National Patient Conference

Workshops and Presenters

Isidro Lopez, II	Krissy Garthe	Lauren Beeson	Natalie Murdolo

"Young Adults Workshop"

With Isidro Lopez II, Krissy Garthe, Lauren Beeson, Natalie Murdolo and facilitated by Elaine Furst, R.N., B.S.N., M.A. – About Elaine Furst R.N., B.S.N., M.A.

The National Conference is dedicated to providing a wide array of interactive and informational workshops for attendees. This year, a new open panel discussion will feature a Young Adult seminar for individuals ages 18–35 who would benefit from sharing their experiences with scleroderma. Facilitated by Elaine Furst, R.N., four panelists, ages 18–35, will offer their own perspectives on the disease as well as their approach to managing its symptoms. Attendees are encouraged to participate in this dialogue and share their own thoughts about scleroderma.

"Juvenile – Partnering With Your Health Team"

Sandra Watcher, R.N., B.S.N.

By Sandra Watcher, R.N., B.S.N. – About Sandra Watcher, RN, BSN

Every child or young adult with Scleroderma is the "Center" of their own health care team. In this workshop we will discuss the roles of each member of your team including your coaches(health care providers), cheerleaders (family, friends), and fans (scleroderma foundation, community resources). As the "Center" you and your cheerleaders can take an active role in your health care. This workshop will discuss the benefit and ways to create a partnership for a winning team.