Did you know that you can become a Scleroderma Advocate? Come and join our network of volunteer advocates. Whether it's through a letter, a fax, an e-mail, a phone call, or a face-to-face meeting with your U.S. Representative or Senator, you can help educate government officials about scleroderma. Learn more.

Photo of the Week

Sister Mary Rose Noonan and fellow Sisters of St. Joseph of Carondelet recently sponsored a fundraiser to benefit the Scleroderma Foundation in Latham, N.Y. With the help of the Foundation's Tri-State Chapter, the Sisters' fundraiser included speaker and humorist Sister Mary Ann Smollin, pianist Sister Patricia St. John, and also the musical talents of Sister Mary Rose on trombone. Together, the Sisters raised over $10,500 for the Scleroderma Foundation for the month of June a true financial "blessing" for all those living with scleroderma.

Friday, June 13, 2008– Issue #248

eLetter Archive

Questions for Stem Cell Panel Discussion

Last year we introduced the "Stem Cell Panel Discussion" at our National Conference," which was well received. Due to popular demand, we are again offering this workshop. In this stem cell panel discussion, different types of stem cell transplant procedures will be discussed. We would like to collect your questions relating to this topic and present them to the moderator.

Bracha Shaham M.D.	Jill Blitz, PT	Diana Martin, OT

Scleroderma Foundation National Conference Speakers Update

"Juvenile Scleroderma – Medical Aspects," by Bracha Shaham M.D., and "Pediatric OT/PT," Jill Blitz, PT and Diana Martin, OT.

What Is Difficulty Swallowing (Dysphagia)?

Difficulty swallowing is also called dysphagia. It is usually a sign of a problem with your throat or esophagus-the muscular tube that moves food and liquids from the back of your mouth to your stomach. Although dysphagia can happen to anyone, it is most common in older adults, premature babies, and people with problems of the brain or nervous system.

ACP Foundation Releases New HEALTH TiPS at Internal Medicine 2008

HEALTH TiPS help patients manage chronic condition

The American College of Physicians (ACP) Foundation introduced five new HEALTH TiPS at Internal Medicine 2008, ACP’s annual scientific meeting May 15–17 at the Walter E. Washington Convention Center in Washington, D.C.

The Appeals Process

Social Security wants to be sure that every decision made about your Social Security or Supplemental Security Income (SSI) claim is correct. We carefully consider all the information in your case before we make any decisions that affect your eligibility or your benefit amount.

Scleroderma Lung Disease

By Charlie Strange, M.D. and James R. Seibold, M.D.

If Lewis Carroll (quoted in the title) were alive today, he may well have considered a career in scleroderma research. Systemic sclerosis (SSc; scleroderma) remains without a clearly defined pathogenesis and without an effective overarching approach to therapy.

The Nationwide Series Moves on to Kentucky

Bobby Hamilton, Jr. and the Team Rensi Motorsports/Smithfield #25 Ford Fusion move on to the Kentucky Speedway for the Meijer 300. You can watch all the action Saturday evening at 8 p.m. on ESPN2. Check your local listings for the time in your area.

Upcoming Events

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Phone 978-463-5843 · 800-722-HOPE (4673)

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