| Support
To support people with scleroderma and their families, we
have a nationwide network of
Chapters and Support
Groups; staff a toll-free 800 line providing information
and referrals to callers; publish a quarterly magazine and
a variety of brochures, booklets, and newsletters; and maintain
a growing website.
If you are newly diagnosed, you may want to request
a free information packet.
Education
As part of our education mission, we not only perform all
the functions mentioned above, we also work with our
Medical Advisory Board of internationally known scleroderma
experts.
Our National Celebrity Spokesman is Jason Alexander, the
comedian/actor/ director best known for his role as "George
Costanza" on the Seinfeld TV show. In the past we have also
worked with Lenny Moore, former Baltimore Colt now in the
NFL Hall of Fame; Lenny lost his son to scleroderma. We've
also worked with Barry
Sanders, legendary football running back who retired from
the Detroit Lions in 1999; and Rita
Rudner, comedienne.
The Scleroderma Foundation and its spokespersons have been
prominently featured in the following national magazines,
major TV broadcasts, leading newspapers, and also on local
TV in New York, Los Vegas, and Los Angeles:
- Healthology - website
- Health Day - website
- "Family Doctor" magazine
- "Reader's Digest"
- "Los Angeles Times"
- "New York Times"
- "Portland Oregonian"
- "Las Vegas Review-Journal"
- NBC Today Show
- CBS Early Show
- CNN
- "Chicago Tribune"
- "Las Vegas Sun"
- "Vitality"
- "Remedy"
- "Wall Street Journal"
We also offer books and other literature on a wide variety
of topics related to scleroderma. Please visit
our store.
Research
 Currently
we budget over $1 million per year for research funding—our
single largest expense.
The Scleroderma Foundation takes its fiduciary responsibility
to donors very seriously, especially with regard to our research
grant program.
In the case of research funds, the Foundation's Peer Research
Review Committee, composed of medical experts on scleroderma
from around the world, helps determine which proposals will
be funded by reading, analyzing, and ranking all proposals
received.
The research proposals themselves are the end product of
a process that features international publicity through the
proper channels for the availability of research funding from
the Scleroderma Foundation, including detailed information
on how to submit formal research funding requests.
Up-to-date information about our research guidelines is available
on our research
page.
Additional Information
In addition to the basic information about the Scleroderma
Foundation on this page, you can find out much more about
our programs and services by browsing this website, which
continues to grow, and by reading our publications.
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