Scleroderma Foundation eLetter

Archive

Medical Therapy for Pulmonary Arterial Hypertension

A consensus panel convened by the American College of Chest Physicians developed guidelines for the treatment of pulmonary arterial hypertension (PAH) that were published in 2004. Subsequently, several important clinical trials have been published, and new treatments have received regulatory approval.

Cookbook SPECIAL PRICING EXTENDED! "Cooking Up a Storm for Scleroderma" Cookbooks Still $5! Buy one! Offer ends Jan. 31, 2008.


Friday, January 4, 2008– Issue #225	eLetter Archive

Medicare & You 2008

This is the official government handbook with important information about the following (120 pages):

2008 costs; what’s covered; preventive services; health plans; prescription drug plans; your rights and appeals

This is a PDF. If you need Adobe Reader, get it here.

Small Mouths … Big Problems? A Review of Scleroderma and its Oral Health Implications

Scleroderma, or progressive systemic sclerosis (PSS), an autoimmune rheumatic condition affecting the connective tissues, has a profound impact on oral health. Common orofacial findings include xerostomia, gastroesophageal reflux disease and limited mouth opening. This review article describes scleroderma, or PSS, and its various manifestations. This is a PDF. If you need Adobe Reader, get it here.

Research Advancements Could Lessen Scleroderma Complications

The ultimate weapon for scleroderma treatment would be “a silver bullet” that specifically targets problem cells and their signals stopping the over-production of collagen. With the accelerated pace of learning at MUSC, physicians will soon be using these specialized agents as safer and more effective means of therapy.

Survey of More than 600 Patients Treated with Tracleer(R) (bosentan) Reveals Actelion Sure Steps(R) Patient Support Program Provides Valuable Educational Information

SOUTH SAN FRANCISCO, Calif./PRNewswire/ -- Actelion
Pharmaceuticals US, Inc. today announced results of a recent Harris Interactive(R) survey, showing that an overwhelming majority of Tracleer patients enrolled in Sure Steps find the patient support program valuable, and feel that their knowledge of pulmonary arterial hypertension (PAH) and Tracleer have improved due to the program.

New Spanish Brochures Are Available

We have translated four of our most popular brochures into Spanish – "La Esclerodermia: Información General y Sus Causas," "La Esclerosis Sistemica: Cutanea Limitada y Cutanea Difusa," "La Esclerodermia Localizada," and "La Hipertension Pulmonar" (available Jan. 21).

"La Esclerosis Sistemica: Cutanea Limitada y Cutanea Difusa"

They are available for purchase from our store or for download from our Web site.

Upcoming Events

Welcome to 2008! Please be sure to check our calendar often as we are starting to fill it up with wonderful events from around the country. We look forward to a fabulous year of walks, educational seminars, car washes, plant sales, golf tournaments, etc. These events are made possible with the help of volunteers from the Scleroderma Foundation and its chapters and support groups. Thank you for all you do!

Complete SF Calendar

Scleroderma Foundation, 300 Rosewood Drive, Suite 105, Danvers, MA 01923
Phone 978-463-5843 · 800-722-HOPE (4673)

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