Scleroderma Foundation 10th Anniversary Logo

Contact Us

Magazine

Medical Archive

Message Board

National Conference

Support SF

SF Store

SF Home Page

Did You Know that we need volunteers? More.

Photo of the Week


The Greater Chicago Chapter would like to thank all of the speakers who presented at the Sept. 13th seminar, including: Dr. Ikuo Hirano, Dr. Richard Burt, Dr. William Lowe, Dr. John Varga, Jennifer Ryan, P.T., and their Keynote Speaker Dr. Robert Phillips, for giving of their time and energy to this event. Also, the chapter could not have provided this information for their patients without the help and financial support of Gilead Sciences and Actelion Pharmaceuticals US Inc. Thank you for your support!

Commemorative Stamp for Scleroderma

Scleroderma Foundation eLetter

Friday, September 19, 2008– Issue #262

eLetter Archive

Click on photo to see it larger!

This table was appropriately named the "Table of Hope."

Research Grants Received

This week the national office celebrated the official “kick-off” of the Foundation’s Research Program for the coming year. This past Monday, September 15, marked the deadline for researchers across the United States and abroad to submit their research grant proposals to the Foundation. That same afternoon, national office staff prepared and organized all of the rapidly accumulating proposals being delivered via Federal Express, UPS, DHL, and other overnight shipping services.

Benefit Eligibility Screening Tool (BEST)
Find benefits you could get from Social Security

What is the Benefit Eligibility Screening Tool?
The Benefit Eligibility Screening Tool (BEST) helps you find out if you could get benefits that Social Security administers. Based on your answers to questions, this tool will list benefits for which you might be eligible and tell you more information about how to qualify and apply.

Philip Clements, M.D.

Philip Clements, M.D. answers questions about scleroderma in this article.

The Unfolding Mystery of Scleroderma

By LESLIE BERGER

Like many autoimmune ailments, scleroderma remains a great unknown. Despite decades of research, the cause of this rare and complicated disease has yet to be discovered. But the good news is that doctors have a pretty clear understanding of how scleroderma progresses—a natural history, they call it—and are better than ever at extending and easing their patients’ lives.

“Lots of patients and lots of doctors used to consider it a ‘black box’ disease, a complete mystery, with little that could be done,” said Dr. Philip J. Clements of the University of California, Los Angeles, who is a scleroderma specialist. “Now there’s a body of evidence that tells us what to watch out for, and when.”

Bobby and The Nationwide Series Return to Action

Bobby and The Nationwide Series Return to Action

After a one week break, Bobby Hamilton, Jr. and the Team Rensi Motorsports #25 Ford Fusion are back in action this weekend in the Camping World RV Sales 200 (supporting the Childrens Institute for Pediatric Trauma) at the famed “Monster Mile" in Dover, Delaware.

Dover International Speedway is a high-banked one-mile concrete oval.The high-grip surface lets drivers really get aggressive and push the car, but at the expense of tire wear. On a typical race day in Dover you'll see a number of different strategies play out. The race can be won by charging hard all day, by laying back and saving your tires for the end, or even by playing the fuel mileage game. You just never know what Dover will bring.

You can watch Bobby and the entire team on Saturday, September 20 on ESPN2 at 3 p.m. Check your local listings for the broadcast time in your area.

Upcoming Events

September 20 (Sat.) "Stepping Out to Cure Scleroderma" (Olive Branch, Miss.)
September 20 (Sat.) "Stepping Out to Cure Scleroderma 5K Family Fun Walk" (Seattle, Wash.)
September 21 (Sun.) Michigan Chapter's Fall Education Event (Birmingham, Mich.)
September 27 (Sat.) Northern California Chapter's Patient Education Seminar (Sacramento, Calif.)
September 28 (Sun.) "Stepping Out to Cure Scleroderma" (Sacramento, Calif.)
Complete SF Calendar

Scleroderma Foundation, 300 Rosewood Drive, Suite 105, Danvers, MA 01923
Phone 978-463-5843 · 800-722-HOPE (4673)

© Copyright 2001–2008 Scleroderma Foundation. All Rights Reserved.
Disclaimer. Privacy Policy. Webmaster

If you cannot view the eLetter, or the links do not work, you can read it on the Web at www.scleroderma.org/e-letters/eLetter_262.htm. If someone has forwarded this eLetter to you, and you wish to subscribe to this FREE weekly publication, go to www.scleroderma.org/e_letter_signup.shtm.