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Lee Shapiro, M.D., FACP, The Center for Rheumatology, LLP, Albany, New York Robert Simms, M.D., Boston University School of Medicine Carol Feghali-Bostwick, Ph.D., Assistant Professor of Medicine, University of Pittsburgh Thomas A. Medsger, M.D., Jr., Gerald P. Rodnan Professor of Medicine at the University of Pittsburgh School of Medicine

 

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PENNSYLVANIA          Philadelphia

Thomas Jefferson University Hospital, The Scleroderma Center, 833 Chestnut Street, Suite 740, Philadelphia, PA 19107

Appointments and inquiries:
215-955-6680

Physician and research inquiries:
215-503-5042

Studies Status

Statins and Systemic Sclerosis Disease Severity

Call center for status of these studies.

Mithoxantrone for Treatment of Diffuse Systemic Sclerosis

Collagen Turnover as a Biomarker for Systemic Sclerosis Disease Activity

Apopotosis in Sjögren's Syndrome in Systemic Sclerosis

PHAROS Study

Actively enrolling

Cellcept for Scleroderma

Actively Enrolling

Microchimeric (fetal or maternal) Cells in Systemic Sclerosis

Closed

Autoantibodies and Cancer in Systemic Sclerosis

Closed

Cytoxan Intravenous Pulse for Pulmonary and Skin Involvement

Closed

Physicians Affiliated with this Center:

  • Sergio Jimenez, M.D., M.A.C.R.

PENNSYLVANIA          Philadelphia

Thomas Jefferson University Hospital, Division of Rheumatology, 211 South 9th Street, Suite 600 Walnut Towers Building Philadelphia, PA 19107.
146 Montgomery Avenue, Suite 201 Bala Cynwyd, PA 19004

Clinic Information:
Pediatric and adult patients with systemic and localized scleroderma are seen as well as patients with other fibrotic and autoimmune connective tissue disorders.
Website: http://www.jeffersonhospital.org/rheumatology/index.html

Hours:
Monday-Fridays, 8 a.m.- 5 p.m. (hours may vary in each clinic)

Appointments:
Philadelphia Clinic: 215-955-8430
Bala Cynwyd Clinic: 610-664-0134

Physician Inquiries:
215-955-1410

Nora.Sandorfi@jefferson.edu

Contact: Gwendolyn Cade, Research Coordinator, 215-955-1410

Studies Status

Family history of autoimmunity in patients with Systemic Sclerosis

Active

Open label study of Leitaris in combination with an antifibrotic agent in diffuse systemic sclerosis

Active

DETECT study: early detection of pulmonary hypertension in systemic sclerosis

Active

Physicians Affiliated with this Center:

  • Nora Sandorfi, MD
  • Oscar Irigoyen, MD
  • Michelle Meltzer, MD
  • Fabian Mendoza, MD

University of Pittsburgh, Pittsburgh, Penn.PENNSYLVANIA          Pittsburgh

University of Pittsburgh, Arthritis and Autoimmunity Center, Falk Medical Building, Suite 2B, 3601 Fifth Avenue, Pittsburgh PA 15213
http://www.dept-med.pitt.edu/rheum/scleroderma.html

Clinic Information:
Adult and pediatric patients seen with localized and systemic scleroderma or raynaud's disease

Hours: Monday–Friday, 8 a.m.–5 p.m.

Appointments: 412-647-6700

Research Information: Dana Ivanco 412-648-7040 or Maureen Laffoon 1-800-603-8960

Studies Status

Banking of Biological Samples and Collection of Clinical Data for Connective Tissue Disease Research

Actively Recruiting

Systemic Sclerosis Twin Study

Actively Recruiting

PHAROS – Pulmonary Hypertension Assessment Registry of Scleroderma

Actively Recruiting

SCOT – Scleroderma: Cyclophosphamide or Transplant

Actively Recruiting

ASC01 – Scleroderma:  Rituximab vs placebo

Actively Recruiting

Vascular Changes in Early Diffuse Scleroderma Patients

Actively Recruiting

Faculty Affiliated with this Center:

  • Thomas A. Medsger, Jr. M.D.
  • Robyn T. Domsic, M.D., MPH
  • Carol Feghali-Bostwick, Ph.D.

PENNSYLVANIA          PittsburghUniveristy of Pittssburgh Children's Hospital

University of Pittsburgh, Children’s Hospital of Pittsburgh, Pediatric Rheumatology Department, 4401 Penn Avenue, Pittsburgh, PA  15224
http://www/chp/edu/CHP/rheumatology

Clinic Information:  Pediatric patients seen with localized and systemic scleroderma

Hours:  Monday–Friday 8:00 a.m.–5:00 p.m.

Appointments:  412-692-5081

Research Information:  Christina Kelsey 412-692-9893 or 412-692-5081

Studies Status

National Registry for Childhood Onset Scleroderma

Actively Recruiting

Disease Activity Assessment in Localized Scleroderma

Actively Recruiting

Disease Damage Assessment in Localized Scleroderma

Actively Recruiting

Cytokine Profiles in Localized Scleroderma

Actively Recruiting

Faculty Affiliated with this Center:

  • Kathryn S. Torok, M.D.

Office phone:  412-692-8966, fax 412-692-5054, email:  kathryn.torok@chp.edu

300 Rosewood Drive, Suite 105, Danvers, MA 01923 · Phone 978-463-5843 · 800-722-HOPE (4673)
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