Scleroderma Foundation eLetter

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Photo of the Week

Walkers from the Ripley, W.V. walk. This group of ladies came from Huntington, W.V. They lost their loved one a few months ago from scleroderma. They wore T-shirts they had made in memory of their Aunt Annie.

Commemorative Stamp for Scleroderma

The Scleroderma Foundation is pursuing a commemorative stamp for scleroderma. We need your help!


Friday, November 7, 2008– Issue #269	eLetter Archive

A Reel Victory for Scleroderma!

Southern California Chapter's Executive Director, Brian Ross Adams, recently put together a special video for the "Key to a Cure" Gala celebrating Cynthia Cervantes testimony before Congress in March. The video chronicles Cynthia's journey into the media spotlight as a local and national advocate for scleroderma awareness and research. Highlights of Cynthia's media interviews, photos, and candid testimony on Capital Hill are included throughout the video, showcasing her tremendous strength and continued hopes of finding a cure.

Watch the video.

Gilead Announces Two-Year Clinical Data for Letairis(R) (ambrisentan) for the Treatment of Pulmonary Arterial Hypertension (WHO Group 1)

Gilead Sciences, Inc. (Nasdaq:GILD) announced results of a two-year (104-week), open-label, uncontrolled, extension study (ARIES-E) of Letairis(R) in patients with pulmonary arterial hypertension (PAH) (WHO Group 1). Data from this study were presented today at CHEST 2008, the annual meeting of the American College of Chest Physicians, taking place in Philadelphia, October 25–30.

Tadalafil Reduces Raynaud's Episodes in Patients With Scleroderma

In the first randomized controlled trial of its kind, the drug tadalafil reduced the duration and frequency of secondary Raynaud's phenomenon episodes in patients with scleroderma and mixed connective-tissue disease. It also decreased the incidence of ischemic ulcers when used with other treatments, according to research presented here at the American College of Rheumatology 2008 Annual Scientific Meeting.

Ten Myths Of Chronic Pain

Misconceptions about chronic pain can do harm to people with legitimate medical problems. Patients with chronic pain can and should be treated. Dispelling these damaging myths should raise awareness and encourage more people to seek help with a professional trained in treating chronic pain.

Patient Medication Card

As a patient, you are a member of the healthcare team. As part of this team, you play an important role in your safety when receiving health care either in a hospital or clinic. IHC has worked with health care providers from across the state to develop the following tools for patients to use to help you be informed and involved in your care:

Bobby Hamilton, Jr. Serves as Sponsor and Racer of the Number 25 Car

After Team Rensi Motorsports announced in Memphis that they would not run the rest of the season without sponsorship, driver Bobby Hamilton, Jr. put up his own money to run the final three races in order for the team to continue their hunt for a primary sponsorship for 2009.

Upcoming Events

	November 8 (Sat.) Kostandaras Family Fundraiser (Richfield, Ohio)
	November 16 (Sun.) Annual Scleroderma Research Forum (New York, N.Y.)
	November 22 (Sat.) Patient Education Seminar (Milwaukee, Wis.)
Complete SF Calendar

Scleroderma Foundation, 300 Rosewood Drive, Suite 105, Danvers, MA 01923
Phone 978-463-5843 · 800-722-HOPE (4673)

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