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December 2008

• Cancer Drug Arouses Hope for Patients Suffering with Scleroderma
• Stress and the Holidays: Coping Strategies to Keep you Sane
• Taking Vitamin D Levels Seriously
• Collagen Vascular Diseases and the Lung
• Travelling with Dry Eye
• Reflecting On Our 10th Anniversary Year: 2008 In Review
• December 2008 "Scleroderma Voice" in Your Mailboxes Soon!
• 10 Foods That Bring on the Pain
• Travelers with Disabilities and Medical Conditions
• Foods That Help or Harm Your Sleep (Slideshow)
• Shifting Our Thinking About Uncommon Disease Trials: The Case of Methotrexate in Scleroderma
• Spotlight on Women's Health
• Diagnosis, Management and Prevention of Scleroderma Renal Disease
• Avoiding Drug Interactions
• Lungs Have Their Own Kind of High Blood Pressure
• A Message from the Development Staff

November 2008

• Food Safety Tips for Healthy Holidays
• Giving Thanks Throughout the Year
• Food Safety Tips for Healthy Holidays
• Recent Data on the Treatment of Pulmonary Arterial Hypertension: An Expert Interview With Dr. Steven Nathan
• Are You a College Student Diagnosed with Autoimmune Related Disease(s)?
• So Many Ways to Contribute to the Scleroderma Foundation

• Did You Know that our cookbooks make great holiday gifts? Order by Dec. 10 and receive free gift wrapping! It is never too early to shop!

• Give More to the Scleroderma Foundation Just by Using Your Checking Account!
• Bobby Hamilton Jr. Finishes Season with a 21st Place Finish
• Keystone Symposia: Fibrosis
• For All the Ways You Care.com
• Selling an Item or Just Shopping?
• TMJ Diseases & Disorders
• MediQuest Receives NDA Response from FDA
• End-of-Life Discussions With Physicians May Have Benefits For Patients and Caregivers
• Dry Eyes and Mouth Point to Sjögren's Syndrome
• Lower Extremity Impairment and Activity Limitations
  in Persons with SclerodermaLower Extremity Impairment and Activity Limitations in Persons with Scleroderma
• "Chasing the Cure"
• Dry Eyes and Mouth Point to Sjögren's Syndrome
• A Reel Victory for Scleroderma!
• Gilead Announces Two-Year Clinical Data for Letairis(R) (ambrisentan) for the Treatment of Pulmonary Arterial Hypertension (WHO Group 1)
• Tadalafil Reduces Raynaud's Episodes in Patients With Scleroderma
• Ten Myths Of Chronic Pain
• Patient Medication Card

October 2008

• 2008 American College of Rheumatology Annual Conference
• FDA Issues Warning Letters to Bayer HealthCare for Illegally Marketing Two Unapproved Drugs
• Systemic Sclerosis Entails Unique Cardiac Risks (Full Text Requires Free Registration)
• Free National Telephone and Webinar Class for Family Caregivers
• Did You Know that our cookbooks make great holiday gifts? Order by Dec. 1 and receive free gift wrapping! It is never too early to shop!
• Flu Season Is Here: Learn How to Protect Yourself and Your Loved Ones
• Momentum Revs Up for arGentis
• Patients Seek Financial Aid to Buy Medicine
• Foundation to Attend 2008 ACR Annual Meeting
• Specialists and Self-Care Are Critical for Scleroderma
• Social Security Announces 5.8 Percent Benefit Increase for 2009
• Autoimmune Diseases Demand a Low-Stress Lifestyle
• SSc Trend in Eastern Europe Not Explained by Geography
• Tulsa Support Group Leader Marie Marshall Nominated for Jefferson Award
• Did You Know that we have our 10th Anniversary Tote Bags for sale in our store? Order yours today!
• "Times" Essentials: Clinical Trials Selected Studies: Scleroderma
• Tips for Talking With Your Health Care Providers About CAM
• Meal Planning Quick Tips to Prevent Heartburn
• Help the Scleroderma Foundation Earn $25 Through H&R Block's Non-Profit Referral Program
• New Legislation for Autoimmune Disease Applauded
• "Times" Essentials: Questions for Your Doctor
  "What to Ask About Scleroderma"
• NIH Announces Initial Implementation Timeline For Enhancing Peer Review Activity
• 11 Tips for Living With Chronic Pain

