Scleroderma Foundation

In This Issue

"Gateway to Hope" Conference Inspires!

Information for Those Living with Pulmonary Arterial Hypertension

All Natural. Not All Safe.

Women's Health Binder

Take PHA Survey!

Sjögren's Syndrome

Poets Needed for SF Grant Contest

Upcoming Events

Photo of the Week

Stepping Out Walks

H.R. 2408 – 29 Cosponsors

Photo of the Week

Sofia Murdolo snoozing at the Nat'l Conference!
Sofia Murdolo snoozing at the Nat'l Conference!

Stepping Out to Cure Scleroderma Walks – There Are More Left!

Find a walk near you!

US Capitol Building
Scleroderma Bill H.R. 2408

We now have 29 representatives who have signed on!

Pfizer, Inc. Logo

2009 Communications Sponsor

Scleroderma Foundation eLetter

Friday, July 24, 2009– Issue #306

eLetter Archive

Natalie Murdolo, a member of the Tri-State Chapter and Mackenzie Heller of Broken Arrow, Okla., enjoyed this year's Conference!

Natalie Murdolo, a member of the Tri-State Chapter and Mackenzie Heller of Broken Arrow, Okla., enjoyed this year's Conference!

"Gateway to Hope" National Conference Educates, Inspires, and Empowers Attendees

Hundreds found their way to the Scleroderma Foundation’s 2009 “Gateway to Hope” National Patient Education Conference held this past July 17–19th in St. Louis, Missouri. Hosted by the Foundation’s Missouri Chapter, the Conference was yet another successful event, drawing the scleroderma community together once again to socialize with one another and share valuable information and experiences.

Web-teleconference for Those Living with Pulmonary Arterial Hypertension (July 28; Aug. 6 & 13)

PAH Pathways/Sure Steps Connect

Are you one of the many people who are living with systemic sclerosis and also with pulmonary arterial hypertension? If so, and if you are taking an Actelion Pharmaceuticals PAH therapy, a new interactive Web-teleconference series offered by Actelion may be of help.

PlantAll Natural. Not All Safe.

Just because a supplement is derived from a natural plant, like echinacea, does not always mean it’s good for you.

The allure is undeniable. Stroll into a store, pluck a remedy branded “all-natural’’ from the shelf, and pay the price tattooed on the bottle. No insurance card, no prescription, no doctor appointment required.

BinderWomen's Health Binder

The Society for Women’s Health Research (SWHR) is pleased to offer you the new WOMEN’S HEALTH BINDER to store and organize your medical records for efficient/effective appointments. This binder is “powered by” Delphi Vital Information Manager (VIM.)

PHA LogoPatient and Family Member Focus Groups

TAKE THE SURVEY!
Closing date: July 31

Thank you for your interest in helping PHA identify new programs for specific groups of PH patients and caregivers. The survey should take you less than five minutes to complete.

Immune System, courtesy of ADAMSjögren's Syndrome

Sjogren's syndrome is a disease that causes dryness in your mouth and eyes. It can also lead to dryness in other places that need moisture, such as your nose, throat and skin. Most people who get Sjogren's syndrome are older than 40. Nine of 10 are women. Sjogren's syndrome is sometimes linked to rheumatic problems such as rheumatoid arthritis.

Poets needed!Poets Needed for SF Grant Contest
July 30 Deadline!

Do you have a special talent for writing poetry?  Do you champion the Scleroderma Foundation's mission and raise funds for the organization?

Upcoming Events

July 27 (Mon.) Seventh Annual Golf Classic To Cure Scleroderma (Peabody, Mass.)
July 31 (Fri.) The Kathleen Basile Memorial Golf Tournament (Lilburn, Ga.)
July 31 (Fri.) "Broadway's After The Show" (Lilburn, Ga.)
Aug 1 (Sat.) WNBA Chicago Sky Benefit Game Chicago, Ill.)
Complete SF Calendar

Scleroderma Foundation, 300 Rosewood Drive, Suite 105, Danvers, MA 01923
Phone 978-463-5843 · 800-722-HOPE (4673)

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