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December 2007

• 2007: The Year in Review
• Cookbooks Now Just $5
• Survey of more than 600 patients treated with Tracleer® (bosentan) reveals Actelion Sure Steps® Patient Support Program provides valuable educational information
• March on Washington
• The End of the Year Is an Ideal Time to Give the Gift of a Scleroderma Foundation Membership
• Social Security Holds First Disability Hearing on Compassionate Allowances
• Vasodilator Iontophoresis—a Possible New Therapy for Digital Ischaemia in Systemic Sclerosis?
• "Swing for the Stars" a Smashing Success
• Anticoagulation Therapy, Pulmonary Hypertension, and Connective Tissue Disease
• Studies in Families with Siblings Discordant for Systemic Rheumatic Disorders
• Foundation to Benefit from Florida Golf Tournament
• CarePages.com Offers Virtually Endless Emotional Support for Patients

November 2007

• 2008 PHA Conference Scholarship Applications Now Available
• Variation in CTGF Gene Is Linked to Systemic Sclerosis
• A New Method Allows For The Early Diagnosis Of Pulmonary Hypertension
• Scleroderma Research Proposals to be Reviewed Next Saturday
• Eight MAB Members Make America’s Top Doctors List
• Food Safety Tips for Healthy Holidays
• National Family History Day, 2007
• We Asked, You Answered: What You Have to be Thankful For
• Bon Jovi Guitar, Macy's Parade Seats Now up for Grabs
• ACR Summary: Advances in Scleroderma Research
• 2008 Medicare Prescription Drug Open Enrollment Questions and Answers
• Childhood Systemic Sclerosis
• Buy products from Giveline.com, and they will contribute between 7 and 33 percent of product sales to the Scleroderma Foundation!
• National Gala to Honor Doctors
• Foundation to Have Presence at ACR Annual Meeting
• IMPORTANT DRUG WARNING – CellCept® (PDF)*
• Many Causes, Treatments for Chronic Swelling of Feet
• Coping with Chronic Illness (PDF)*
• The Scleroderma Foundation’s National Office and the Tri-State Chapter will kick off the holiday season this year with the second "Swing for the Stars" gala.

October 2007

• Foundation to Have Presence at ACR Annual Meeting
• Action Alert! Funding for the National Institutes of Health
• UVA1 Phototherapy Promising for Sclerotic, Fair Skin
• FDA Announces Revisions to Labels for Cialis, Levitra and Viagra
• Steroid Use for PAH in Scleroderma
• Treatment of Dry Mouth (PDF)
• $50 million dollars available for the DoD Peer-Reviewed Medical Research Program
• 8th grader in New York creates a group on FaceBook in honor of his dad who has scleroderma
• Bosentan Slows Progression in Class II PAH
• It's the Next Best Thing to Being There: Conference Workshops Now on DVD!
• Pregnancy & Rheumatic Disease
• Matthew Mace, an 8th grader in New York, created a group on FaceBook in honor of his dad, Jeff, who has scleroderma
• 35 Applicants Seek Scleroderma Research Grant Funding
• Vitiligo May Be First Sign of Localized Scleroderma
• During October, the book "Journey Beyond Diagnosis" will be on sale for $8, plus $3 shipping (normally $14.95).
• Intensive Therapy Effective for Systemic Sclerosis
• A Friend Indeed – Angelo DiVincenzo met his goal. Now he wants to raise an additional $10,000!

September 2007

• SAVE THE DATE FOR THE NATIONAL CONFERENCE—July 25–27 in Manhattan Beach, Calif.
• Tissue-Growth Gene Tied to Scleroderma
• Highlights from the “Scleroderma VOICE,” our member magazine, can now be found on our Web site
• Reports from University of Texas, Health Science Center Highlight Recent Research in Systemic Sclerosis Genetics
• Updated Labeling for Coumadin (Warfarin)
• College Student Vies to Break World Record While Raising Money and Awareness for Scleroderma
• Products from Managing Page of "Scleroderma VOICE" Added to Resources Section of Our Web site
• Assistive Devices for Arthritis Sufferers
• Create a CarePage, Benefit the Scleroderma Foundation
• Workplace Giving – excellent way to support the Scleroderma Foundation

