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Newly Diagnosed

Having scleroderma didn't stop Texas Chapter President Cindi Brannum from being awarded Chapter Volunteer of the Year at the 2008 Scleroderma Foundation National Conference.A new diagnosis of scleroderma doesn't have to be overwhelming, even though the disease is complex. The symptoms of scleroderma vary greatly from individual to individual, and the effects of scleroderma can range from very mild to severe. The seriousness will depend on what parts of the body are affected and the extent to which they are affected. A mild case can become more serious if not properly treated. Prompt and proper diagnosis and treatment by qualified physicians may minimize the symptoms of scleroderma and lessen the chance for irreversible damage.

Scleroderma is not contagious; it is not infectious; it is not cancerous or malignant. There are an estimated 300,000 people in the United States who have scleroderma, and one third of whom have the systemic form of scleroderma. Since scleroderma presents with symptoms similar to other autoimmune diseases, diagnosis is difficult and there may be many misdiagnosed or undiagnosed cases as well.

About Scleroderma

There are two major classifications of scleroderma: localized scleroderma and systemic sclerosis (SSc).

Medical Information

Becoming better informed and more organized will help you be a more effective partner in your healthcare. Knowledge is power, and we certainly want you to be as empowered as possible.

Resources

Listed below are resources we have compiled in an effort to assist patients and their families, many of whom have expressed a need for these types of services.

Connect with Others

You are not alone! Others who know how you feel can offer support.

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