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 Did You Know?

Did you know that on our Web site we have "Your Medications: A Guide to Better Understanding" and a list of medications from Calcium Channel Blockers used in Raynaud's to Proton Pump Inhibitors used for acid reflux or GERD.

Check it out!

Photo of the Week

Greg & Noelle Wyenandt were first-time attendees at the 2007 Conference
Greg & Noelle Wyenandt were first-time attendees at the 2007 Conference
.

Help Nabisco Celebrate 100 Extraordinary Women

Nabisco is looking for 100 extraordinary women. Share your story (in 100 words or less) about an extraordinary woman whose simple actions make a big difference in people's lives. (Pssst...you can even nominate yourself!) If you win, this will be great public awareness for scleroderma, so please enter! Contest ends April 16, 2008.

Read more.

Scleroderma Foundation eLetter

Friday, February 29, 2008– Issue #233

eLetter Archive

Foundation’s Advocacy Efforts Secure Scleroderma in Approved Department of Defense Research Program

Department of Defense Logo

In a news release issued this week by the United States Office of Congressionally Directed Medical Research Programs (CDMRP), scleroderma was specifically listed among only 21 diseases/conditions eligible to receive medical research funding through the Department of Defense Peer Reviewed Medical Research Program (PRMRP).

Help the Scleroderma Foundation Earn $25 Through H&R Block's Non-Profit Referral Program

H & R Block LogoThe program is easy and convenient. H&R Block can help you raise money for us! For each new client referred to have their taxes done by H&R Block, H&R Block will provide a program reward of $25 to the Scleroderma Foundation!

To receive the program reward, you must be a new client and must bring a referral form to H&R Block when they have their taxes done. The program begins January 1, 2008 and continues through November 1, 2008.

Download Flyer

FDA Proposes Guidance for Dissemination of Information on Unapproved Uses of Medical Products

FDA LogoThe U.S. Food and Drug Administration (FDA) today issued draft guidance on "Good Reprint Practices" for industry use in the distribution of medical or scientific journal articles and reference publications that involve unapproved uses of FDA-approved drugs and medical devices.

Do You Know Your Family AQ?

There are steps you can take to protect yourself and your family from a major U.S. health issue. According to the National Institutes of Health, 23.5 million Americans suffer from autoimmune diseases (ADs), making them more prevalent than cancer, which in all its forms affects 9 million, and heart disease, which strikes 22 million.

Team Rensi/Curley’s BBQ Ford

Hamilton Finishes 20th in Rain Delayed California Race

Nearly 48 hours after the scheduled start of the Stater Bros. 300 NASCAR Nationwide Series race, the green flag finally dropped. Heavy rains in Southern California placed the teams and drivers into a very tough situation by sending the race from Saturday to Monday.

With oxygen canisters at hand, Victoria Chavez signs the paperwork to refinance her home to help pay for an experimental treatment for her systemic scleroderma. Her insurance company has refused to pay for the treatment.

With oxygen canisters at hand, Victoria Chavez signs the paperwork to refinance her home to help pay for an experimental treatment for her systemic scleroderma. Her insurance company has refused to pay for the treatment.

Every Breath Is Precious

Victoria Chavez fights for an experimental procedure that could save her life

By Anita Creamer
"The Sacramento Bee"

From the California statehouse to the presidential race, health care reform is a hot political issue. But for 46-year-old Victoria Chavez, the need for reform isn't political.

It's a matter of life and death.

Upcoming Events

March 1 (Sat.) Stepping Out to Cure Scleroderma Walk (Baton Rouge, La.)
March 7 (Fri.) "Swinging for a Cure" Golf Tournament (Boynton Beach, Fla.)
March 15 (Sat.) Scleroderma Oregon Chapter Presents the 7th Annual Cheri Woo Education Seminar (Portland, Ore.)
March 15 & 16 (Sat. & Sun.) Greater Chicago Chapter Booth at NBC 5/Telemundo Health Expo (Chicago, Ill.)
March 29 (Sat.) Detroit Pistons Game Featuring the Michigan Chapter (Auburn Hills, Mich.)
Complete SF Calendar

Scleroderma Foundation, 300 Rosewood Drive, Suite 105, Danvers, MA 01923
Phone 978-463-5843 · 800-722-HOPE (4673)

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