August 2007

• National Invisible Chronic Illness Awareness Week, Sept 10–17
• ACCP Issues New Treatment Guidelines for PAH
• Scleroderma Patients Need Annual PAH Screening
• Scientists Discover Important Beauty Secret for Balanced Skin Color and Tone
• Angelo DiVincenzo Is Close to His Goal—Raising $10,000 in Honor of Alyson Who Has Scleroderma
• Foundation to be Featured Charity Sept. 7 on GoodSearch.com
• Zelnorm (tegaserod maleate) Information
• Motorcycle Auctions—Proceeds to Benefit Scleroderma Foundation
• Research Grant Applications Due September 17
• Cyclophosphamide Is Safest When It's Infused
• Teva Announces Tentative Approval Of Sildenafil Citrate Tablets, 20 Mg
• arGentis signs Exclusive License Agreement with UTRF for Scleroderma Treatment
• American Pain Foundation Has a Call for Submissions
• New Web Page Created for Goods Sold Online That Benefit the Scleroderma Foundation
• Autoimmune Beauty Book for Sale
• Ways to Contribute to the Scleroderma Foundation
• National Conference Handouts Are Available!
• National Conference Award Winners
• Healthday.com Web site Launches Story on Scleroderma
• Unique Surveillance Programme Confirms the Clinical Safety of Bosentan in Pulmonary Arterial Hypertension
• We Believe" We Had an Excellent Conference
• Pulmonary Arterial Hypertension – Current Approaches and Future Expectations for Clinicians and Patients. Check dates near you.
• Echocardiography and Pulmonary Hypertension
• EULAR Issues First Guidelines on Scleroderma Care: Heterogeneity ups therapeutic challenge
• The First Annual "Cope-N-Cruise!"

July 2007

• As part of international awareness campaign, Actelion Pharmaceuticals offers new Web site on Pulmonary Arterial Hypertension (PAH)
• Scleroderma Outlook Improves as Survival Increases
• 2007 National Gala News – Second "Swing for the Stars" gala will be held November 29, 2007 at the Grand Hyatt Hotel in mid-town Manhattan

• MediQuest Concludes Confirmatory Phase III Study of Raynaud’s Therapy
• Surface Logix Commences Phase 2a Clinical Trial of SLx-2101 in Raynaud's Disease
• The Possible Dangers of Buying Medicine Online
• Foundation Staff Meet and Greet Team Rensi Drivers in Loudon, N.H.
• Don’t Stop the Presses: All Pitch In to Make Scleroderma Awareness Month a Success
• Yoga for Scleroderma Now Available on DVD!

June 2007

• Epoprostenol Treatment Effective in Children With Severe Pulmonary Hypertension
• USA Health System Establishes Center Specifically for Pulmonary Hypertension Patients
• Scientists Develop a Mouse Model of Scleroderma
• Research Advancements Could Lessen Scleroderma Complications
• New Support Group in Chicago!
• Bosentan (Tracleer) Receives EU Approval for Reduction of Number of New Digital Ulcerations in Systemic Sclerosis Patients
• Systemic Sclerosis Therapy
• Quinapril for Sclerosis Failed in Long-Term Study
• Simmons Fund for IPF Makes Its First Research Grant Award to Carol Feghali-Bostwick, Ph.D.
• Diamonds, a catered dinner at home and the hospitality of the Duke family. Sounds like a great night out, don’t you think?
• Dry Mouth Remedies – Summer heat can cause anyone’s mouth to get parched...
• Pulmonary Arterial Hypertension – Current approaches and future expectations for clinician and patients
• Cyclophosphamide Improves Quality of Life With Scleroderma Lung Disease
• Research May Yield Improved Treatment for Diseased Lungs
• Emily Woods's Story Featured in "Readers Digest"
• First U.S. Morphea Registry and DNA Repository for both Adults and Children Established
• SCOT Trial Still Seeking Patients
• Gilead Announces Presentation of Long-Term Data for Ambrisentan, a Potential Treatment for Patients With Pulmonary Arterial Hypertension
• Emmy Nominated Actress Kellie Martin Stars in New Autoimmunity PSA Campaign

May 2007

• Imatinib Could Boost Systemic Scleroderma Tx
• Scleroderma with Calcinosis
• Arthritis: Chemotherapy Drugs to Treat Arthritis
• New Criteria Debut for Classifying Juvenile Systemic Sclerosis
• Announcing Our New Advocacy Program!
• Vascana Findings to be Presented at International Scleroderma Conference
• Treating Pulmonary Fibrosis and Pulmonary Hypertension
• Stem Cell Transplantation Works for Scleroderma
• Hand Involvement and Pulmonary Hypertension Two Latest Workshops for SF Conference
• Managing Sjögren's Syndrome
• Chris Rocks – Comedy Event a Hit!
• Calcinosis
• Raynaud's Syndrome and PAH
• Meet Two More National Conference Presenters and Read About Their Workshops
• Evaluating the Lung in Connective Tissue Disease
• Honors Keep Coming for Lauren Beeson
• Therapy Insight: Guidelines for Selection of Contraception in Women with Rheumatic Diseases
• Lucien Hold: Iconic Figure