September 2008

• Bobby and Team Rensi Motorsports Fall Flat, Literally

• Turning Points in Scleroderma Care

• Skin-Hardening Disease May Hit Heart, Lungs

• Fruit Juices Block Common Drugs

• Correction for the medication section of the September "Scleroderma Voice"

• Bobby Finishes 15th in Dover
• Benefit Eligibility Screening Tool (BEST)
• Did You Know that we need volunteers?
• Research Grants Received
• "The Unfolding Mystery of Scleroderma"
• Introducing the PH Pediatric School Resource Handbook (courtesy of the PHA Web site)
• An Open-Label Pilot Study of Infliximab Therapy in Diffuse Cutaneous Systemic Sclerosis
• Living Well with Sjögren's Syndrome
• UT Med School Gets $6 Million NIH Grant to Study Scleroderma
• ADVOCACY ACTION ALERT
  Lifetime Insurance Caps Bills Introduced in the U.S. Congress
• New Approaches May Help Tame Scleroderma
• Telephone Counseling Improves Lung Transplant Quality of Life
• Low Versus High-dose Iloprost Therapy Over 21 Days in Patients with Secondary Raynaud's Phenomenon and Systemic Sclerosis: A Randomized, Open, Single-center Study
• Bobby Hamilton, Jr. Finishes 19th at Fontana

August 2008

• GRABBER Warmers on Sale!
• NIAMS Introduces Easy-to-Read Health Information CD-ROM
• PAH Incidence High in Sclerosis
• New Developments in Localized Scleroderma
• Donate Through the United Way or Combined Federal Campaign Programs
• The Nationwide Series Moves West
• Bobby Hamilton Finishes the Food City 250 in a Solid 18th Position
• Exercise to Stay Young
• NIH Scientists Find a Novel Mechanism that Controls the Development of Autoimmunity
• Exercise-Induced Pulmonary Hypertension Common in Systemic Sclerosis
• David Leader, D.M.D., wins "Doctor of the Year" award at 2008 National Patient Education Conference
• Bobby Hamilton Jr. Finishes 16th at the Glen
• Grant Recipients Needed for Scleroderma Research
• 2008 National Patient Education Conference Award Winners
• Endothelin Antagonist Trial in Mildly Symptomatic Pulmonary Arterial Hypertension: The EARLY Study
• High-Resolution CT Scan Findings in Patients With Symptomatic Scleroderma-Related Interstitial Lung Disease
• Sunshine, Smiles, and Success for 2008 National Conference
• EULAR 2008: The European League Against Rheumatism Annual Congress. Highlights From Daniel Furst, M.D.
• The Registry of the German Network for Systemic Scleroderma: Frequency of Disease Subsets and Patterns of Organ Involvement
• Boris Said Finishes A Solid Fifth in Montreal

July 2008

• Studies from University of Pittsburgh in the Area of Pulmonary Fibrosis Published
• Ultraviolet Light Therapy Is as Beneficial for Darker Skin as Lighter Skin
• NIAMS Scientists Find Potential New Way to Block Inflammation in Autoimmune Disease
• Scleroderma Foundation National Conference Speakers Update (7/18/08)
• Dartmouth Researchers Discover Gene Signatures for Scleroderma
• Scleroderma Foundation National Conference Speakers Update (7/11/08)
• Bobby Hamilton Jr. Settles for a Fifteenth Place Finish
• New Service for Individuals Using Actelion's PAH Medications
• Scleroderma Foundation at PHA Conference in Houston, Texas
• Scleroderma Foundation National Conference Speakers Update (7/4/08)

