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Siblings

Studies in Families with Siblings Discordant for Systemic Rheumatic Disorders

Doctors at the National Institutes of Health are conducting pioneering
research in understanding the genetic and environmental risk factors that may result in autoimmune diseases.

Cookbook "Cooking Up a Storm for Scleroderma" Cookbooks Now Just $5! Buy one! Offer ends Dec. 31, 2007.

Scleroderma Foundation eLetter

Friday, December 7, 2007– Issue #222

eLetter Archive

Swing for the Stars a Smashing Success

Click on photo to see it larger - Picture of Gala

The second Swing for the Stars gala held Nov. 29 in downtown New York City was a night to recognize the contributions of doctors, raise money to further the Foundation’s mission and to spend time with friends in an elegant setting.

Anticoagulation Therapy, Pulmonary Hypertension, and Connective Tissue Disease

Steven D. Nathan, M.D.

Question
What is your opinion about the use of anticoagulation therapy in all patients with pulmonary hypertension and connective tissue disease?

Response from Steven D. Nathan, M.D., Medical Director, Advanced Lung Disease and Transplant Program, Inova Fairfax Hospital, Falls Church, Virginia

Foundation to Benefit from Florida Golf Tournament

Handa Cup Logo

If you are in Florida in mid-December, and a fan of some of golf’s legends, you may want to take in the 2007 Handa Cup, Dec. 15 and 16 in St. Augustine, home of the World Golf Hall of Fame.

CarePages logo

CarePages.com Offers Virtually Endless Emotional Support for Patients

Eric and Sharon Langshur’s infant son, born without a left ventricle in his heart, faced an ongoing, day-to-day struggle from the day he was born. At just 18 months of age, he and his family had already been through the physical and emotional strains of three open-heart surgeries.

The Langshurs, exhausted and constantly in and out of hospitals, needed a way to keep in touch with their family, friends and loved ones, not only to keep them updated on their son’s progress, but also to receive much-needed feedback and support.

Their solution was to set up a Web site, which they named CarePages.com-a page that, seven years later, has become thousands of pages that shower patients nationwide with compassion and support.

Upcoming Events

December 7 (Fri.) Detroit Pistons Game Featuring the Michigan Chapter! (Detroit, MI)
December 8 (Sat.) Washington Chapter Family Holiday Party (Seattle, Wash.)
December 15 (Sat.) Greater Chicago Holiday Patient Education Seminar (Chicago, Ill. )
December 15 & 16 (Sat. & Sun.) 2007 Handa Cup (St. Augustine, Fla. )
Complete SF Calendar

Scleroderma Foundation, 300 Rosewood Drive, Suite 105, Danvers, MA 01923
Phone 978-463-5843 · 800-722-HOPE (4673)

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