Did you know that on our Web site we have a list of resources that cover 24 different topics, such as financial assistance, disability resources, children's resources, insurance help, etc.

Check them out!

Photo of the Week

Participants from our 2007 National Conference

Help Nabisco Celebrate 100 Extraordinary Women

Nabisco is looking for 100 extraordinary women. Share your story (in 100 words or less) about an extraordinary woman whose simple actions make a big difference in people's lives. (Pssst...you can even nominate yourself!) If one of you win, this could be great public awareness for scleroderma, so please enter!

Read more.

Friday, February 15, 2008– Issue #231

eLetter Archive

2008 NATIONAL CONFERENCE NEWS!

Daniel Furst, M.D. at the 2007 National Conference in Philadelphia. Dr. Furst is our closing keynote speaker for this year's conference!

Conference Registration Is Now Open!

We are pleased to announce that the 2008 National Conference registration is now open. There are three ways to register:

1. Register online using your credit card;
2. Download the registration form, fill it out, and mail it in with your check, money order, or credit card information; or
3. Call us at 800-722-HOPE (4673) and we will take your registration over the telephone.

As we confirm speakers, workshops, etc., we will update our Web site with that information. We look forward to seeing you in Manhattan Beach, California!

arGentis Pharmaceuticals, LLC Receives Orphan Drug Designation

MEMPHIS, Tenn.– (BUSINESS WIRE) – arGentis Pharmaceuticals, LLC announced that the U.S. Food and Drug Administration (FDA) has granted orphan drug designation to the company’s product candidate ARG201(native type 1 bovine collagen) for the treatment of diffuse systemic sclerosis, also known as systemic scleroderma (SSc). SSc is a debilitating and fatal autoimmune disease.

Arthritis Under Attack

Many people think of arthritis as minor aches and pains. For most people, that's all it is. But, about 1 percent of the adult population—some 2.1 million people, two-thirds of them women—have rheumatoid arthritis, which is far more than wear and tear of the joints.

Clinical Trial a Breath of Fresh Air for CF Woman

CEDAR FALLS – When Lois Rippe agreed in 2003 to take part in a clinical trial for a new medicine to treat the symptoms of pulmonary hypertension she didn't think she'd live to see the end of the experiment.

Bobby Hamilton, Jr.

Rev Up Your Engines!

The Scleroderma Foundation is pleased to announce that we will be an associate sponsor of the Team Rensi Motorsports/Smithfield #25 Ford Fusion driven by Bobby Hamilton, Jr. during the full 2008 NASCAR Nationwide Series campaign. Beginning this year, Nationwide Insurance has replaced Busch as sponsor of this competitive series.

Big and Tall Sale!

The Scleroderma Foundation navy blue jackets (sizes XL and XXL) that regularly sell for $35 are now on sale for only $20 (plus $5 S&H)! The jackets feature the Scleroderma Foundation logo in teal, and the phrase "Scleroderma Foundation" is in white lettering below the logo. Other sizes remain $35, plus $5 S&H.

Upcoming Events

President's Day Holiday Schedule for National Office

In observance of President's Day, the National Office will be closed Monday, February 18. We will reopen on Tuesday, February 19. If you have the day off too, enjoy!

Scleroderma Foundation, 300 Rosewood Drive, Suite 105, Danvers, MA 01923
Phone 978-463-5843 · 800-722-HOPE (4673)

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