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What You Need to Know About Traveling with Oxygen and Mobility Aids

(originally published in "Scleroderma Voice," 2004 #2)

Airlines, cruise ships, railroads and other public carriers all have different (and sometimes, nonexistent) regulations governing traveling with oxygen or mobility aids. This article will provide general information to make trip planning easier for those of you who have special needs while traveling.

Editor's note: This is a long article. You can skip directly to the subheads that interest you, by clicking on these links:

Flying with Oxygen

Traveling with Oxygen

Air

First, talk to your doctor to make sure that it is safe for you to travel. Then, begin making your travel arrangements as far in advance as possible.

If making your own travel arrangements, you will want to ask for the airline’s medical or special services department. Be prepared to provide your doctor’s name and address and a prescription that contains oxygen flow rate in liters per minute at an altitude of 8,000 feet, and duration of use.

You may be asked to complete specific forms, sign a liability release, or provide a letter from your physician that authorizes you to fly and summarizes your condition.

Most U.S. and many overseas carriers can accommodate passengers who require oxygen. The Federal Aviation Administration (FAA) requires a physician’s statement of your oxygen needs in order for you to obtain oxygen on a commercial airline.

You will not be allowed to use your own oxygen while on board; oxygen must be provided by the airline.

There are no federal oxygen policies for the airline industry, so you may find different regulations and restrictions among different carriers. For this reason, it is important that you get specific guidelines from your preferred carrier. Some airlines require 48 hours advance notice, while others may require 7 days’ notice.

All airlines will charge for oxygen, but here too, you will find differences. Generally, expect to pay between $50 and $150 for each portion of your trip.

In addition, the airline will provide oxygen only while you are in the airplane. Therefore, you will have to make other arrangements for oxygen while waiting in the airport. For this reason, non-stop or direct flights would be your best options.

Cruise Ships

The lack of standardized rules within this industry can make traveling with oxygen on cruise lines quite challenging. Each cruise line, and sometimes, even ships within a cruise line, can have slightly different requirements for passengers who need oxygen.

Here are the most prevalent guidelines involved with shipboard oxygen.

Before making a reservation, potential passengers need to get a letter from their physician describing their fitness for travel, the oxygen dosage required, and a statement attesting that they require medical oxygen.

Your next step is to contact the cruise line’s medical department before the cruise so that your medical issues can be evaluated. If approved for travel by the cruise line, you may then proceed with your reservations.

You will be required to make arrangements with both the oxygen supplier and the cruise line for the delivery and onboard storage of enough oxygen to last the entire trip. If planning shore excursions, you will have to make separate arrangements for the delivery of oxygen to your ports of call. Generally, you will not be allowed to take oxygen off the ship.

Car, Bus, and Train

When traveling by car, safety is the most important consideration. The oxygen must be kept upright, away from heat and flame.

Do not store oxygen in the trunk, because it can get very hot. Do not allow anyone to smoke in the car. Also, oxygen containers release small amounts of gas periodically, so it is important to keep a window open for venting.

Policies for travel with oxygen vary by bus line, but most will allow you to travel with your own oxygen. However, contact the company a few weeks before your departure to ensure that you have time to accommodate any restrictions.

If traveling by Greyhound, please call their Customers with Disabilities Travel Assistance Line at 800-752-4841 to obtain detailed information about their oxygen policy.

Amtrak has special restrictions regarding oxygen use during travel, which you can obtain by calling a Customer Service Agent at 800-USA-RAIL, or online at www.amtrak.com. However, here are some general guidelines.

  • Amtrak requires only 12 hours notice for those traveling with oxygen, and does not charge a fee for this accommodation.
  • Oxygen equipment cannot weigh more than 75 pounds per unit and must be UL or FM listed.
  • Two tanks can be used, if they can be separated and handled individually.
  • You may bring a concentrator aboard as long as you have a 12-hour backup supply of oxygen that does not require the use of on-board electrical power.
  • All wheeled tanks must have the wheels removed while on board the train.
  • Travelers must have enough oxygen for the estimated travel time, plus 20% extra as a safety margin.
  • For overnight trips, Amtrak will encourage you to reserve sleeping accommodations, but please note that this is not mandatory.
  • For the duration of your trip, you must travel in nonsmoking areas of the train, and avoid all areas where smoking is allowed.

Managing Oxygen at Your Destination or at Transfer Points

Often, your means of transportation requires that you make separate arrangements for oxygen once you’ve arrived at your destination, or during transfer points such as changing planes or while participating in shore excursions.

To make arrangements for oxygen in these circumstances, start with your local supplier. Many local dealers belong to a network of oxygen providers and can also help with arrangements.

Traveling with a Wheelchair or Electric Scooter

Air

Most airlines will allow you to use your own wheelchair as far as the boarding point of the aircraft, and then ask that you transfer to an aisle chair. Your wheelchair would then be stored in the aircraft so it is available when you arrive at your destination.

Wheelchairs fall into three general categories:

  • Manual
  • Electric wheelchairs and scooters with wet acid batteries
  • Electric wheelchairs and scooters with dry cell or sealed gel batteries.

Travelers with the second type of wheelchair should follow the airline’s guidelines regarding safe transit, as a leaking battery can be dangerous. It will be necessary for baggage handlers to remove the battery and place it in a special container. This may require that travelers with this type of wheelchair arrive at the airport at least three hours before departure.

Even if your wheelchair or scooter is equipped with a dry cell or sealed battery, it will be necessary for baggage handlers to disconnect the leads from the terminal and cap them to avoid a short. This can also be time-consuming, so early arrival is recommended. The airline will be responsible for ensuring that your battery is reconnected and that your chair is working upon arrival at your destination.

