Scleroderma Foundation

In This Issue

IRA Gifts Extended Through 2009

Charity Navigator Rates Scleroderma Foundation

"About the Foundation" Video Online

Reps Can Distribute Info About Off-Label Drug and Device Use, Says the FDA

When Weather Gets Cold: Winter Health Problems

The Impact of Rheumatic Diseases on Sexual Function

New Treatment for Tough Disease

Kids With Chronic Illnesses Stay Active

Spring Swing Tennis Doubles Tournament

Commemorative Stamp for Scleroderma

Photo of the Week
Kevin Noyes and Kerri Connolly
Photo: Kevin Noyes, Danvers Bank employee and Kerri Connolly, Scleroderma Foundation Education Manager.

The Scleroderma Foundation and the New England Chapter thank Danvers Bank for their generous contribution. Kevin Noyes, a bank employee, was instrumental in encouraging the bank to donate its "Jeans Day" money to the Foundation's research program. Donations were made in memory of Cathy Connolly, mother of SF staff member Kerri Connolly and friend of Kevin at Danvers Bank. The money was given to the New England Chapter and was allocated towards research.

Spring Swing Doubles Tennis Tournament

Saturday, March 21, 2009
Online Registration Available!

Commemorative Stamp for Scleroderma

The Scleroderma Foundation is pursuing a commemorative stamp for scleroderma.
We need your help!

Scleroderma Foundation eLetter

Friday, February 6, 2009– Issue #282

eLetter Archive

IRA Gifts Extended Through 2009Couple with bills and calculator

Congress has temporarily extended the legislation through 2009 that allows donors to make tax-free gifts from their IRA Accounts. If you are age 70½ or older and do not need all or a part of the distributions from your IRA you can make tax-free gifts totaling up to $100,000 in 2009 from your traditional or Roth IRA to qualified charities.

Talk to your tax professional for more information.

Charity Navigator Gives Scleroderma Foundation Four Stars

Charity NavigatorCharity Navigator's rating system examines two broad areas of a charity's financial health: how responsibly it functions day to day as well as how well positioned it is to sustain its programs over time. Each charity is then awarded an overall rating, ranging from zero to four stars. To help donors avoid becoming victims of mailing-list appeals, each charity's commitment to keeping donors' personal information confidential is assessed.

Still photo from "About the Foundation" video"About the Foundation" Video Online

Chris Harrison, host of "The Bachelor" and "The Bachelorette" series has a personal connection to scleroderma. In this video he introduces us to the disease, people living with it, and how the Foundation helps those affected by it.

Reps Can Distribute Info About Off-Label Drug and Device Use, Says the FDA

(Rockville, Maryland) — The Food and Drug Administration (FDA) has finalized guidelines that will allow pharmaceutical and device company reps to distribute journal articles to doctors about off-label uses of their products. The new recommendations are a finalized version of the draft about "good reprint practices" first issued in February 2008.

Medscape - Requires Free Registration

When the Weather Gets Cold: Winter Health Problems

Winter landscapeNIH News in Health - Bright blue skies, blankets of snow, crisp days and cozy nights by a crackling fire. For many people, winter is a welcome time of year. But for people with certain diseases like arthritis, it can be a pain—literally.

The Impact of Rheumatic Diseases on Sexual FunctionCouple cuddling

Sexuality is a complex aspect of the human being’s life and is more than only the sexual act. Normal sexual functioning consists of sexual activity with transition through the phases from arousal to relaxation with no problems, and with a feeling of pleasure, fulfillment and satisfaction. Rheumatic diseases may affect all aspects of life including sexual functioning.

Free Online Brochure! "Scleroderma and Sexuality" (PDF)

Dr. John VargaNew Treatment for Tough Disease

Dr. John Varga and colleagues at Northwestern University Feinberg School of Medicine found that rosiglitazone, a treatment commonly used in type-2 diabetes, may reduce the severity of scleroderma.

Kids With Chronic Illnesses Stay Active

Kids riding BMXWebMD Health News

Children with chronic diseases often don't see themselves as too sick to take part in physical activity, and that's good, a new study shows.

Upcoming Events

March 6 (Fri.) 2nd Annual "Swing for a Cure" Golf Tournament (Boynton Beach, Fl.)
Complete SF Calendar

Scleroderma Foundation, 300 Rosewood Drive, Suite 105, Danvers, MA 01923
Phone 978-463-5843 · 800-722-HOPE (4673)

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