Scleroderma Foundation

In This Issue

REGISTER FOR THE NATIONAL CONFERENCE NOW!

Linda Lee Wells Memorial Education Workshops – Speaker Update

Children with Juvenile Systemic Sclerosis or Linear Scleroderma (Morphea) and Their Parents Needed for Research Study

Upcoming Live Chats

Stop — Learn — Go — Tips for Talking with Your Pharmacist to Learn How to Use Medicines Safely

The Possible Dangers of Buying Medicines Over the Internet

Exercise Improves Functional and Psychological Ability and Reduces Steroid Need in Rheumatoid Arthritis

H.R. 2408 – 24 Cosponsors Now Signed on!

Upcoming Events

Photo of the Week

Stepping Out Walks

Photo of the Week

Members from the Northern California Chapter visited the office of Rep. Lynn Woolsey (D-CA). They are, from left: Cathy Eddy, Chapter President, Roz Sandler, Savannah Drew, Emmie Morgan (Field Rep.), and Tillie Lorenzo.
Members from the Northern California Chapter visited the office of Rep. Lynn Woolsey (D-CA). They are, from left: Cathy Eddy, Chapter President, Roz Sandler, Savannah Drew, Emmie Morgan (Field Rep.), and Tillie Lorenzo.

Stepping Out to Cure Scleroderma Walks – There Are More Left!

Find a walk near you!

Scleroderma Bill H.R. 2408Update!

We now have 24 representatives who have signed on!

Pfizer, Inc. Logo

2009 Communications Sponsor

Scleroderma Foundation eLetter

Thursday, July 2, 2009– Issue #303

eLetter Archive

Welcome to St. Louis

THERE IS STILL TIME TO REGISTER FOR THE NATIONAL PATIENT EDUCATION CONFERENCE

If you want to attend the National Patient Education Conference, register here.

AIRFARES ON MOST ROUTES ARE LOWER THIS SUMMER!

Fares for travel in July are as much as 63% lower than last summer, according to an analysis by FareCompare.com.

Janet Poole, PhD, OTR/L

Janet Poole, PhD, OTR/L

Children with Juvenile Systemic Sclerosis or Linear Scleroderma (Morphea) and Their Parents Needed for Research Study

Researchers from the University of New Mexico are seeking participants for a study to learn about what information is needed by children with juvenile systemic sclerosis or linear scleroderma (morphea) and their parents that should be included in an education program. To be eligible you should be a child, 8–20 years old, with juvenile systemic sclerosis or linear scleroderma (morphea), or a parent of a child of any age with either disease, and read and speak and understand English.

Simon Mittal, M.D.

Linda Lee Wells Memorial Education Workshops – Speaker Update

"Talk to who? About what?!? Discussing your traditional and complementary care with your primary care provider," by Dr. Simon Mittal, M.D.

Dr. Andrew Franks

Dr. Andrew Franks

Upcoming Live Chats

Lupus and Your Skin
Guest Speaker: Andrew Franks, M.D.
July 15, 2009 – 3:00 p.m. Eastern Time

The Lupus Foundation of America is proud to present live moderated chats, featuring the nation's leading experts in lupus. This is your opportunity to ask a question and learn more about lupus from thought leaders in a number of medical disciplines associated with lupus.

FDA LogoStop — Learn — Go — Tips for Talking with Your Pharmacist to Learn How to Use Medicines Safely

Use these tips for talking with your pharmacist.

Your pharmacist can help you learn how to use your prescription and nonprescription (over-the-counter) medicines safely and to increase the benefits and decrease the risks. You can also use these tips when talking with your other healthcare professionals.

he Possible Dangers of Buying Medicines Over the Internet

The Possible Dangers of Buying Medicines Over the Internet

The Food and Drug Administration (FDA) wants to warn consumers about the possible dangers of buying medicines over the Internet. Some Web sites sell prescription and over-the-counter drugs that may not be safe to use and could put people's health at risk.

ExerciseExercise Improves Functional and Psychological Ability and Reduces Steroid Need in Rheumatoid Arthritis

Copenhagen, Denmark: Undertaking a supervised exercise programme can have beneficial effects on functional status and physical function, reduce the need for daily corticosteroid and anti-inflammatory intake and improve levels of depression and anxiety in people with rheumatoid arthritis (RA), according to a new study presented today at EULAR 2009, the Annual Congress of the European League Against Rheumatism in Copenhagen, Denmark.

Upcoming Events

July 11 (Sat.) "Hugs for Hope" Fundraiser (Cranbrook, B.C. CANADA)
July 11 (Sat.) "Stepping Out to Cure Scleroderma" Walk (Portland, Ore.)
July 12 (Sun.) "Stepping Out to Cure Scleroderma" Walk (San Diego, Calif.)
July 12 (Sun.) Car Wash Fundraiser (North Bergen, N.J.)
July 17–19 (Fri.–Sun.) Scleroderma Foundation National Patient Education Conference (St. Louis, Mo.)
Complete SF Calendar

Scleroderma Foundation, 300 Rosewood Drive, Suite 105, Danvers, MA 01923
Phone 978-463-5843 · 800-722-HOPE (4673)

Holiday Schedule for National Office

In observance of the 4th of July, the National Office will be closed Friday, July 3. We will re-open on Monday, July 6. Have a safe and happy 4th of July!

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