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Lee Shapiro, M.D., FACP, The Center for Rheumatology, LLP, Albany, New York Robert Simms, M.D., Boston University School of Medicine Carol Feghali-Bostwick, Ph.D., Assistant Professor of Medicine, University of Pittsburgh Thomas A. Medsger, M.D., Jr., Gerald P. Rodnan Professor of Medicine at the University of Pittsburgh School of Medicine

 

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CALIFORNIA          StanfordStanford Outpatient Medical Center

Stanford University Scleroderma Center
Stanford University Medical Center
450 Broadway St.
Department of Dermatology
Pavilion B, 4th floor
Redwood City, CA 94063

Clinic information: Adult patients seen with systemic sclerosis, localized scleroderma, and other related connective tissue diseases

Hours: Monday-Friday, 8am-5pm dependent on individual doctor's office hours. Multi-disciplinary Rheumatologic Dermatology Clinic Monday afternoons.

Appointments:
Abigail Agustin--650-721-7119 (phone); 650-721-3476 (fax); aagustin@stanfordmed.org

Physician Inquiries: Contact Lorinda Chung at 650-493-5000 ext. 62042 or shauwei@stanford.edu

Research Coordinators:
Amanda Foster--650-721-7147 (phone); 650-618-1681 (fax); amfoster@stanford.edu
Val Scott and Susan Jacobs—650-725-8082 (phone); valval@stanford.edu and ssjpulm@stanford.edu

Studies Status

PHAROS: Pulmonary Hypertension Assessment and Recognition of Outcomes in Scleroderma

Active recruiting

MEDI-551: A Phase 1, Randomized, Double-blind, Placebo-controlled Study of the Safety and Tolerability of MEDI-551 in Scleroderma Active recruiting
Rituximab in SSc-APAH: A Randomized, Double-blind, Placebo-Controlled, Phase II Multicenter Trial of a Monoclonal Antibody to CD20 (Rituximab) in the Treatment of Systemic Sclerosis-Associated Pulmonary Arterial Hypertension Active recruiting
An Open-Label Clinical Trial of Ambrisentan and Tadalafil Combination Therapy in Pulmonary Arterial Hypertension Associated with the Scleroderma Spectrum of Disease Active recruiting
Revision of SSc Classification Criteria Active recruiting
Outcomes and Clinical Biomarkers for Scleroderma Active recruiting
Proteomics of Inflammation, Immunity and Pulmonary Arterial Hypertension Active recruiting

Physicians affiliated with this center:
Rheumatology:

  • Lorinda Chung, MD, MS

Dermatology:

  • David Fiorentino, MD, PhD
  • Howard Chang, MD, PhD

Pulmonary:

  • Mark Nicolls, MD
  • Glenn Rosen, MD
  • Roham Zamanian, MD

Gastroenterology:

  • Linda Nguyen, MD

Hand/Vascular:

  • James Chang, MD

Cardiology:

  • Francois Haddad, MD

CALIFORNIA          San Francisco UCSF Parnassus

University of California San Francisco
Scleroderma Program
UCSF Arthritis Center
400 Parnassus Avenue Plaza Level
San Francisco, CA 94143-0326

Clinic Information:
Adult patients with systemic and localized scleroderma

Hours: Mon-Fri 8:30 am – 5 pm, dependent on individual doctor’s hours.  Interdisciplinary clinic Friday AM

Appointments:

Phone: (415) 353-2497
Fax: (415) 353-2530
Online appointment requests: https://www.ucsfhealth.org/appointments/rheumatology/index.html

Contact: tamiko.katsumoto@ucsfmedctr.org

Research Coordinators: Archer Eller & Darren Leong (415) 353-2060, fax (415) 353-2674, email: archer.eller@ucsf.edu

UCSF Websites:

Scleroderma Clinic:
http://www.ucsfhealth.org/clinics/scleroderma/
Interstitial Lung Disease Clinic: www.ucsfhealth.org/ild
Pulmonary Hypertension Clinic: http://www.ucsfhealth.org/clinics/pulmonary_hypertension_clinic/

Studies Status

Scleroderma Lung Study 2
http://sls.med.ucla.edu/nav6.html

Active recruiting

Physicians affiliated with this center:

Rheumatologists:

  • Tamiko Katsumoto, M.D.
  • Andrew Gross, M.D.

Dermatologist:

  • M. Kari Connolly, M.D.

Pulmonologists:

  • Jeffrey Golden, M.D.
  • Paul Wolters, M.D.
  • Hubert Chen, M.D.

Cardiologists:

  • Teresa DeMarco, M.D.
  • Dana McGlothlin, M.D.

University of CaliforniaCALIFORNIA          Los Angeles

University of California
Division of Rheumatology
1000 Veteran Avenue
Rehab Center Room 32-59
Box 951670
Los Angeles, CA 90095-1670
Telephone: 310-825-8414 and 310-825-4744
Fax:310-206-8606

Contacts:

Sarah Delgado at sedelgado@mednet.ucla.edu

Studies Status

Scleroderma Lung Study 2

http://sls.med.ucla.edu/nav6.html

Open
Ambrisentan in Patients with Scleroderma Open

CRISS: Provisional Combined Response Index For Patients With Diffuse Systemic Sclerosis

Open

DETECT: A Study to Determine The Best Methods to Determine if Patients Have Pulmonary Arterial Hypertension in Patients With Scleroderma

Open

DISTOL: a study using Treprostinil Diethanolamine (UT-15C) or Placebo Subjects With Scleroderma

Open

Imatinib (Gleevac) in Subjects with Systemic Sclerosis

Closed

Quality of Life

Open

SCOT study (Scleroderma Cyclophosphamide Or Transplantation)

www.clinicaltrials.gov/ct/gui/show/NCT00114530

Open

The Natural History and Outcome of Patients with Scleroderma at High Risk for or with Early Pulmonary Hypertension (PHAROS)

Open

Trials that will be opening soon at UCLA are:

  • Dasatinib for Subjects With Scleroderma
  • MEDI-546 in Subjects With Scleroderma

Physician Affiliated with this Center:

Philip Clements, M.D., M.P.H.
Daniel Furst, M.D.

300 Rosewood Drive, Suite 105, Danvers, MA 01923 · Phone 978-463-5843 · 800-722-HOPE (4673)
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