As a precaution against loss or damage, always remove all detachable parts before your wheelchair is stored, and label the chair with your name, address, and destination airport. Also be sure that you have insurance to cover any damage or loss to your wheelchair or scooter; the airline will not be responsible for replacing a lost chair or repairing damage.

Bus

Under the provisions of the Americans With Disabilities Act (ADA), private bus companies must provide boarding assistance to passengers with mobility problems and must transport wheelchairs. This includes Greyhound Lines, Inc., the only remaining nationwide intercity bus company in the United States.

For detailed information about traveling with mobility aids, please call their Customers with Disabilities Travel Assistance Line at 800-752-4841. Greyhound asks that all passengers requiring special assistance call them at least 48 hours in advance to make the necessary arrangements. Also notify Greyhound if you need to travel with a companion. A ticket will be provided to this companion at no cost.

Train

To get information about Amtrak’s policies regarding traveling with mobility aids, or to make a reservation, call them at 800-USA-RAIL and ask to speak to a Customer Service Agent.

You may also request a copy of Amtrak Vacations 2004, which has a section on traveling with wheelchairs, but please allow up to three weeks for receipt of this information.

They will also provide you with information regarding the accessibility of your arrival and departure stations, and let you know what kind of assistance you will need.

Cruise Ship

Most cruise ships today have a number of “handicapped accessible” cabins designed specifically to meet the needs of people who use wheelchairs or need help moving about. In many cases these cabins are identified on the deck charts you will find in the cruise line’s brochures, but don’t rely on the brochure. If you find a ship you like and aren’t sure if they have a cabin that meets your needs, ask your travel agent to check or call the cruise line directly to find out.

Another important consideration when selecting a ship is how well you will be able to get around. If you use a wheelchair, you need to know what type of obstacles you might encounter and what you can do to overcome them. For example, most cruise ships have raised sills at passenger cabin, public room, and exterior doorways. Surprisingly, even some of the more modern cruise ships with wheelchair-accessible cabins may not have accessible public restrooms.

One of the main reasons people take a cruise is to visit new destinations, but if you have selected one of the new mega-ships, you may find out that the ship is too large to dock. Therefore, many of the stops will involve tendering the passengers ashore in one of the ship’s launches. If you use a wheelchair, this will present additional challenges since there may not be a ramp available for boarding the launch.

Even with the best planning, traveling on a ship with a wheelchair or scooter can present many unforeseen challenges. You may want to work closely with a travel agent and take time to ask questions about accessing activities and services so that you can decide whether this type of travel may be appropriate for you.

Other Considerations

When traveling with special requirements, such as oxygen or mobility aids, it may be wise to make your arrangements through a travel agent. This would provide you with assistance in the event of any problems such as schedule changes.

When making your reservation, be sure to tell the agent the type of accommodation you require, and to what extent. If traveling with a wheelchair or scooter, let the agent know what type you use (manual, electric, wet cell, dry cell) and explain how much assistance you will need with boarding and disembarking.

Regardless of how you choose to travel, it is important that you take steps to ensure that your trip is a safe and enjoyable one.

Remember to:

  • Discuss the proposed trip with your doctor.
  • Get prescriptions for adequate amounts of required medications and fill them before you leave.
  • Get extra prescriptions for oxygen to make it easier to get oxygen en route.
  • Get instructions from your doctor for what to do if you develop a medical problem.
  • Get a summary of your medical history from your doctor.
  • Carry an up-to-date, detailed list of your medications.
  • Confirm all reservations 24 to 48 hours in advance.
  • Review your itinerary and confirm that any special services you may need will be available on each leg of your trip.
  • Get confirmation of all services in writing.

Know your rights

It is also helpful to know your rights as a traveler with special needs.

In 1986, Congress passed the Air Carrier Access Act, requiring the U.S. Department of Transportation (DOT) to develop new regulations, which ensure that persons with disabilities will be treated without discrimination in a way consistent with the safe carriage of all passengers.

These regulations explain the responsibilities of the traveler and all domestic carriers, airport operators, and contractors involved in the airline industry who meet certain requirements, (such as passenger capacity).

Please note that foreign airlines are not required to comply with these regulations, although U.S. carriers on international flights must.

The DOT has established a toll-free hotline to assist travelers with disabilities. The hotline will provide general information to consumers about the rights of air travelers with disabilities, respond to requests for printed consumer information, and assist air travelers with time-sensitive disability-related issues that need to be addressed in “real time.” The line is staffed from 7:00 a.m. to 11:00 p.m., Eastern time, seven days a week. If you need assistance, please call the hotline at 800-778-4838 (voice) or 800-455-9880 (TTY).

In 1990, Congress passed the Americans with Disabilities Act (ADA), which stipulates that public accommodations and ground transportation (such as bus or rail) must be made accessible to travelers with disabilities. For more information about the ADA guidelines, please contact the Federal Transit Administration (FTA) Office of Civil Rights at the toll-free ADA Assistance Line at 888-446-4511. If the FTA ADA Officer of the Day cannot address your questions or concerns, your call will be directed to the appropriate FTA program office.

Although at this time there are no federal anti-discrimination laws that the cruise industry must observe, this oversight is being rectified. In the meantime, the industry has voluntarily implemented changes to help make travel more accessible to passengers who are disabled or who require special accommodations.

Resources

If you would like to obtain a list of resources such as travel guides, oxygen suppliers, and the names of travel agents and tour operators that can assist with accessible travel, please contact the Executive Coordinator at the Society for Accessible Travel and Hospitality (SATH) at 212-447-7284. SATH can also provide you with printed materials on the ADA and Air Carrier Access Act.

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