsmaker: Thomas A. Medsger, Jr., M.D.
• People with Scleroderma Needed for Research Study on Challenges to Keep Working
• Fact Sheet Released on Pulmonary Hypertension and Stem Cell Therapy
• Food Diet for Acid Reflux
• Juvenile Systemic Sclerosis
• Support Our Capitol Hill Day, Oct. 7–8
• Raynaud Phenomenon
• List of Autoimmune Diseases
• New Book and CD in Our Store!
• Do You Have a Vehicle to Donate?
• Your Digestive System and How It Works
• Changes in the Social Security Law Could Make More People Eligible for Extra Help in 2010
• Health Tip: When Constipation Requires a Doctor's Appointment
• First Guidelines for Management of Hoarseness Released
• Hearty Food, Without Guaranteed Heartburn
• Autoimmune Disease and RA
• Scleroderma Survey
• RESEARCH GRANT DEADLINE: Sept. 15, 2009, 5 p.m. EST
• Scleroderma Student Essay Contest
• NIH Podcast Provides Insights on Autoimmune Diseases and their Impact on Women
• Aerobic Exercise is Safe and Effective in Systemic Sclerosis
• Prescription Painkiller Addiction: 7 Myths
• New Online Forum for Autoimmune Disease Patients Provides Virtual Support Groups
• Healthcare 411 (a news series produced by the Agency for Healthcare Research and Quality)

August 2009

• Tracleer Receives Label Extension in the U.S. for the Treatment of Patients with Mildly Symptomatic WHO Functional Class II Pulmonary Arterial Hypertension
• Ventavis (Iloprost) in Pulmonary Arterial Hypertension Receives U.S. Approval for Increased 20 mcg/ml Strength Formulation
• Scleroderma Survey
• Be Your Own Advocate
• Slideshow: Rheumatoid Arthritis (RA) Pictures
• Contribute to the Scleroderma Foundation's Advocacy Program
• 2009 National Patient Education Conference Award Winners
• Systemic Yeast Infections
• Pulmonary Arterial Hypertension Complicating Connective Tissue Diseases
• 11th World Congress on Pediatric Dermatology
• FDA Approves TYVASO (Treprostinil) Inhalation Solution for the Treatment of Pulmonary Arterial Hypertension
• FDA Issues Final Rules to Help Patients Gain Access to Investigational Drugs
• Help With Medicare Prescription Drug Plan Costs – Recent Updates
• KineMed Describes Innovative Approach To Discover And Develop Drugs To Treat Fibrosis And Identifies Potential Drug For Lung And Liver Fibrosis
• Alleviating Bed Sores Can Be Done
• Enter the Girlshealth.gov Be Heard! Sounding Board Contest (Deadline 8/31/09)
• Advocacy Program Continues to Build Momentum
• August 13 Webinar for Those Living with Pulmonary Arterial Hypertension
• Session Slides, Handouts and Recordings from PHA on the Road
• Today's Caregiver: Local Resources
• Rheumatic Disease & Sjogren’s Syndrome
• Social Security Online: Events Schedule
• Vitamin D Deficiency
• S. 1545, the “Scleroderma Research and Awareness Act” has been introduced into the Senate

July 2009

• National Conference – Photos from Entire Weekend Are Up!
• Safe Sun Protection
• Yoga Off the Mat: At Your Desk
• Some Bacteria Can Be Good For Your Stomach And Digestion
• 1st Systemic Sclerosis World Conference – February 11–13, 2010
• All Natural. Not All Safe.
• Women's Health Binder
• Web-teleconferences for those living with Pulmonary Arterial Hypertension
• Conference Wrapup – We're heading to Boston!
• Poets Needed for SF Grant Contest
• Pulmonary Hypertension Association 2009 PH Resource Network Symposium
• Revatio = sildenafil = Viagra
• Social Security Online What You Can Do Online
• New Use for Active Ingredient of Cialis
• Eating Right on the Road Today's Caregiver (7/17/09)
• Can You Protect Your Job Working with a Chronic Illness?
• HUD to Offer Housing Assistance to 4,000 Americans with Disabilities
• The Pronounced Th17 Profile in Systemic Sclerosis (SSc) Together with Intracellular Expression of TGFβ and IFNγ Distinguishes SSc Phenotypes Abstract
• Limited Scleroderma (CREST Syndrome) From the Mayo Clinic
• Information for Those Living with Pulmonary Arterial Hypertension (7/10/09)
• Children with Juvenile Systemic Sclerosis or Linear Scleroderma (Morphea) and Their Parents Needed for Research Study
• Linda Lee Wells Memorial Education Workshops – Speaker Update (7/3/09)
• Upcoming Chat: Lupus and Your Skin, Guest Speaker: Andrew Franks, M.D.
  July 15, 2009 – 3:00 p.m. Eastern Time
• Stop — Learn — Go — Tips for Talking with Your Pharmacist to Learn How to Use Medicines Safely
• The Possible Dangers of Buying Medicines Over the Internet
• Exercise Improves Functional and Psychological Ability and Reduces Steroid Need in Rheumatoid Arthritis

