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Did You Know? |
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Did You Know that CarePages has a new look? As in the past, the Scleroderma Foundation continues to partner with CarePages, a free Web service allowing scleroderma patients and their families to communicate with friends when a loved one is receiving care. By registering on CarePages, families can create a virtual meeting space on the Web, share news and photos as often as needed, and receive emotional support during a time of need.
Starting on August 2, CarePages will be updating its services and Web site design. CarePages' new look will appear more polished and refined promoting easier navigation for its members. Check out the new layout. |
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Photo of the Week
Attendees at the Washington Evergreen Chapter's annual "Spring Fling" had a wonderful time hamming it up! |
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Chris Harrison, host of "The Bachelor" and "The Bachelorette" with Scleroderma Foundation staff members Elysia Cappellucci, Executive Assistant; Kerri Connolly, Education Manager, and Tracey Sperry, Development and Research Manager. Chris was the emcee for the Awards Banquet. |
It was an enjoyable and informative time for all at this year’s 2008 National Patient Education Conference, held July 25–27 in Manhattan Beach, California. Hosted by the Foundation’s Southern California Chapter, the Conference provided a comfortable forum for the scleroderma community to socialize with one another and share valuable information and personal experiences. Over 390 individuals gathered at the Manhattan Beach Marriott for the wide array of featured speakers and workshops. |
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Daniel Furst, M.D. |
EULAR 2008: The European League Against Rheumatism Annual Congress
The European League Against Rheumatism (EULAR) is the organization which represents the patient, health professional, and scientific societies of rheumatology of all the European nations. EULAR endeavors to stimulate, promote, and support the research, prevention, treatment, and rehabilitation of rheumatic diseases. In line with UEMS, EULAR defines rheumatology as including rheumatic diseases of the connective tissue, locomotor and musculoskeletal systems.
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Objective. Systemic sclerosis (SSc) is a rare, heterogeneous disease, which affects different organs and therefore requires interdisciplinary diagnostic and therapeutic management. To improve the detection and follow-up of patients presenting with different disease manifestations, an interdisciplinary registry was founded with contributions from different subspecialties involved in the care of patients with SSc.
This article is technical, but it is filled with excellent information. |
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Boris Said |
Team Rensi Heads North of the Border
Boris Said's part-time NASCAR schedule gets busy the next two weeks, beginning with this Saturday's Nationwide race at Circuit Gilles Villeneuve in Montreal. The Canadian road race will be the second Nationwide event of the season for Said who will drive the No. 25 No Fear Energy/Advance Auto Parts Ford Fusion under the Team Rensi Motorsports banner.
Known for his road racing prowess, Said will also compete the following week in both the NASCAR Sprint Cup and Nationwide races at the Watkins Glen International road course in upstate New York.
Become a "Said Head" and watch Boris and the entire team this Saturday, August 2 as they compete in the NAPA Auto Parts 200 presented by Dodge in Montreal. All the action begins on ESPN2 at 3 p.m., EST. Check your local listings for the broadcast time in your area.
Note: Bobby Hamilton, Jr. returns to action on August 16 for the Carfax 250 in Michigan. |
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