Scleroderma Foundation eLetter

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Photo of the Week

Brittney Price was recently featured in the "My Space" section of the September 2008 "Scleroderma VOICE," due in mailboxes soon. In her article she says that she's "learned to adjust to things, and I try not to think about the fact that I have systemic sclerosis and Sjögren’s syndrome. Although some days are harder than others, I just keep reminding myself that despite everything, I’m still a normal kid." Read more.

Scleroderma Strider Kaitlin Glazier Almost at Goal!

Scleroderma Strider Kaitlin Glazier is running in the Chicago Marathon on Oct. 12. She has a goal of raising $4,500 and is already at $4,225!

Commemorative Stamp for Scleroderma


Friday, September 12, 2008– Issue #261	eLetter Archive

Carol Feghali-Bostwick, Ph.D.

Attention SF Research Grant Applicants
Monday, September 15 is the grant application deadline!

Research grant funding is the top priority for the Scleroderma Foundation and in 2008 we continue the long-standing tradition of making research our single biggest budgetary expense.Carol Feghali-Bostwick, Ph.D., vice chair of the Scleroderma Foundation Board of Directors anda 1999 grant awardee, said "the Foundation's research grant program provides the support that junior investigators need to launch a career in scleroderma research. It also provides the funds for investigators at all stages of their careers to pursue pilot studies and produce preliminary data that are key components of successful applications for larger grants."

To access more information about the program and/or to download application materials, go to www.scleroderma.org/research/researchhome.shtm.

Grant Application Deadline: Sept. 15, 2008 by 5 p.m. EST.

If you are a research grant applicant and are being impacted by Hurricane Ike due to institutional closings, late arrival allowances for your grant application will be made. For questions contact Tracey Sperry, tsperry@scleroderma.org, 800-722-4673, ext. 44.

UT Medical School Receives $6 Million NIH Grant to Study Scleroderma

Maureen D. Mayes, M.D., MPH, professor of internal medicine in the Division of Rheumatology and Clinical Immunogenetics at The University of Texas Health Science Center at Houston, is the principal investigator in this study.

Within five years, researchers at The University of Texas Health Science Center at Houston expect to have identified the genetic clues to scleroderma, a chronic, often progressive, autoimmune disease.

Photo: Maureen D. Mayes, M.D., MPH, professor of internal medicine in the Division of Rheumatology and Clinical Immunogenetics at The University of Texas Health Science Center at Houston, is the principal investigator in this study.

Dr. Ronenn Roubenoff

Lupus Foundation of America Chat
September 17, 2 p.m. ET

Join the LFA for the "Healthy Aging & Lupus" chat with guest expert Dr. Ronenn Roubenoff on Wednesday, September 17, at 2 p.m. Eastern, and get your questions answered.

Dr. Roubenoff is currently Adjunct Professor of Nutrition and Associate Professor of Medicine at Tufts and Tufts-New England Medical Center. In January 2007 he became Senior Director, Translational Medicine, at Biogen Idec, Inc.

Living Well with Sjögren's Syndrome

All medical conditions have a language all their own, and Sjogren's syndrome is no exception. When I was first diagnosed, I spent a great deal of time reading everything I could about autoimmune disease. Fully half of that time was spent learning the meanings of the words used in that information.

Introducing the PH Pediatric School Resource Handbook (courtesy of the PHA Web site)

PHA's Pediatric Parents working group and PH Resource Network Education Committee are pleased to introduce the PH Pediatric School Resource Handbook. The electronic handbook should help take some of the worry out of having a child with PH. It provides general educational materials for schools regarding PH and the impact it may have on a child, as well as information about the medications used to treat the disease. This resource is now available on the PHA Family section of their Web site.

An Open-Label Pilot Study of Infliximab Therapy in Diffuse Cutaneous Systemic Sclerosis

Aim: We have examined the safety and potential efficacy of a chimaeric anti-TNFÑ monoclonal antibody (infliximab) in diffuse cutaneous SSc.

The Nationwide Series Takes a One-Week Break

You can watch Bobby and the Team Rensi Motorsports #25 car next in the Camping World RV Sales 200 (supporting the Childrens Institute for Pediatric Trauma) at the Dover International Speedway on Saturday, September 20. Tune into ESPN2 at 3 p.m. for all the action. Check your local listings for the broadcast time in your area.

Upcoming Events

	September 13 (Sat.) Patient Education Day (Chicago, Ill..)
	September 13 (Sat.) Ride for Scleroderma" Motorcycle Ride (Henderson, Minn.)
	September 14 (Sun.) "Stepping Out to Cure Scleroderma" (Topsfield, Mass.)
	September 15 (Mon.) 3rd Annual Teeing It Up "Fore" Scleroderma, Golf Outing (Chicago, Ill.)
	September 20 (Sat.) "Stepping Out to Cure Scleroderma" (Olive Branch, Miss.)
	September 20 (Sat.) "Stepping Out to Cure Scleroderma 5K Family Fun Walk" (Seattle, Wash.)
	September 21 (Sun.) Michigan Chapter's Fall Education Event (Birmingham, Mich.)
Complete SF Calendar

Scleroderma Foundation, 300 Rosewood Drive, Suite 105, Danvers, MA 01923
Phone 978-463-5843 · 800-722-HOPE (4673)

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