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 Did You Know?

Did you know that you can find answers to frequently asked questions about scleroderma on our website?

Learn more about it.

Photo of the Week

Scleroderma Foundation booth at ACP conference

The Scleroderma Foundation premiered its new booth at the American College of Physicians 2008 Internal Medicine-this year's premier scientific meeting for internal medicine on May 15-17 in Washington, D.C. Liz Dorsett, Communications Manager and Roger Brechner, Chapter and Support Group Manager served as representatives of the Foundation at the scientific forum. Hundreds of doctors and medical students were in attendance, many of whom took notice of the display booth and stopped by for more information.

Scleroderma Foundation eLetter

Friday, May 23, 2008– Issue #245

eLetter Archive

* * *Special Alert! * * *

Ventavis Recall

On May 16, Actelion, the manufacturer of Ventavis, issued a voluntary recall of Ventavis Lots #63227A, #63228A, #63230A, #63231A, and #63232A.

Janel Poole, Ph.D.
Janet Poole, Ph.D.
Kathleen Randolph
Kathleen Rnadolph

Scleroderma Foundation National Conference Speakers Update

"Occupational Therapy/Physical Therapy" by Janet Poole, Ph.D and "Yoga for Scleroderma" by Kathleen Randolph

Fearless Caregiver Conference

Stressed about caregiving? Join us at a Fearless Caregiver Conference...coming to a town near YOU! Enjoy an entire day with caregiving experts.

Fearless Caregiver Conference

Thursday, May 29, 2008 in Dover, Delaware
Wednesday, June 25, 2008 in Drexel Hill, Pennsylvania

Teresa Nadeau

Local Artist Donating Piece to Benefit Scleroderma Foundation

Montgomery (Alabama) artist Teresa Nadeau is using her work to raise awareness and financial support for a cause that’s close to her heart.

How Much Should You Walk?

Walkers on footbridge

The FIT formula – Frequency, Intensity and Time – helps you find out.

Deciding to become a little more active than you are right now leads to improvements in your health and outlook on life as well as to reductions in pain. Walking is the easiest activity to increase, since you already do it throughout the day. But how much more should you do? How often should you do it? How fast should you go? For how long?

Samantha Murray, National Youth Ambassador for the Scleroderma Foundation
Samantha Murray, National Youth Ambassador for the Scleroderma Foundation

Morphea

Morphea is a skin condition that causes reddish or purplish patches on your skin. The condition typically appears on your torso, arms and legs. Morphea occurs in all age groups and both sexes, but generally affects women more than men.

Morphea is a localized form of scleroderma, a condition that can cause a wide variety of problems, from skin discoloration to internal organ damage. Morphea tends to affect only the outermost layers of your skin, with no damage to internal organs. Sometimes, morphea can restrict movement in your joints.

Department of Defense Peer-Reviewed Medical Research Program

On Wednesday, October 3, 2007, the United States Senate passed the fiscal year (FY) 2008 Department of Defense (DoD) Appropriations bill (H.R.3222) by voice vote. Included in the Senate-passed version of H.R. 3222 is $50 million dollars for the DoD Peer-Reviewed Medical Research Program. This program funds important research on conditions that affect military personnel. Congress must explicitly recognize a condition before it is eligible for funding through the DoD Peer-Reviewed Medical Research Program. Although scleroderma research has been conducted through this program in the past, presently scleroderma is not recognized on the Senate’s list of conditions eligible for funding that accompanies the $50 million allocation.

Bobby Hamilton, Jr.
Bobby Hamilton, Jr.

The Nationwide Series Moves On to Lowe’s Motorspeedway

After a one week break in the action, Bobby Hamilton Jr. and the Team Rensi Motorsport/Smithfield #25 Ford Fusion head to Lowe’s Motorspeedway for the Carquest Auto Parts 300.

Upcoming Events

May 26 (Mon.) Pulmonary Hypertension Educational Meeting (Honolulu, Hawaii)
June 1 (Sun.) "Stepping Out to Cure Scleroderma" Walk (Binghamton, N.Y.)
June 1 (Sun.) "Stepping Out to Cure Scleroderma" Walk (Leonia, N.J.)
June 1 (Sun.) "Stepping Out to Cure Scleroderma" Family Picnic (Omaha, Neb.)
June 1 (Sun.) "Stepping Out to Cure Scleroderma" Walk (Avon by the Sea, N.J.)
Many walks during the week of June 2—8. Please check our calendar for a location near you!
Complete SF Calendar

Scleroderma Foundation, 300 Rosewood Drive, Suite 105, Danvers, MA 01923
Phone 978-463-5843 · 800-722-HOPE (4673)

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