2009 Communications Sponsor |
Scleroderma Foundation Announce Keynote Speakers for Conference
The Home Caregiver's Guide to Coping
With the Hospitalization of Your Loved One
10 Ways You Can Protect Your Joints
Systemic Scleroderma: The Truth Beneath a "Skin Disease"
How to Talk to Your Healthcare Professional
Scleroderma Prevalence: Demographic Variations in a Population-Based Sample
Photo of the Week
Stepping Out Walks
Commemorative Stamp for Scleroderma
 |
Photo of the Week
This past February, Missouri Chapter President Mary Blades, testified before the NIH Office of Research on Women's Health Symposium at Washington University in St. Louis, Missouri, regarding research funding and scleroderma.
|
Stepping Out to Cure Scleroderma Walks Gearing Up
Find a walk near you! |
Commemorative Stamp for Scleroderma
The Scleroderma Foundation
is pursuing a commemorative stamp for scleroderma.
We
need your help! |
|
|
 |
|
 |
Mary Ann O'Neil, M.Ed. |
 |
Cindy Coney, M.Ed. |
Opening Speaker: Cindy Coney, M.Ed.
Closing Speaker: Mary Ann O'Neil, M.Ed.
Cindy Coney, M.Ed., returns as our opening Keynote Speaker. At our 2008 National Conference, she opened with a message that "Things Will Be Okay."
Mary Ann O’Neil, M.Ed., is a person living with scleroderma and a member of the Scleroderma Foundation Board of Directors. A former early education teacher, O’Neil subsequently owned and operated a school for children through Grade 3. |
|
|
 By Deidre A. Grab
As a caregiver, one of the most stressful things you may experience is the hospitalization of your loved one, especially if the hospitalization is in an intensive care unit. As an intensive care unit nurse for many years, I have had the opportunity to work with many families in this situation. |
|
|
 Osteoarthritis (OA) is the most common form of arthritis, with nearly 27 million Americans living with it today. No longer considered just a consequence of aging, researchers now have several candidates when looking for a cause: musculoskeletal defects, genetic defects, obesity, or injury and overuse. Find more resources for managing OA at the end of this article.
|
|
|
 By Tiffany Washkewicz, MPAS, PA-C
Clinicians often fail to recognize the systemic manifestations of scleroderma—a potentially costly mistake. The effects of systemic scleroderma far transcend the skin, involving multiple organ systems and causing progressive, widespread fibrosis. How can this deadly disease be recognized and treated early? |
|
|
Talking to your healthcare professional about pain can be confusing and sometimes hard to do. View our featured videos to hear tips from patients who have been successful in getting their doctors or healthcare professionals to listen and talk to them about their pain.
|
|
|
OBJECTIVE: To estimate the prevalence of systemic sclerosis (SSc) using population-based administrative data, and to assess the sensitivity of case ascertainment approaches. |
|
Did You Know You Can Search Our Site Using Pico Search?
 The Pico search engine is a great way to find exactly what you need when visiting the Scleroderma Foundation's Web site. Simply enter into the Pico text box a specific word or phrase, (for example, "Raynaud's" or "National Conference") and click "search." Your results will appear instantly and in list form, making it easy to select and view relevant pages. The Pico search option can be found on our home page or at the bottom of any Web page for easy access.
Go ahead and start searching now! |
|
