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Photo of the Week

Barry Sanders, former Detroit Lion star running back and Football Hall of Famer, once again attended the Michigan Chapter walk and conducted a "Meet and Greet with Photo" promotion. Barry spoke throughout the day about his passion for our cause and showed great appreciation and gratitude to everyone who supported the event. Barry lost his beloved sister, Nancy, to scleroderma in 1991. The chapter sends out a big thank you to Barry for again making time to be with them.

Friday, June 20, 2008– Issue #249

eLetter Archive

The Scleroderma Foundation Announces Its 2008 Research Grant Funding Program

The Scleroderma Foundation is the leading nonprofit supporter of scleroderma research, funding over $1 million in new grants each year to find the cause of and cure for scleroderma.

Philip Clements, M.D.

James Louie, M.D.

Scleroderma Foundation National Conference Speakers Update

"Are Clinical Trials Right for You," by Philip Clements, M.D. and "Art of Rheumatic Disease," by James Louie, M.D.

Roger Williams Gets $250,000 for Ulcer-Healing Study

PROVIDENCE – Dr. Vincent Falanga, chairman of the department of dermatology and skin surgery at Roger Williams Medical Center, has been awarded a $250,000 research grant by Revalesio Corp.

The Tacoma-based life sciences company has selected Roger Williams to host a trial of its new treatment for venous leg ulcers, citing Falanga’s expertise in the study and treatment of chronic wounds.

Carol Feghali-Bostwick, Ph.D.

More Research Needed to Understand Scleroderma

Newswise — With an estimated 14 million cases worldwide, you would think more would be known about scleroderma, a chronic, debilitating disease that can lead to the hardening and tightening of skin and connective tissue. But it seems that we don’t know enough: “We don’t have all the answers and that is the reason why we need to do more research,” says Carol Feghali-Bostwick, Ph.D., assistant professor of medicine at the University of Pittsburgh.

New Caregivers Guide for Chronic Lung Disease from the American Lung Association

The American Lung Association and Krames Publishing have teamed up to produce the Caregiver’s Guide for Chronic Lung Disease. The guide is designed for caregivers of people with chronic lung diseases, including chronic obstructive pulmonary disease (COPD), lung cancer, pulmonary hypertension and pulmonary fibrosis.

Scleroderma Awareness Month and NASCAR

As June is designated as Scleroderma Awareness Month, Team Rensi Motorsports is honoring the Scleroderma Foundation. During this special weekend in Milwaukee, team members will wear scleroderma hats and special Scleroderma/Team Rensi Motorsports/Smithfield T-shirts. Additionally, the scleroderma flag will be displayed on top of the team hauler and pit box and scleroderma brochures will be available to all those wishing to learn more about this devastating disease. Lastly, for maximum awareness, larger Scleroderma Foundation logos will be prominent on the Team Rensi Motorsport/Smithfield #25 Ford Fusion. With larger logos and media attention, scleroderma will get the national attention it deserves. This remarkable gesture on the part of Team Rensi Motorsports will be an opportunity to educate the public and focus attention on this uncommon and potentially catastrophic disorder involving the skin and internal organs. Be sure to tune in to ESPN2 on Saturday, June 21st at 8 p.m. and be a part of this special and unique event.

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