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*ACTION
ALERT* *ACTION ALERT *
On
Wednesday, October 3, 2007, the United States Senate passed
the fiscal year (FY) 2008 Department of Defense (DoD) Appropriations
bill (H.R.3222) by voice vote. Included in the Senate-passed
version of H.R. 3222 is $50 million dollars for the DoD Peer-Reviewed
Medical Research Program. This program funds important research
on conditions that affect military personnel. Congress must
explicitly recognize a condition before it is eligible for
funding through the DoD Peer-Reviewed Medical Research Program.
Although scleroderma research has been conducted through this
program in the past, presently scleroderma is not recognized
on the Senate’s list of conditions eligible for funding
that accompanies the $50 million allocation.
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VIENNA
— Patients with functional class II pulmonary arterial
hypertension had significantly slower disease progression
when treated with bosentan in a study with 185 patients, a
finding that may shift the time to diagnose and start treatment
of this disease. |
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Education
is a primary component of the Scleroderma Foundation mission.
We know the importance of acquiring accurate and timely information
to help people living with the disease to manage their conditions. |
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For
years, women with potentially serious systemic autoimmune
diseases have been advised against getting pregnant. We now
know that, with careful medical and obstetric management,
most of these women can have successful pregnancies. |
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The
First Annual "Cope-N-Cruise!"
The
cruise, departing December 6 from Ft. Lauderdale on the Royal
Caribbean ship "Enchantment of the Seas," will combine
a relaxing, sun-filled Caribbean vacation with helpful and
inspiring programs, services, and information for people who
are living with chronic medical illnesses. A number of healthcare
professionals, including world-renowned expert, Dr. Robert
H. Phillips, author of more than 30 books on coping including
"Successful Living with Scleroderma," will be with
available to provide workshops and consultations on a variety
of topics. Download
form (PDF – Download
Adobe Reader). |
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In
addition to our nationwide network of Chapters
and Support
Groups, we offer you electronic ways to connect with other
people. |
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