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 Did You Know?

Did You Know that this year is our 10th Anniversary? We have a campaign called "Invest in Hope – The 10th Anniversary Campaign for Research." Our goal is to raise an additional $1 million for research. More...

Photo of the Week

Walkers from the Highland Park, Illinois 2008 Walk

Sunday, June 22, 2008 was the date for the Greater Chicago Chapter's sixth annual “Stepping Out to Cure Scleroderma” walk held in beautiful downtown Highland Park, Ill. The walk began and ended at the downtown Highland Park Metra Station parking lot. The rain fell but spirits were not dampened as nearly 600 people lined up and walked the course. The sun came out to end the event and the day was wonderful.

2008 National Art Contest

2008 National Art Contest

Entries must be postmarked by July 31, 2008.

The American Academy of Pediatrics (AAP) invites children to participate in a national art contest with a chance to win a trip to Boston, Massachusetts.

The Academy's contest is open to boys and girls in two groups, grades 3–5 and 6–8.

Scleroderma Foundation eLetter

Thursday, July 24, 2008– Issue #254

eLetter Archive

Marriott Manhattan Beach front view

Countdown to the Conference: Making Our Way to Manhattan Beach!

The 2008 Scleroderma Foundation National Conference is set to begin this coming Friday, July 25th!  Over 375 individuals will gather at the Manhattan Beach Marriott Resort in Manhattan Beach, California for a weekend of shared support, education, and research! 

The conference will feature a welcome reception, keynote addresses by Cindy Coney and Dr. Daniel Furst, four book signings, an awards dinner, and many new workshops that are sure to provide a memorable and worthwhile weekend retreat for all!

In addition to the numerous events planned for the three-day conference, there will also be many of the nation’s top physicians and specialists in attendance, sharing their insights with attendees on the many facets of scleroderma. Among these medical professionals will be Dr. Raffi Tachdjian M.D., M.P.H.  of UCLA who will be holding a seminar on Juvenile Pain Management.

Don't miss your chance to secure a spot at the conference! Register Now!

Please note: Our online registration is closed. Those who would still like to attend can do so by calling our National Office at 1-800-722-HOPE or by registering at the door during the conference. 

Last-Minute Questions?
The Scleroderma Foundation national office will be open until 5 p.m. ET on Friday, July 25. Please call the office at 800-722-4673 or locally at 978-463-5843 for any last-minute questions. When you arrive at the Marriott look for the Scleroderma Foundation Registration Table located in the main lobby. At the table volunteers from the Southern California Chapter and national staff members will be able to get you registered and answer any questions you may have.

Scleroderma Foundation National Conference Speakers Update

Dr. Danel Furst, Dr. Keith Sullivan, Dr. Thomas Medsgar, and Dr. Richard Silver, moderator

Raffi Tachdjian M.D., M.P.H.

Brian Adam Ross

Brian Ross Adams

"Stem Cell Transplants" with Dr. Danel Furst, Dr. Keith Sullivan, Dr. Thomas Medsgar, and Dr. Richard Silver, moderator, "Esclerodermia 101: Una descripción (En Español)" by Judith Garza, M.D.; "Advocacy – Grass Roots" by Brian Ross Adams and Darren Webb; and "Juvenile Pain Management" by Raffi Tachdjian M.D., M.P.H.

Summer Survival Guide

Summer Survival Guide

What you need to know when the heat is on and the sun is out.

Summer fun sometimes comes at a cost. Summer heat kills more Americans than tornadoes, lightning strikes, hurricanes and floods combined.

“Heat is by far the largest weather-related killer in the United States,” says Larry Kalkstein, PhD, senior research professor at the University of Miami, Department of Geography and Regional Studies.

Ekrich car driven by Bobby Hamilton, Jr.

Ekrich Car driven by Bobby Hamilton, Jr.

The Heat Was On at Gateway International Raceway But Not the Lights

Bobby Hamilton, Jr. qualified the Team Rensi Motorsports/Eckrich No. 25 Ford Fusion in the 15th position for last Saturday night's event at Gateway International Raceway. After 200 laps, he finished solidly in the 20th spot and remains fifteenth in the unofficial Driver Standings. More...

Be sure to watch Bobby and the entire team next Saturday evening as they compete in the Kroger 200 at the O’Reilly Raceway Park in Indianapolis. All the action begins on ESPN at 7:30 p.m., EST. Check your local listings for the broadcast time in your area.

Upcoming Events

July 25-27 (Fri.-Sun.) National Conference (Manhattan Beach, Cal.)
August 8-10 (Fri.-Sun.) Ohio Chapter Mini-Conference (Dublin, Oh.)
August 23 (Sat.) "Stepping Out to Cure Scleroderma" walk (York, Pa..)
Complete SF Calendar

Scleroderma Foundation, 300 Rosewood Drive, Suite 105, Danvers, MA 01923
Phone 978-463-5843 · 800-722-HOPE (4673)

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