Scleroderma Foundation

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In This Issue

Register Online for 2009 Patient Conference

Winning the Medicine Game

Tips for Dining Out on the Gluten-Free Diet

Don't Let Depression Get You Down

Urge NIH to Make Autoimmune Diseases Top Priority for the Next Decade

Photo of the Week

Stepping Out Walks

Commemorative Stamp for Scleroderma

Photo of the Week
Alice Anson taking in the latest information at the 8th Annual Cheri Woo Spring Education Seminar in Portland, Ore., held on March 14, and hosted by the Oregon Chapter at Linfield College. Speaking at the podium is keynote speaker Karen Gottesman, noted scleroderma author and patient advocate.
Alice Anson taking in the latest information at the 8th Annual Cheri Woo Spring Education Seminar in Portland, Ore., held on March 14, and hosted by the Oregon Chapter at Linfield College. Speaking at the podium is keynote speaker Karen Gottesman, noted scleroderma author and patient advocate.

Stepping Out to Cure Scleroderma Walks Gearing Up

Find a walk near you!

Commemorative Stamp for Scleroderma

The Scleroderma Foundation is pursuing a commemorative stamp for scleroderma.
We need your help!

Scleroderma Foundation eLetter

Friday, March 27, 2009– Issue #289

eLetter Archive

2009 NATIONAL CONFERENCE NEWS!

Online Conference Registration Is Now Open!

Archway in St. Louis, Mo.We are pleased to announce that the 2009 National Conference registration is now fully open. There are three ways to register:

  1. Register online using your credit card;
  2. Download the registration form, fill it out, and mail it in with your check, money order, or credit card information; or
  3. Call us at 800-722-HOPE (4673) and we will take your registration over the telephone.

Don't miss next week's eLetter where we will announce our first two speakers and workshops. We look forward to seeing you in St. Louis!

Winning the Medicine GameWinning the Medicine Game

Prescription prices are putting the bite on household budgets. The recession is amplifying the pain as workers lose health coverage and employers cut back on drug benefits. More Americans are being forced to choose between buying food and buying medicine.

Tips For Dining Out On The Gluten-Free DietTips for Dining Out on the Gluten-Free Diet

By Melinda Dennis, MS, RD, LDN
Nutrition Coordinator, Celiac Center, Beth Israel Deaconess Medical Center

  • Avoid ordering fried foods, such as French fries or taco “basket” shells at a Mexican restaurant, which are fried in the same oil as battered foods or coated fries.

Don’t Let Depression Get You Down

Today's Caregiver - LogoBy Michael Plontz

Caregiving can sometimes be a depressing venture. Not only does it usually involve someone we love deteriorating before our eyes, our own lives become completely rearranged.

AARDA Implores Office of Research on Women’s Health/NIH to Make Autoimmune Diseases Top Priority for the Next Decade

Newswise LogoNewswise — The American Autoimmune Related Diseases Association (AARDA) provided spoken testimony in support of autoimmune diseases being designated as a research priority for the Office of Research on Women’s Health (ORWH)/National Institutes of Health (NIH). Written and spoken testimonies were accepted during the “Moving into the Future – New Dimensions and Strategies for Women’s Health Research for the National Institutes of Health,” which took place March 4–6, 2009 in St. Louis, Missouri.

Upcoming Events

March 28 (Sat.) Spring Education Day (Whittier, Cal.)
March 28 (Sat.) 2nd Annual Crop for Scleroderma (Allentown, NJ)
April 4 (Sat.) Scleroderma Educational Forum (Liverpool, N.Y.)
April 4 (Sat.) Vertical Cure Ski Event (Mammoth Lakes, Cal.)
April 4 (Sat.) Quest for CREST 5K Walk/run (Hattiesburg, Miss.)
April 18 (Sat.) Patient Education Forum (Long Island, N.Y.)
Complete SF Calendar

Scleroderma Foundation, 300 Rosewood Drive, Suite 105, Danvers, MA 01923
Phone 978-463-5843 · 800-722-HOPE (4673)

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