June 2009

• Linda Lee Wells Memorial Education Workshops – Speaker Update (6/26/09)
• FDA Promotes Openness and Transparency to Public
• Tips and Techniques for Dealing with Stress By Dr. Rita Nachen Gugel
• Dysphagia in Children
• Three Pool Exercises That Won't Embarrass You
• Botulinum Toxin (“Botox”) Alert
• Linda Lee Wells Memorial Education Workshops – Speaker Update (6/19/09)
• Clinical Trials: What are States Doing? February 2009 Update
• 5 Rules for Living with Chronic Illness and Depression: An Interview with Elvira Aletta
• Bosentan (Tracleer®) Receives Positive CHMP Opinion for Pediatric Formulation
• Distinct Autoimmune Syndromes in Morphea
• What Is Bursitis? What Causes Bursitis?
• 300, and Still Going Strong!
• Linda Lee Wells Memorial Education Workshops – Speaker Update (6/12/09)
• Walter A. Coyle Memorial Scholarship Fund Recipients Named
• Co-Sponsorship of Pulmonary Fibrosis Research Enhancement Act 2009 Increases to 27 Members
• Americans with Disabilities Act (ADA) & Civil Rights Update: Disability Law Handbook from the DBTAC Southwest ADA Center
• FDA Approves ADCIRCA(TM) (Tadalafil) Tablets for the Treatment of Pulmonary Arterial Hypertension
• Don't wait for the "Scleroderma Voice" to arrive, register TODAY for the National Patient Education Conference!
• Linda Lee Wells Memorial Education Workshops – Speaker Update - (6/5/09)
• What Is Methotrexate
• Recombinant Human Relaxin Disappoints in Phase 3 Scleroderma Trial
• FDA 101: Health Fraud Awareness
• Rheumatoid Arthritis (RA) Exercises Slideshow: Joint-Friendly Fitness Routines
• Depression: Coping With Anxiety Symptoms

May 2009

• NIH Announces New Program to Develop Therapeutics for Rare and Neglected Diseases
• Long Distance Caregiver – Coping With Emotions
• Health Tip: Foods To Avoid if You Have IBS
• Workshop series at National Conference is named in memory of Ms. Linda Lee Wells
• National Conference Hotel Rate Extended to June 22
• Sjögren's Syndrome – Topic Overview
• Experts Are Thinking About What You Eat. Maybe You Should Join Them
• Federally-funded Health Centers Care for You
• National Resource Directory
• The Scleroderma Foundation Applauds Introduction of First Bill in Congress Promoting Research and Awareness of Scleroderma
• National Conference Speaker and Workshop Update – Thomas A. Medsger, Jr., M.D. and Mary Ann Nirdlinger, MD.
• Free Lipitor, Viagra, Other Drugs for Jobless
• Ocular Manifestations of Scleroderma (PDF)
• Herbal Supplements – Information You Need to Know
• New Types of Walking
• Deadline for 2009 National Patient Education Conference Scholarships Is May 28
• National Conference Speaker and Workshop Update – Charlene Prather, M.D. and Richard Sagall, M.D.
• NeedyMeds Offers Drug Discount Card
• Perioperative Risks and Benefits of Herbal Supplements in Aesthetic Surgery
• Registration Information, Chicago Area Conference, May 27, 2009
• Financial Aid for Students with Disabilities
• Swine Influenza (Flu) Update
• Two Registries Looking for Patients at National Conference: Morphea Registry and DNA Repository and Scleroderma Family Registry and DNA Repository
• SSA’s Hiring Plans for 2009: Linking Candidates with Disabilities to SSA Job
• ACC: Pulmonary Hypertension Consensus Document Released
• Those Inexplicable Instructions!
• The Many Shades of Lupus: Information for Multicultural Communities
• Stressed about caregiving? Join us at a Fearless Caregiver Conference...coming to a town near YOU!
• Scleroderma Message Board Has Moved to Inspire.com
• Are You a Woman of Worth?

April 2009

• Scleroderma Foundation National Conference Speaker Update - Gary Barg and Dr. Edward Lally
• FDA 101: Clinical Trials and Institutional Review Boards
• 2009 Hales Lung Conference Clinical and Pathophysiologic Aspects of Diffuse Parenchymal Lung Disease
• Exercising When You Have a GI Disorder
• Limitations to the 6-Minute Walk Test in Interstitial Lung Disease and Pulmonary Hypertension in Scleroderma
• Living Separate Lives "Together"
• Is Your Skin Dry?
• CPF Launches National PSA to Educate Public on Pulmonary Fibrosis
• 2009 National Patient Education Conference Scholarships Are Available
• Public Meeting on Clinical Trial Registration and Results Reporting
• PHA On the Road - Southern California, Central Florida, Southeast Michigan and New England
• Scleroderma Foundation National Conference Speaker Update - Dr. Maureen Mayes and Dr. David Leader
• "Great Sleep Magazine" Seeks Participants in Sleep Study
• Stomach Condition Can be Difficult to Treat
• National Women's Health Week, May 10–16, 2009
• Scleroderma Foundation National Conference Keynote Speakers
• The Home Caregiver’s Guide to Coping With the Hospitalization of Your Loved One
• 10 Ways You Can Protect Your Joints
• Systemic Scleroderma: The Truth Beneath a “Skin Disease”
• How to Talk to Your Healthcare Professional
• Make your prescription bill easier to swallow
• Tips for Dining Out on the Gluten-Free Diet
• AARDA Implores Office of Research on Women’s Health/NIH to Make Autoimmune Diseases Top Priority for the Next Decade
• Don't Let Depression Get You Down

