National Patient Conference

Workshops and Presenters

From left: Dr. Danel Furst, Dr. Keith Sullivan, Dr. Thomas Medsgar, Dr.Richard Silver, moderator

"Stem Cell Transplants"

With Dr. Danel Furst, Dr. Keith Sullivan, Dr. Thomas Medsgar, and Dr. Richard Silver, moderator

Come listen to a moderated panel of three scleroderma experts discuss different types of stem cell transplants. Learn about the various types of stem cell transplants, where they are being done, eligibility requirements for potential candidates, and the potential risks and benefits.

"Esclerodermia 101: Una descripción (En Español)"

By Judith Garza, M.D.

Recibir un diagnostico de Esclerodermia certamente puede ser confuso y ocasionar una experiencia de ansiedad.  Que es Esclerodermia? Cuales son los diferentes typos de Esclerodermia? Cuales son mis expectativas ahora que estoy diagnosticado/a con Esclerodermia? Estas son algunas de las preguntas que usted puede tener.  La meta (o el proposito) de este taller es de quitarle la confusion a el diagnostico, para proporcionarle una descripcion mas comprensiva de Esclerodermia, las complicaciones relacionados con Esclerodermia y terapias actuales.   Este taller le permitira ser un compañero mas eficaz en su cuidado, proporcionandole una base mas fuerte de conocimientos.

Brian Ross Adams

"Advocacy – Grass Roots"

By Brian Ross Adams and Darren Webb

You can make a difference!  Whether it's through a letter, a fax, an email, a phone call, or a face-to-face meeting with your U.S. Representative or Senators, you can help educate government officials about scleroderma.  Learn more about the Scleroderma Foundation’s Advocacy program’s goals and accomplishments.

Raffi Tachdjian, M.D., M.P.H.

"Juvenile Pain Management"

By Raffi Tachdjian M.D., M.P.H. - About Raffi Tachdjian, M.D., M.P.H.

Young people with scleroderma may experience chronic pain for a number of different reasons. What are the mechanisms that contribute to pain, and what can your health care providers do to help you deal with them as effectively as possible? Come and hear about the may ways to manage juvenile pain.