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Janet Poole, PhD, OTR/L |
Children with Juvenile Systemic Sclerosis or Linear Scleroderma (Morphea) and Their Parents Needed for Research Study
Researchers from the University of New Mexico are seeking participants for a study to learn about what information is needed by children with juvenile systemic sclerosis or linear scleroderma (morphea) and their parents that should be included in an education program. To be eligible you should be a child, 8–20 years old, with juvenile systemic sclerosis or linear scleroderma (morphea) or a parent of a child of any age with either disease and read, speak and understand English. If you and/or child are attending the Scleroderma Foundation conference in July in St. Louis, we will be conducting in person focus groups (one for children and a separate group for parents). If you and/or your child are not attending the conference, we will also be conducting focus groups online (one for children and one for parents).
To be eligible for the online focus group, you and/or child should also have access to a computer and the Internet and be comfortable using electronic communication such as e-mail.
This study was approved by the UNM Human Research Review Committee (HRRC#09-278). For more information about the study and the eligibility requirements, please contact Janet Poole, PhD, OTR/L, at jpoole@salud.unm.edu, 505-272-8276, or 800-922-5015.
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