Scleroderma Foundation

In This Issue

Scleroderma Foundation National Conference Speaker Update

General Sjögren's Survival Tips

Chronic Pain and Depression: Managing Pain When You're Depressed

When the Body Is at War with Itself – Autoimmune Diseases

Sick and Succeeding

Are you a Woman of Worth?

The Caregivers Role in Rehabilitation

Upcoming Events

2009 National Patient Education Conference Scholarships
Are Available

Photo of the Week

Stepping Out Walks

Commemorative Stamp for Scleroderma

2009 National Patient Education Conference Scholarships Are Available.more...

Photo of the Week

Dave and Eileene Ault met with Sen. Roger Wicker and his wife Gayle at Curtis Grocery during the Senator's "Back Roads Tour."
Dave and Eileene Ault met with Sen. Roger Wicker and his wife Gayle at Curtis Grocery during the Senator's "Back Roads Tour." The Aults, along with their daughter Darleene Nabors, facilitate DeSoto County's only Scleroderma Support Group. The senator was very interested in learning more about scleroderma. Historically Sen. Wicker has voted to support bills for research dollars for orphan diseases, such as scleroderma. The Aults gave the senator an information packet and thanked him for his support. They discussed the work of the National Scleroderma Foundation and the need for more research dollars to find a cure for this devastating disease.

Stepping Out to Cure Scleroderma Walks Gearing Up

Find a walk near you!

Commemorative Stamp for Scleroderma

The Scleroderma Foundation is pursuing a commemorative stamp for scleroderma.
We need your help!

Pfizer, Inc. Logo

2009 Communications Sponsor

Scleroderma Foundation eLetter

Friday, April 24, 2009– Issue #293

eLetter Archive

Janet Poole, Ph.D.

Janet Poole, Ph.D.

Jane Brandenstein, P.T.

Jane Brandenstein, P.T.

Scleroderma Foundation National Conference Speaker Update

"Occupational Therapy/Physical Therapy"– Janet Poole, Ph.D. and Jane Brandenstein, P.T.

Sjogren's Syndrome Foundation LogoGeneral Sjögren’s Survival Tips (over 100!)

  • It is important to find a doctor who is both a good partner in treating your disease, as well as a good listener!
  • When seeking information on Sjögren’s, consider the source. Make sure the source is authoritative, knowledgeable and up-to-date.

Chronic Pain and Depression: Managing Pain When You’re Depressed

WebMD LogoLiving with chronic pain should be enough of a burden for anybody. But pile on depression -- one of the most common problems faced by people with chronic pain -- and that burden gets even heavier.

Depression can magnify pain, and make it harder to cope. The good news is that chronic pain and depression aren't inseparable. Effective treatments can relieve depression and make chronic pain more tolerable.

When the Body Is at War with Itself – Autoimmune Diseases

When the Body Is at War with Itself – Autoimmune Diseases

The number of persons who have autoimmune diseases has been steadily increasing. Autoimmune diseases are the third most common category of disease in the United States after cancer and heart disease, affecting mainly women.

SICK AND SUCCEEDING
5 Steps to Keeping Your Career When Illness Strikes

SICK AND SUCCEEDING: 5 Steps to Keeping Your Career When Illness StrikeMost of us think of health in black-and-white terms: we're either healthy, give or take a few bouts with a cold, or too disabled to work.

Document is a PDF. You need Adobe Acrobat Reader to open this file. If you don't have Acrobat Reader, download it FREE.

WomenAre You a Woman of Worth?

Nominate a Woman Of Worth and L'Oréal Paris will make a $5,000 donation to her most cherished charitable cause. LOreal will make an additional $5,000 donation in the name of each winner to support The Ovarian Cancer Research Fund (OCRF), L'Oréal Paris primary philanthropy. To date, L'Oréal has raised over $18 million on behalf of OCRF to honor their commitment to women.

Additionally, one Woman Of Worth honoree and her cause will be selected by the public at large via online voting and will be recognized as the National Woman Of Worth Honoree. Her charity will receive a donation of $25,000 from L'Oréal Paris in her name. All honorees will receive national recognition for both her cause and her efforts.

The Caregivers' Role in Rehabilitation

Today's Caregiver LogoThe ever expanding role of caregivers has grown by leaps and bounds in the last few years. Primary caregivers have always been extensions of their medical facility based counterparts, whether they are doctors, physiologists, nutritionists, or psychologists. The field of rehabilitative medicine is no different.

Upcoming Events

April 26 (Sun.) "Stepping Out to Cure Scleroderma" Walk (Houston/Conroe, Texas)
April 26 (Sun.) Scleroderma Educational Forum (New York, N.Y.)
April 26 (Sun.) Chicago Food Fight for Scleroderma (Chicago, Ill.)
May 2 (Sat.) Patient Education Seminar, University of Chicago (Chicago, Ill.)
May 2 (Sat.) Scleroderma Educational Forum (Farmington, Conn.)
May 2 (Sat.) La Habra Host Lions Club Dinner Fundraiser (Yorba Linda, Calif.)
May 2 and 3 (Sat. and Sun.) Oregon Chapter Plant Sale (Portland, Ore.)
May 3 (Sun.) "Stepping Out to Cure Scleroderma" Walk (Worcester, Mass.)
Complete SF Calendar

Scleroderma Foundation, 300 Rosewood Drive, Suite 105, Danvers, MA 01923
Phone 978-463-5843 · 800-722-HOPE (4673)

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