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Did You Know? |
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Did
you know that on our Web site we have a list of treatment centers in 18 states across the United States?
Find one near you! |
Photo of the Week
 Scleroderma Foundation Office Assistant, Mary Ann Berman, holding the SF flag, created her own form of awareness during her recent trip to Aruba! Thank you Mary Ann!
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Help Nabisco Celebrate 100 Extraordinary Women
Nabisco is looking for 100 extraordinary women.
Share your story (in 100 words or less) about an extraordinary
woman whose simple actions make a big difference in people's
lives. (Pssst...you can even nominate yourself!) If you win,
this will be great public awareness for scleroderma, so please
enter! Contest ends April 16, 2008.
 Read
more.
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Inspiring hope wherever she goes and aiming to dispel medical misconceptions, 13-year-old Cynthia Cervantes has become a national advocate for many people more than twice her age who struggle with a rare autoimmune disease called scleroderma. While scleroderma typically strikes people between the ages of 25 and 45, it hit Cynthia at age 11. |
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Dr. Donohue's Column Boosts Awareness of Scleroderma Foundation and Scleroderma
DEAR DR. DONOHUE: Would you discuss scleroderma? What are the early symptoms? Are there any tests to diagnose it? - E.W.
The Foundation thanks Dr. Paul Donahue for addressing this question and bringing public awareness to scleroderma. The National Office responded to over 100 calls after this article was circulated!
"Scleroderma is more than skin-deep" |
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One day you may find that someone you care about—a spouse, parent, relative, or close friend—needs help negotiating the daily tasks of life. Perhaps that day has already come. |
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The Pulmonary Hypertension Association created this great resource for PH patients. It covers things like tips for the cold and flu season and tips to make staying home fun.
You will need Adobe Acrobat to open this file. |
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Camp Wonder is a summer camp in Livermore, Calif. for children with serious and fatal skin disease aged 7–16 years old. Camp offers a wide variety of activities.They include swimming, boating, arts and crafts, games, archery, fishing, ropes course, nature walks, sports & recreation, silly olympics, theater and more. Camp is a great place to bond with other children your age and have some wonderful experiences and fun.
THERE IS NO CHARGE FOR CHILDREN ATTENDING CAMP. Because many families of children with severe skin disease are burdened with large medical expenses, children attend CSDF's camps without charge. |
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"Health Book"
Introduction
Occasional difficulty swallowing usually isn’t cause for concern, and may simply occur when you eat too fast or don’t chew your food well enough. But persistent difficulty swallowing may indicate a serious medical condition requiring treatment.
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Hamilton Heads to Atlanta for The Nicorette 300 on Saturday
The Nicorette 300 on Saturday, March 8 in Atlanta begins a stretch of three straight weeks of racing in the Southeast portion of the United States. One of Bobby Hamilton, Jr.’s favorite race tracks, Atlanta Motor Speedway is a tough mile and half super speedway and demands a smooth handling chassis and major horsepower. EPSN2 will provide live coverage of the event. Check your local listings for the broadcast time in your area and be sure to cheer Bobby Hamilton, Jr. and the entire Team Rensi/Smithfield #25 Ford Fusion on to victory.
Read about last week's event. |
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