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Mothers with Scleroderma Needed to Participate in a Survey Research Study

Mother and daughter

Researchers from the University of New Mexico are seeking participants for a study exploring the impact of symptoms—such as pain and fatigue—on parenting mothers with systemic sclerosis (scleroderma).

Mothers of children between the ages of 0 and 18 years who have been diagnosed with scleroderma may be eligible to participate. You may be asked to take part in an online focus group or complete a packet of questionnaires (either online or on paper).

For information about the study please contact either:

Download Parenting Abstract (pdf format)

TO BE ELIGIBLE YOU MUST BE:

  • Over 21 years old
  • Able to read and write in English
  • Diagnosed with scleroderma by a physician
  • A mother of a child or children between the ages of 0 and 18 years of age

WHERE:

Survey packets may be completed online at a location convenient to you, or in your home.

WHAT THE STUDY WILL CONSIST OF:

  • 30–45 minutes of your time
  • Completing questionnaires either online or on paper
  • Answering questions about daily tasks, pain, fatigue, and care of children

Participants who are selected and return the completed questionnaire packet will receive a gift certificate for their time and effort.

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