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Photo of the Week

Walkers from the 2008 Houston walk.

Walkers from the 2008 Houston walk.

Scleroderma Foundation eLetter

Friday, May 9, 2008– Issue #243

eLetter Archive

Thomas A. Medsger, Jr., M.D.

Thomas A. Medsger, Jr., M.D.

Heidi Jacobe, M.D.

Heidi Jacobe, M.D.

Scleroderma Foundation National Conference Speaker Update

"Scleroderma and Cancer," by Thomas A. Medsger, Jr., M.D. and "Localized Scleroderma," by Heidi Jacobe, M.D.

The Morphea Registry and DNA Repository – Dr. Jacobe and her staff will be on hand at the annual Scleroderma Foundation National Patient Education Conference enrolling patients. They welcome any patient with morphea 3 years old or older to enroll in this study. More.

Scleroderma Bound Yet Determined

Scleroderma Bound Yet Determined

by Shannon Rasp
"HealthLEADER" with quotes from Maureen Mayes, M.D.

The onset of symptoms was so rapid it was frightening, and they didn’t resemble anything Shannon Abert had ever heard of.

In the fall of 2002, Abert was an active, 35-year-old high school teacher who worked out five days a week. Suddenly, her hands couldn’t support the weights she lifted every day. She lightened the poundage she lifted at the gym, but her hands continued to hurt, and then began turning purple.

Janet Poole

UNM Therapy Program Given National Honors

University of New Mexico School of Medicine faculty members from the Occupational Therapy graduate program recently received national awards at the American Occupational Therapy Association annual meeting.

FDAs Proposed Ruling on Sunscreen Protection Products

US Pharm. 2008;33(4):53-61.

FDAs Proposed Ruling on Sunscreen Protection Products

Although the first sunscreen product was developed in 1928, it was not until the 1940s that the FDA began to regulate these products.1 On November 21, 1997, Congress mandated that the FDA, in accordance with the Food and Drug Administration Modernization Act of 1997 (FDAMA), regulate the prevention and treatment of sunburn as it does with all other OTC medications. Since then, regulations for testing and labeling have been set forth by the FDA for ultraviolet B (UVB) protection in sunscreen products. Only recently has the FDA proposed rules and regulations about ultraviolet A (UVA) protection in sunscreen products.

Swimmer

Susquehanna Swim for Scleroderma

On May 17, Al Masland will jump into the Susquehanna River in Ft. Hunter, Pa. and swim to City Island, a distance of about 6–6.5 miles (depending on how well Cindy Dunn, his expert canoeist/guide, keeps him on course).

Rather than entertain this quest for his own benefit, Al decided to swim for a greater purpose—charity. Swimming in deep, dark, and cold waters, Al has found an even greater inner momentum to complete his swim: knowing that his personal athletic endeavors will result in benefiting the lives of others.

2008 National Art Contest2008 National Art Contest

The American Academy of Pediatrics (AAP) invites children to participate in a national art contest with a chance to win a trip to Boston, Massachusetts.

Darlington Speedway

Darlington Speedway

Bobby Hamilton, Jr. Visits The Lady in Black

Following last week’s race in Richmond, Bobby Hamilton Jr. and the Team Rensi Motorsports/Smithfield #25 Ford Taurus move on to Darlington Raceway for the Diamond Hill Plywood 200.

Upcoming Events

May 10 (Sat.) Tri-State Chapter Holds Scleroderma Educational Forum (Farmington, Conn.)
May 10 (Sat.) "Stepping Out to Cure Scleroderma" Walk (Corpus Christi, Texas)
May 17 (Sat.) San Diego Chapter Holds Rummage Sale (San Diego, Calif.)
May 17 (Sat.) Spring Fling Dinner Dance and Auction (Seattle, Wash.)
Complete SF Calendar

Scleroderma Foundation, 300 Rosewood Drive, Suite 105, Danvers, MA 01923
Phone 978-463-5843 · 800-722-HOPE (4673)

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