April 2007

• Nine Comedians Are Scheduled to Take the Mike at the Night of Comedy to Benefit the Scleroderma Foundation
• Two New Workshops for National Conference Announced: "For Caregivers Only" ~ AND ~ "Yoga for All Levels of Ability and Mobility"
• PAH in Connective Tissue Disease
• Immunology and Uveitis
• Endothelial Progenitor Cell Transplant Helpful in Pulmonary Hypertension
• Two More National Conference Workshops and Presenters Are Highlighted
• Pulmonary Hypertension in Patients With Interstitial Lung Diseases
• Juvenile Systemic Sclerosis Diagnosis Hinges on Skin Signs
• Highlights of the Annual Dialysis Conference: Chronic Kidney Disease Related-Anemia
• Skin Tightens, then Darkens and Thickens, in a 7-year-old
• Food—Drug Interactions. Which ones really matter?
• Tired of Being Tired? Tips for Fighting Fatigue
• Issues in Diagnosis and Management of Pediatric GERD
• National Conference Opening and Closing Keynote Speakers Announced
• California PH Forum 2007 – An educational event for patients, caregivers and medical professionals
• Conference Online Registration Now Available
• Between 1998 and 2003, Research Grants by the National Institutes of Health Doubled
• Encysive Pharmaceuticals Announces Launch of Thelin (Sitaxentan Sodium) in Republic of Ireland
• FDA Health Advisory – Tegaserod Maleate (Marketed as Zelnorm) being taken off the market
• Laughs, Love and Lucien: A Night of Comedy to Benefit the Scleroderma Foundation
• Two National Conference workshops and presenters are highlighted in the eLetter

March 2007

• Modified Roux-en-Y Aids Esophageal Scleroderma
• Actelion Announces Bosentan – Tracleer – Receives Positive EU Opinion for Reduction of New Digital Ulcerations in Systemic Sclerosis Patients
• A Friend Indeed – Angelo DiVincenzo and Alyson met in high school and have remained best friends since
• Congress Introduces Resolution Designating May 2007 Nat'l Auto-immune Diseases Awareness Month
• AHA Statement Recommends Doctors Change Approach
• Tissue Doppler Aids Pulmonary Hypertension Assessment
• The Scleroderma Foundation National Conference is July 20–22. Check out what we have already lined up.
• The Scleroderma Foundation was well represented at the Int'l Workshop on Systemic Sclerosis held in Milan, Italy
• You Can Now Book a Room, and Register for National Conference
• CarePages: A Valuable and Time-saving Resource
• Magnet a New Awareness Vehicle
• "What a Nice Voice You Have" – March 2007 “Scleroderma Voice" magazine will arrive in mailboxes soon!
• Atop the Leaderboard – The first four events of the 100 by $1,000 project have far exceeded expectations
• The Scleroderma Foundation Has a New Home Page on Its Web site

February 2007

• Women at Greater Risk for Autoimmune Diseases with Ocular Manifestations
• National Autoimmune Disease Conference – What Every American Needs to Know About Autoimmune Disease
• What is Gastroparesis?
• Complications Associated with Pulmonary Arterial Hypertension. (May require free registration to MedscapeToday.com.)
• Pulmonary Hypertension Program to be Held March 16 at Johns Hopkins for Medical Professionals
• Good Start—The first 100 by $1,000 tournament raised $5,500 on Monday, Feb. 12
• Foundation Race Car Partner David Gilliland Has Hot Week
• You’ve Got Questions, We’ve Got Answers. New section of Web site here to help you
• Space Technology Benefits Medical Community
• Headline regarding Topical Nitroglycerin Gel from eLetter #179 elicited many e-mails asking questions about the gel's availability
• Progressive Skin Changes on the Forehead of a 16-Year-Old Girl (May require free registration to MedscapeToday.com.)
• Study: Blood Viscosity Shown to Be Elevated in Scleroderma Patients
• Improved Long-Term Outcome With Remodulin Reported in European Respiratory Journal and Rapid Transition to Remodulin Reported in Journal of Cardiovascular Pharmacology
• FDA Proposes Labeling Changes to Over-the-Counter Pain Relievers
• Running On ... Hope and Resilience!, by Rosalind Joffe, M. Ed.
• Topical Nitroglycerin Gel Shows Promise as Treatment Advance for Raynaud's
• First 100 by $1,000 Event Is 10 Days Away
• Scleroderma, Systemic Lupus Erythematosus, and Pulmonary Arterial Hypertension (May require free registration to MedscapeToday.com.)

January 2007

• Texas Doctors to Study Genetic and Environmental Factors in Scleroderma
• Research Updates from the American College of Rheumatology Meeting in November 2006. (May require free registration to MedscapeToday.com.)
• Do PPIs Diminish Barrett's Esophagus Length or Cancer Risk? (May require free registration to MedscapeToday.com.)
• Gentlemen, start your engines
• Rice University Breakthrough Could Prevent Multiple Fibrotic Diseases
• Scleroderma Foundation to Benefit from Golf Fundraisers
• Connective Tissue Disease and Interstitial Lung Disease (may require free registration to Medscape).
• Meet the Board of Directors
• Scleroderma Foundation Funds $1 Million in New Research Grants to Seven Investigators
• New Treatment Hope for Systemic Sclerosis

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