June 2008

• Scleroderma Foundaton National Conference Speakers Update (6/27/08)
• The Scleroderma Foundation Announces Its 2008 Research Grant Funding Program
• Scleroderma Foundation National Conference Speakers Update (6/20/08)
• Roger Williams Gets $250,000 for Ulcer-Healing Study
• More Research Needed to Understand Scleroderma
• New Caregivers Guide for Chronic Lung Disease from the American Lung Association
• Prodigy Wins Nationwide Race at Kentucky Speedway
• Questions for Stem Cell Panel Discussion
• Scleroderma Foundation National Conference Speakers Update (6/13/08)
• What Is Difficulty Swallowing (Dysphagia)?
• ACP Foundation Releases New HEALTH TiPS at Internal Medicine 2008
• The Appeals Process
• Scleroderma Lung Disease
• New Book in Our Store: "A Parent's Guide to Rheumatic Diseases in Children," by Thomas J.A. Lehman, M.D., FAAP, FACR
• June 17 Chat – Scleroderma: A Chronic Pain Concern for Many 
• Scleroderma Foundation National Conference Speaker Update (6/5/08)
• "Ticket to Work" Program Meetings Scheduled
• Pulmonary Function Tests
• MediQuest Therapeutics Submits Drug Application To FDA To Treat Raynaud's Disease
• Water Exercise and Aquatic Therapy: What is Water Exercise?
• Autoimmune Diseases: Overview
• Bobby Hamilton Jr. Helps Tame the Monster Mile

May 2008

• Gilead Announces New Letairis® (Ambrisentan) Data for the Treatment of Patients With Pulmonary Arterial Hypertension (WHO Group 1) With WHO Functional Class II or III Symptoms
• U.S. Dept. of Transportation – Final Rule Allowing Air Concentrators on Flights
• Undiagnosed Diseases Program
• Beta Sigma Phi Continues Its Support of the Scleroderma Foundation
• Persons with Scleroderma Needed for Research Study
• Ventavis Recall
• Two More Workshops Announced (5/30/08)
• Hamilton Finishes 18th
• Scleroderma Foundation National Conference Speaker Update (5/23/08)
• Artwork Raffle for Scleroderma
• Scleroderma Foundation National Conference Speaker Update (5/16/08)
• Raising Awareness of PAH
• Mothers and Offspring Can Share Cells Throughout Life
• Sex Differences in Autoimmune Disease
• The Lady in Black Tames the Field
• HHS Genetic Testing Report
• NORD Report on Funding for Scleroderma
• Scleroderma Foundation National Conference Speaker Update (5/9/08)
• Scleroderma Bound Yet Determined
• UNM Therapy Program Given National Honors
• FDAs Proposed Ruling on Sunscreen Protection Products
• Susquehanna Swim for Scleroderma
• 2008 National Art Contest
• Hamilton Finishes a Solid 17th in Richmond

April 2008

• Patient Power with Andrew Schorr - Missed the broadcast? No worries. You can listen online!
• Genetic Anti-Discrimination Bill Clears Congress
• Scleroderma Foundation National Conference Speaker Update (week ending 5/2/08)
• Request for Information (RFI): To Solicit Ideas for Common Fund / Roadmap Trans-NIH Strategic Initiatives
• The Description and Treatment of Raynaud's Disease/Phenomenon
• Anticoagulants, Pulmonary Arterial Hypertension, and Scleroderma
• Eliminate Agonizing Hand Pain Quickly and Easily!
• Hospice: Questions To Help Select Care Providers at Life’s End
• Psych Yourself Up for Exercise
• Hamilton, Jr. Finishes Third at Talladega!
• Scleroderma Foundation National Conference Speaker Update (week ending 4/25/08)
• Senate Passes Genetic Discrimination Bill
• Vasculopathic Diseases Complicate Pregnancy
• 2008 Department of Defense Research Program Request For Applications Released
• Commemorative Stamp for Scleroderma
• Study Sheds Light on Deadly Lung Disease
• Walking Does A Body Good
• Accident Ends Said’s Run in Mexico City
• Scleroderma Foundation National Conference Speaker Update (week ending 4/18/08)
• Practical Approaches to Vascular Complications in Systemic Sclerosis (SSc)
• Rep. Kagen Introduces Bill to End Discrimination in Health Insurance
• Suffering with Jaw Pain?
• Referral and Follow-up of Patients With Scleroderma and Pulmonary Arterial Hypertension
• Over $1 Million Awarded in Research Grants
• Caution: Over-the-Counter Creams
• Fact Sheet: Medicaid Transportation Services (Feb '08)
• National Conference Speakers (week ending 4/11/08)
• Texas Race Recap
• Tax Deduction for Medical Conferences
• Hamilton, Jr. Buys Into Sadler Racing
• Check Up On Your Bones
• ASK DR. WEIL: Dealing with dry mouth?
• Revised Medical Criteria for Evaluating Immune System Disorders; Final rule

• Scleroderma Foundation National Conference Speaker Update (week ending 4/4/08)

• FY09 Budget to Increase Funding for the NIH Was Adopted!

