| PRINCIPAL
INVESTIGATOR
Maureen D. Mayes, M.D., M.P.H.
CO-INVESTIGATOR
Frank Arnett, M.D.
REGISTRY COORDINATOR
Marilyn Perry, B.S.
ASST. REGISTRY
COORDINATOR
Victoria Griffin, M. A. |
Dear Friend of the Scleroderma Foundation:
On behalf of Maureen Mayes M.D., MPH, I invite you
to register and become members of the Scleroderma Family
Registry & DNA Repository. This NIH/NIAMS (National
Institutes of Health/National Institute for Arthritis,
Musculoskeletal and Skin Diseases) financed national
resource has to date enrolled over 800 Scleroderma patients.
Thanks to these samples, we have made some strong
associations with a small group of genes and are in
the process of publishing these results.
The next step for our research involves the performance
of a genome wide scan. The Registry currently does
not have enough samples to complete this scan and so
I am appealing to those patients not currently in the
Registry to join. Our goal is to recruit 4,000 samples.
We can accomplish this with your help.
We need individuals in the following categories:
- Individuals diagnosed with systemic forms of scleroderma
- Parents of individuals with systemic disease
- Friends without any autoimmune disease to serve
as healthy controls, age-matched to patient donors—we
have a critical need for participants in this category.
Please spread the word to let others know we are making
progress searching for the genetic factors that underlie
scleroderma, and that we need their help.
For details and an enrollment form, please contact
the Scleroderma Registry office at:
Toll free: 800-736-6864
Office: 713-500-7196
Fax: 713-500-0718
Or email Marilyn Perry at marilyn.perry@uth.tmc.edu.
You may visit our website at http://gcrc.med.uth.tmc.edu/scleroderma/index.html.
With our sincere thanks for all your support,
Scleroderma
Registry |
