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Holiday Travel Tips

Traveling during the holidays is a stressful undertaking - even more so if you have arthritis. Long check-in lines at airports, cramped car seats, and unpredictable weather can make you dread your favorite holiday.

Cookbook "Cooking Up a Storm for Scleroderma" Cookbooks Now Just $5! Buy one! Offer ends Dec. 31, 2007.

Scleroderma Foundation eLetter

Friday, December 14, 2007– Issue #223

eLetter Archive

From left: Roger Brechner, SF Chapter and Support Group Manager, Carol Feghali-Bostwick, SF Board Member, and Frannie Waldron, SF CEO

From left: Roger Brechner, SF Chapter and Support Group Manager, Carol Feghali-Bostwick, SF Board Member, and Frannie Waldron, SF CEO

March on Washington

Members and staff from the Scleroderma Foundation traveled to Washington, D.C. this week to meet with elected and appointed federal officials to advocate the need for increased federal funding for scleroderma.

The visit kicked off when Foundation CEO Frannie Waldron and Foundation board member and researcher Carol Feghali-Bostwick attended a meeting of National Institute of Arthritis and Musculoskeletal and Skin Diseases (NIAMS).

Social Security Holds First Disability Hearing on Compassionate Allowances

Social Security Administration Logo

The Social Security Administration is making statements from its two-day public hearing with some of the nation’s leading experts on rare diseases available online at www.socialsecurity.gov. The experts presented testimony and shared their views about Social Security’s efforts to identify and implement “compassionate allowances” for children and adults with rare diseases.

Vasodilator Iontophoresis—a Possible New Therapy for Digital Ischaemia in Systemic Sclerosis?

This study investigated whether whole finger vasodilator iontophoresis increases digital blood flow in patients with systemic sclerosis (SSc): If so, this might indicate a novel approach to therapy.

It's the Next Best Thing to Being There: Conference Workshops Now on DVD!

“Panel Discussion – Stem Cell Transplantations” and “Pain Management”from 2007 National Conference

Education is a primary component of the Scleroderma Foundation mission. We know the importance of acquiring accurate and timely information to help people living with the disease to manage their conditions.

The End of the Year Is Gift Giving Time—an Ideal Time to Give the Gift of a Scleroderma Foundation Membership

Give the gift of membership!

It’s a common dilemma at this time of the year—you have gifts to buy. You have also been scratching your head, wondering what to get them.

For as little as $25, you can support our mission, and give your friend or family member a yearly membership to the Scleroderma Foundation.

Upcoming Events

December 15 (Sat.) Greater Chicago Holiday Patient Education Seminar (Chicago, Ill. )
December 15 & 16 (Sat. & Sun.) 2007 Handa Cup (St. Augustine, Fla. )
Complete SF Calendar

Scleroderma Foundation, 300 Rosewood Drive, Suite 105, Danvers, MA 01923
Phone 978-463-5843 · 800-722-HOPE (4673)

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