March 2008

• John McCutcheon will hike from Georgia to Maine—all 2,175 miles, starting April 1.

• 2008 DOD Research Program – Apply Now!
• Good Nutrition: It’s a Way of Life
• Water Walking
• Hamilton Finishes 10th
• Cynthia Cervantes Testifies Before Congress
• Four Brochures Are Available in Spanish!
• Methicillin-Resistant Staphylococcus Aureus (MRSA)
• Foot Ulceration Common in Rheumatoid Arthritis Patients
• Morphea Registry and DNA Repository Will Be at the National Conference
• Rain Slows Hamilton’s Bristol Charge
• Northwestern Memorial Study Tests Cancer Drug on Scleroderma Patients
• Chattem Issues URGENT Voluntary Nationwide Recall of Icy Hot® Heat Therapy™ Products
• Telephone Help

• Scleroderma Family Registry & DNA Repository Recruiting Patients

• Dame Carol Black on Sick-Note Britain
• Legislative Action Alert: Support Funding for the National Institutes of Health
• Timing of Cautions Drops Hamilton from Top 15 in Atlanta
• Dr. Paul Donohue: "Scleroderma is more than skin-deep"
• Survival Tips for Current and Future Caregivers
• Cold Weather Advice for PH Patients
• Camp Wonder Is Now Accepting Applications
• Health Book: Difficulty Swallowing
• 13 year old with scleroderma chosen to testify before the House Labor-HHS-Education Sub-Committee, March 13, 2008
• Hamilton Finishes Strong in Las Vegas

February 2008

• Foundation’s Advocacy Efforts Secure Scleroderma in Approved Department of Defense Research Program
• Help the Scleroderma Foundation Earn $25 Through H&R Block's Non-Profit Referral Program
• FDA Proposes Guidance for Dissemination of Information on Unapproved Uses of Medical Products
• Do You Know Your Family AQ?
• Every Breath Is Precious: Victoria Chavez fights for an experimental procedure that could save her life
• Hamilton Finishes 20th
• "My Medicines" … This Brochure Can be a Lifesaver
• Do Homework Before Surgery
• Scleroderma Sufferers Want More Understanding From GPs
• Justices Shield Medical Devices From Lawsuits
• Help Nabisco Celebrate 100 Extraordinary Women
• Brochure—a Lifesaver
• Bobby Hamilton Has Great Start to Season
• National Conference – Registration Is Open!
• arGentis Pharmaceuticals, LLC Receives Orphan Drug Designation
• Clinical Trial a Breath of Fresh Air for CF Woman
• Spring Swing Tennis Tournament
• Pediatric Rheumatologic Diseases
• Book Room for Conference
• 5 Steps to Start the New Year Right
• Support Scleroderma Postage Stamp Resolution in the House of Representatives!
• eLetter Survey Results 2008
• SSA – Disability News
• Families USA - Help with Health Insurance
• Medicare at a Glance
• Meds Lower BP in Lungs
• Maximizing Your Medical Deductions
• 2008 National Conference

January 2008

• New Medicines Can Help Lower High Blood Pressure in Lungs
• Maximizing Your Medical Deductions
• Camp Sunshine
• SAVE THE DATE – July 25–27, 2008, Scleroderma Foundation National Conference
• Raynaud's Disease Is More Than Cold Hands and Feet
• Sjögren's Syndrome 101
• Camp Discovery
• Stem-Cell Funding Expands
• Research Advancements Could Lessen Scleroderma Complications
• Medical Therapy for Pulmonary Arterial Hypertension
• Scleroderma & Oral Health (PDF)
• Medicare & You 2008 (PDF)
• Helpful Products

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