People with Scleroderma Needed for Research Study on Leisure
Spring Swing Deadline to Enter: March 15
Rules Target Genetic Bias
EULAR Recommendations for the Treatment of SSc
Autoimmunity Public Service Campaign: Men at Risk Too
Setting Limits Is The Key
Hypertension: Questions to Ask Your Doctor
We Need Your Help
March 8 Is International Women's Day
Photo of the Week
Stepping Out Walks
Commemorative Stamp for Scleroderma
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March 8 Is International Women's Day
IWD is a global day celebrating the economic, political and social achievements of women past, present and future. In some countries like China, Russia, Vietnam and Bulgaria, IWD is a national holiday. The first IWD was run in 1911. The IWD Global Centenary is in 2011. |
Photo of the Week
Scleroderma Foundation Office Assistant, Mary Ann Berman (holding the SF flag), created her own form of awareness today, while she enjoyed the warm weather in Aruba. Thank you, Mary Ann and hurry back! |
Stepping Out to Cure Scleroderma Walks Gearing Up
Find a walk near you! |
Commemorative Stamp for Scleroderma
The Scleroderma Foundation
is pursuing a commemorative stamp for scleroderma.
We
need your help! |
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People with Scleroderma Needed for Research Study on Leisure
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Janet Poole, Ph,D, OTR/L |
Researchers from the University of New Mexico are seeking participants for a study exploring how scleroderma affects doing leisure activities. To be included, participants must communicate in English, have a telephone, and have difficulty doing their leisure activities because of scleroderma. The study involves completing a questionnaire and being interviewed about leisure and the effect of scleroderma on leisure. This study was approved by the UNM Human Research Review Committee (HRRC#). For more information about the study and the eligibility requirements, please contact Janet Poole, Ph,D,, OTR/L at jpoole@salud.unm.edu or 505-272-8276 or 1-800-922-5015. |
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DEADLINE TO ENTER: MARCH 15
Register today for the Spring Swing Women's Doubles Tennis Tournament at the fabulous, AAA Four Diamond PGA National Resort & Spa in Palm Beach Gardens, Florida, March 21.
More... |
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The federal government took a big step toward implementing a ban on genetic discrimination in hiring and promoting workers, a move that will expand the bounds of anti-discrimination law beyond the traditional realms of age, race, religion, sex and disability. |
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Abstract
Purpose: Optimal treatment of systemic sclerosis (SSc) is a challenge because the pathogenesis of
SSc is unclear and it is an uncommon and clinically heterogeneous disease affecting multiple organ
systems. The aim of the EUSTAR (EULAR Scleroderma Trials and Research) group was to develop
evidence-based, consensus-derived recommendations for the treatment of SSc. |
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What do former President George H.W. Bush, Fox Business News anchor Neil Cavuto, comedian and actor Bernie Mac, Poison lead singer and reality television star Bret Michaels and Seattle Seahawks wide receiver Bobby Engram have in common?
They are among the millions of American men living with an autoimmune disease today. And, these men are the focus of a new public service campaign launched by American Autoimmune Related Diseases Association (AARDA). |
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 Realizing the added pressure of being a full-time caregiver is not the only challenged faced by many. In many cases, it is the stress of caring for a loved one, all while maintaining a job and supporting a family. It is at this moment where setting limits and making choices becomes most important. The key step is learning how to say “no,” yet maintaining a strong relationship with your care recipient.
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 If you have high blood pressure and are being treated for hypertension, good communication between you and your doctor is vital. Your doctor will most likely review with you everything you need to know about your condition. Still, make sure you know the answers to the following questions.
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WE NEED YOUR HELP
How Do You Generate Awareness for Scleroderma?
The Scleroderma Foundation is asking community members nationwide to share their own creative and unique ways of generating awareness for scleroderma. All responses received will be reviewed by the Foundation’s staff and eligible for inclusion in the upcoming June issue of the "Scleroderma Voice" magazine. Interested individuals may submit their responses (100 words or less) via e-mail at shall@scleroderma.org or by mail: Communications Department, c/o Scleroderma Foundation, 300 Rosewood Drive Suite 105, Danvers, MA 01923. Please be sure to include your contact information with your response. All responses must be received by March 31, 2009 to be eligible for publication.
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