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Lee Shapiro, M.D., FACP, The Center for Rheumatology, LLP, Albany, New York Robert Simms, M.D., Boston University School of Medicine Carol Feghali-Bostwick, Ph.D., Assistant Professor of Medicine, University of Pittsburgh Thomas A. Medsger, M.D., Jr., Gerald P. Rodnan Professor of Medicine at the University of Pittsburgh School of Medicine

 

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Heidi Jacobe, M.D.

Heidi Jacobe, M.D.

Morphea Registry and DNA Repository

The purpose of this study is to create a national registry of people with morphea in order to answer questions associated with the disease: its association to other diseases, and the genetics behind the disease. In order to answer such questions, a large database of patients is being assembled by UT Southwestern researchers under the direction of Dr. Heidi Jacobe. Blood samples, digital photography of affected areas, data regarding associated autoimmune disease in patients and their relatives, and other clinical data are being collected from study participants.

Dr. Jacobe and her staff will be on hand at the annual Scleroderma Foundation National Conference enrolling patients. We welcome any patient with morphea 3 years old or older to enroll in this study and will answer any questions about participation via e-mail (christina.carrigan@utsouthwestern.edu).

The UT Southwestern Morphea Registry Web site is
http://www.utsouthwestern.edu/utsw/cda/dept25717/files/384413.html.

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