Jane Brandenstein, P.T., speaking at the Scleroderma Foundation's 2001 National Conference in Washington, D.C.

Exercise Can Help!

By Jane Brandenstein, P.T., University of Pittsburgh Medical Center (originally published in "Scleroderma Foundation Newsline," vol. 2, no. 3, Summer/Fall 1999)

As physical therapists, there are some things that we have learned over the years about scleroderma, and there are even more things we wish we understood better and could share with you. But, the information is just not there at this point in time, so as health professionals, we experience a certain amount of frustration, just like you do. What we would like to pass on to you are some of the things that we have found to be helpful and important.

Friday, November 30, 2007– Issue #221

eLetter Archive

Scleroderma Research Proposals to be Reviewed Next Saturday

Doctors, researchers and Scleroderma Foundation staff members will descend on Boston next Saturday to review 34 research grant applications for 2008.

Virginia Steen, M.D.

Eight MAB Members Make America’s Top Doctors List

The names of eight Scleroderma Foundation Medical Advisory Board members will appear in the 7th edition of Castle Connolly “America’s Top Doctors” book, to be released next month. On the list will be...

A New Method Allows For The Early Diagnosis Of Pulmonary Hypertension

Researchers at the University of Granada (UGR) from the Systemic Autoimmune Diseases Unit and the Cardiology Service of the Hospital Clínico San Cecilio in Granada have developed an innovative system which will help doctors make the earliest diagnosis of pulmonary hypertension possible, which is the main cause of death for patients suffering from scleroderma, a rare disease which affects approximately 1,200 out of every million people.

Variation in CTGF Gene Is Linked to Systemic Sclerosis

A variation in the promoter region of the gene that encodes connective-tissue growth factor (CTGF) appears to confer susceptibility to systemic sclerosis, reported Dr. Carmen Fonseca of Royal Free and University College Medical School, London, and associates.

2008 PHA Conference Scholarship Applications Now Available

The PHA International Conference gives the PH community a chance to gather together for a common cause, share stories and learn about the recent advances in PH research and treatment. In order to make sure no one misses out on Conference due to financial reasons, PHA facilitates several scholarship opportunities for patients who would be unable to attend Conference without outside financial assistance.

Cookbooks Now Just $5

If you are looking for a holiday gift, or maybe a new recipe to add to your collection, consider the “Cooking up a Storm for Scleroderma” cookbook. For the month of December, the Foundation is selling the book for just $5, and that includes shipping if you request the Media Mail shipping method.

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