National Conference Workshops Named for Linda Lee Wells
My Family Health Portrait
Long Distance Caregiver - Coping With Emotions
Health Tip: Foods To Avoid if You Have IBS
NIH Announces New Program
Upcoming Events
National Conference Hotel Update
Photo of the Week
Stepping Out Walks
H.R. 2408 – Scleroderma Research & Awareness Act
Photo of the Week
This young lady really loved the balloons at the Houston, Texas walk on April 26, 2009!
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National Conference Hotel Rate Extended to June 22!
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Stepping Out to Cure Scleroderma Walks Gearing Up
Find a walk near you! |
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Please help us promote the first bill in Congress promoting research and awareness of scleroderma. |
2009 Communications Sponsor |
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The Scleroderma Foundation is honored to announce that the educational workshop series offered at the National Patient Education Conference is being named in memory of Ms. Linda Lee Wells.
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 The National Institutes of Health is launching the first integrated, drug development pipeline to produce new treatments for rare and neglected diseases. The $24 million program jumpstarts a trans-NIH initiative called the Therapeutics for Rare and Neglected Diseases program, or TRND.
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 By Catherine Murphy, R.N.
Being a long distance caregiver has a unique set of problems. I have been on both sides of the coin, and know that the emotional drain of being too far from our loved one to be of direct help, can be devastating. How can one describe the fear that envelops you when the phone rings? Or the shrill of the bell, that you know and wait to come, which tells of yet another crisis with your loved one? It is something you learn to live with every day. However, you never are ready for that call. |
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(HealthDay News) – People with irritable bowel syndrome (IBS) may have symptoms including abdominal bloating and cramping, constipation or frequent diarrhea. While the cause of IBS often is unknown, some people seem to have a sensitivity to certain foods. |
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Using My Family Health Portrait you can:
- Enter your family health history.
- Create drawings of your family health history to share with family or health care worker.
- Use the health history of your family to create your own.
Talking with your health care worker about your family health history can help you stay healthy!
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Upcoming
Events |
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May 31 (Sun.) "Stepping Out to Cure Scleroderma" Walk (Leonia, N.J.) |
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June 6 (Sat.) "Stepping Out to Cure Scleroderma" Walk (Aurora, Colo.) |
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June 6 (Sat.) "Stepping Out to Cure Scleroderma" Walk (Boardman, Ohio) |
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June 6 (Sat.) "Stepping Out to Cure Scleroderma" Walk (Duluth, Minn.) |
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June 6 (Sat.) PHA on the Road: PH Patients and Families Education Forum (Lake Buena Vista, Fla.) |
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June 6 (Sat.) "Stepping Out to Cure Scleroderma" Walk (Austin, Texas) |
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June 6 (Sat.) "Stepping Out to Cure Scleroderma" Walk (Binghamton, N.Y.) |
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June 6 (Sat.) "Stepping Out to Cure Scleroderma" Walk (Rochester, N.Y.) |
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June 7 (Sun.) "Stepping Out to Cure Scleroderma" Walk (Detroit, Mich.) |
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June 7 (Sun.) "Stepping Out to Cure Scleroderma" Walk (Manasquan, N.J.) |
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June 7 (Sun.) "Stepping Out to Cure Scleroderma" Walk (La Mirada, Calif.) |
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June 7 (Sun.) "Stepping Out to Cure Scleroderma" Walk (Long Island, N.Y.) |
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June 7 (Sun.) "Stepping Out to Cure Scleroderma" Walk (Omaha, Neb.) |
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June 7 (Sun.) "Stepping Out to Cure Scleroderma" Walk (Albany, N.Y.) |
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June 9 (Tues.) Health Fair/Conference with Lupus Foundation (Philadelphia, Pa.) |
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SF Calendar |
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Scleroderma
Foundation, 300 Rosewood Drive, Suite 105, Danvers, MA 01923
Phone 978-463-5843 · 800-722-HOPE (4673) |
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