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Photo of the Week

John McCutcheon

Actor John McCutcheon is hiking from Georgia to Maine—all 2,175 miles!

Scleroderma Foundation eLetter

Friday, April 25, 2008– Issue #241

eLetter Archive

Vanessa Malcarne, Ph.D.

Vanessa Malcarne, Ph.D.

Dinesh Khanna, M.D.

Dinesh Khanna, M.D.

Scleroderma Foundation National Conference Speaker Update

"Depression and Coping with Scleroderma," by Vanessa Malcarne, Ph.D.   ~ AND ~

"Gastrointestinal Issues," by Dinesh Khanna, M.D.

New this year:

Included in the conference fee this year is lunch for attendees on Saturday. In previous years, attendees were on their own for lunch on Saturday, but at your request, we have included it in the price of admission. Learn more about what is covered by the registration fee.

Senate Passes Genetic Discrimination Bill

WASHINGTON (AP) – People learning through genetic testing that they might be susceptible to devastating diseases wouldn't also have to worry about losing their jobs or their health insurance under anti-discrimination legislation the Senate passed Thursday.

Vasculopathic Diseases Complicate Pregnancy

Vasculopathic Diseases Complicate Pregnancy

NEW YORK (Reuters Health) – Women with systemic sclerosis, primary pulmonary hypertension, or sickle cell disease are at increased risk for having complicated pregnancies, according to study findings reported in the April issue of Obstetrics & Gynecology.

2008 Department of Defense Research Program Request For Applications Released

Calling all researchers!

The Fiscal Year 2008 (FY08) Defense Appropriations Act provides $50 million to the Department of Defense Peer Reviewed Medical Research Program (PRMRP) to support research that will make significant contributions in research of scleroderma, among other areas.

Stamp for Scleroderma

Commemorative Stamp for Scleroderma

The Scleroderma Foundation is pursuing a commemorative stamp for scleroderma. Please read information, which describes the Citizens' Stamp Advisory Committee selection process and identifies who sits on the committee. Please bring the list of committee members to the attention of your family and friends.

Study Sheds Light on Deadly Lung Disease

Systemic sclerosis (SSc), also known as scleroderma, is characterized by the formation of fibrosis, or scar tissue, on internal organs as well as the skin. Beyond its disfiguring symptoms, SSc is associated with a high rate of deadly lung disease.

People walking

Walking Does A Body Good

Walking does more than improve muscle tone. Take a look at the whole-body benefits that walking provides.

Bobby Hamilton, Jr.

Bobby Hamilton, Jr.

Bobby Hamilton, Jr. Returns for the Aaron’s 312 in Alabama

Bobby Hamilton, Jr. will be back behind the wheel of the Team Rensi/Smithfield #25 Ford Fusion for the Aaron’s 312 race at Alabama’s Talladega Superspeedway.

The race is on ABC on Saturday, April 26 at 2:30 p.m., EST.

Upcoming Events

April 25 (Fri.) Scleroderma Spring Fling to Benefit Michigan Chapter (Clinton Township, Mich.)
April 26 (Sat.) Michigan Cinco de Mayo Party (Taylor, Mich.) This event benefits the Michigan Chapter.
April 27 (Sun.) "Stepping Out to Cure Scleroderma" Walk (Houston, Texas)
April 29 (Tues.) No. California Chapter Booth at Professional Businesswomen of CA Conference (San Francisco, Calif.)
Complete SF Calendar

Scleroderma Foundation, 300 Rosewood Drive, Suite 105, Danvers, MA 01923
Phone 978-463-5843 · 800-722-HOPE (4673)

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