This area features articles that appear in "The Voice" written by real kids living with scleroderma. It's a place to care and share, and know that you're not alone.
We want to hear from YOU! If you are between the ages of 8 and 18 would like to share your "My Space" story, please contact Sondria Hall at 978-624-1247, or shall@scleroderma.org.
| Date |
My Article |
| June 2009 |
 Antonella Ferriera
"One of my favorite things to do is write. I’m proud to say I’ve kept a journal since the 5th grade. Writing helps me a lot because I have scleroderma, and writing about how I feel makes me feel better." |
| March 2009 |
 Brenda Hearn
"I began my athletic career by signing up to be a cheerleader for my brother’s youth football team. Soon after that, I joined
basketball, volleyball, and t-ball teams. By the sixth grade, I had developed a true
passion for a fourth game: softball. Throughout my high school years I continued to play softball, as well as volleyball and basketball, and attended various state
championships for each. It seemed as though nothing could or ever would keep me from my place on the field and court." |
| December 2008 |
 Tiffany Garner
"One morning I realized I could not straighten my middle finger. I tried but nothing made it better. My mom made me an appointment with an orthopedic doctor after two weeks. The day I was supposed to go, I woke up and was able to straighten
my finger, but not my elbow, which hurt really badly. Later that day, the doctor did X-rays but couldn’t give me an explanation for my pains. They told me to go to my pediatrician. My pediatrician did blood work and said that my immune system (which keeps you healthy) wasn’t normal." |
| September 2008 |
 Brittney Price
"I was a little scared when they first told me that I had
systemic sclerosis and then Sjögren’s syndrome because I
didn’t know what would happen to me. Having experienced
both diseases for a year now, I can see how some things in
my life have changed, and others have stayed the same." |
| June, 2008 |
 Khloe Lewis
"Having scleroderma is a challenge, but I don’t let it
change my life. My mom says I deal with it 'Like water
off a duck’s back.' I’m really open with my friends and
family about it. I do get sad sometimes, but I try not to." |
| March, 2008 |
 Alivia Watson
"I was diagnosed with Raynaud’s when I was 4.
My doctor told my mom and dad that I may have
scleroderma. He kept a good watch on me for three
years, and when I was 7 he told my mom and dad that
I had systemic sclerosis." |
| September, 2007 |
 Cynthia Cervantes
"My experience with scleroderma began more than a year ago when I suddenly would get weak, my body ached, and my vision was getting worse." |
| March, 2007 |
 Samantha Murray, National Youth Ambassador for the Scleroderma Foundation
"Kids aren’t supposed to get this disease—it’s for grownups, mostly women like my mom’s age." |
|
