People at the 2006 National Conference got reacquainted at the Friday night reception.

Conference Call

Save the dates: July 20–22. It’s the annual Scleroderma Foundation Patient Conference and it is quickly shaping up to be a must-attend event. Check out what we have already lined up:

• Dental Issues
• Depression and Coping
• For Caregivers Only
• For Male Patients Only
• Gastrointestinal Issues
• Juvenile Scleroderma
• Localized Scleroderma
• Lung Transplants and Scleroderma
• Maximizing Life, Minimizing Stress
• Raynaud’s
• Pain Management
• Occupational and Physical Therapy
• Clinical Trials
• Sjögren’s Syndrome
• Scleroderma and Cancer
• Nutrition
• Pulmonary Fibrosis
• Pulmonary Arterial Hypertension
• Scleroderma 101
• Scleroderma-Related Tests and What They Mean
• Sexuality and Scleroderma
• Stem Cell Transplants – Panel Discussion
• Surgical Options for Hand Involvement
• Wound Care and Digital Ulcers
• Yoga for Scleroderma

(Please note that due to conflicts that are out of our control, it is possible that not all these topics will be offered).

As you can see, the conference reaches out to a number of groups: men, children and caregivers, among them. Some tried and true workshops—ones attendees have liked in the past—are back, but so are new ones including the stem cell transplant discussion, the lung transplant workshop and the tests for scleroderma.

2006 National Conference workshop

“What’s most exciting to me is how dedicated and committed the doctors and presentors are to participating in the conference,” said Jaye van Dussen, the Foundation’s development and grant manager who is organizing the workshop program. “Thanks to them our lineup of workshops is phenomenal.”

While the conference promises to help you learn about scleroderma and how if affects you and your family, it is also an event that allows you to reconnect with friends, and establish new relationships as well.

And the conference site, the Doubletree Hotel, is in the heart of downtown Philadelphia. The city is home to many of the nation’s most historic attractions, and offers wonderful cultural, dining and shopping experiences.

To register for the conference, download the conference registration form, complete it and mail it to Scleroderma Foundation, 300 Rosewood Dr., Suite 105, Danvers, MA 01923, fax it to 978-463-5809, or call us at 800-722-HOPE and someone will take your registration over the telephone.

To book a hotel room at the special conference room rate of $159, click here.