March 2009

• People with Scleroderma Needed for Research Study on Challenges to Keep Working
• "Newly Diagnosed" Section on Foundation Web site
• New and Emerging Therapies
• Traveling with Dietary Restrictions
• Camp Discovery Accepting Applications for 2009
• A Silent Crisis: Working Caregivers Are Begging For Help
• Obama Opens Door for Scientific Research
• 2009 National Patient Conference – Registration Is Open!
• American Recovery & Reinvestment Act: Letter from Dr. Stephen I. Katz, Director, National Institute of Arthritis and Musculoskeletal and Skin Disease
• Foundation Has Scleroderma Channel on ICYou.com
• Connective Tissue Disease–associated Pulmonary Arterial Hypertension in the Modern Treatment Era
• arGentis Receives Orphan Drug Designation for European Union
• 10 Questions You Need to Ask About Colonoscopy
• New Study Using Combination of Bioengineered Skin and Stem Cells Shows Promise in Treatment of Non-Healing Wounds

February 2009

• WE NEED YOUR HELP: How Do You Generate Awareness for Scleroderma?
• Nonprofit Funds Essential for Researchers
• Imatinib Can Reverse Fibrosis in Models of Systemic Sclerosis
• New Site Helps Researchers Locate Non-federal Funds
• Caregiving Youth
• Bad Breath and Halitosis Cause and Remedy
• Cold Hands?
• Innovative Approach to Identify and Treat Lung Fibrosis
• Nutrition Ideas for Stress Reduction
• Immune System Flexibility Identified in Helper T Cell Function
• Social Security's Economic Stimulus One-Time Payments Information Page
• Tumor Suppressor Could Someday Regulate Fibrotic Diseases
• Hyperbaric Oxygen Therapy Helps Heal Wounds
• Landmark Day for Pulmonary Fibrosis Patients and Researchers as Positive Data From Study May Lead to First FDA Approved Treatment
• Getting Help With Medicare Prescription Drug Plan Costs
• American College of Gastroenterology
• The Research, Condition, and Disease Categorization Process
• Caring for the Caregiver Chat, Tuesday, February 17 at 8 p.m. ET
• Spring Swing Doubles Tennis Tournament
• Kids With Chronic Illnesses Stay Active Web MD Health News
• New Treatment for Tough Disease
• The Impact of Rheumatic Diseases on Sexual Function
• When the Weather Gets Cold: Winter Health Problems
• Reps Can Distribute Info About Off-Label Drug and Device Use, Says the FDA
• "About the Foundation" Video Online
• Charity Navigator Gives Scleroderma Foundation Four Stars
• IRA Gifts Extended Through 2009

January 2009

• Intestinal Pseudo-Obstruction
• Rules to Rejuvenation Lupus Foundation of America
• Download Your State's Advance Directives
• In Search of a Good Doctor
• Understanding Antidepressant Medications
• Online Hotel Registration for 2009 National Patient Education Conference
• "SELF" Magazine Is Looking for Extraordinary Women (Maybe it's You?)
• AAP Addresses Use of Complementary and Alternative Medicine
• arGentis Receives Favorable Opinion for European Orphan Drug Designation
• Six Investigators Receive Scleroderma Foundation Grants in 2009
• Beloved Chapter Leader and Scleroderma Foundation Founder Passes Away
• BYU Study: Disabilities Increase Marital Happiness
• Starbucks Joins Call for National Service and Asks, “Are You In?”
• IRS Tax Topic – Medical and Dental Expenses
• Raynaud's Gel
• Fun with Grandchildren for Grandparents With Disabilities
• Upper Endoscopy
  Esophagogastroduodenoscopy (EGD)
• NIH Increases Funding in 'O8
• Food Label Reading Made Easy and Speedy
• Scleroderma Fact Sheet
• Earn $25 From H&R Block's Non-Profit Referral Program
• SAVE THE DATE!
  Spring Swing Tennis Tournament, March 21, 2009
• NIAMS Researchers Develop Potential Non-invasive Test for OA
• Music May Be Good for Your Heart
• Group Uses Laughter to Improve Lives
• What Is Raynaud’s Phenomenon?
• Chronic Disease Fund - Medication co-pay assistance for the underinsured
• Fathers with Scleroderma Needed for Research Study on Parenting
• Top Ten Ways To Care For Yourself During the Busy Holiday Season
• What You Didn't Learn in EMT School
• Cold Fingers and Toes? It Might Be Raynaud’s
• Help With Medicare Prescription Drug Costs
• Men As Caregivers

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