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"Scleroderma: a treatable disease"

By Joseph Korn, M.D. (1947-2005), "Scleroderma: a treatable disease." Cleve Clin J Med 2003;70:954-968. Copyright © 2003 The Cleveland Clinic Foundation. All rights reserved.

ABSTRACT
Many effective treatments for scleroderma have emerged in recent years, including bosentan, an endothelin receptor antagonist, and epoprostenol, a prostacyclin, both of which target vasoconstriction. Cyclophosphamide may soon be proven effective against interstitial lung disease.

Scleroderma Foundation eLetter

Friday, October 12, 2007– Issue #214

eLetter Archive

Researcher

35 Applicants Seek Scleroderma Research Grant Funding

The Scleroderma Foundation has a long history of funding the highest quality scleroderma-related research through its peer-reviewed process, and has given over $12.6 million in research grants over the past 19 years.

We are pleased to announce that we have received 35 grant proposals for our 2008 Research Grant Award Program. The Scleroderma Foundation's peer review committee, comprised of top scientists and researchers from around the country, will convene later this year to review the proposals. The grant award recipients will be announced in January.

Vitiligo May Be First Sign of Localized Scleroderma

Skin & Allergy News Logo

CHICAGO — When facing a child with localized scleroderma, be wary if the scleroderma is linear, especially if it is on the face or on a limb where it crosses a joint, Dr. Amy Gilliam said at the annual meeting of the Society for Pediatric Dermatology.

Jeff Mace

Jeff Mace

About Face

A 13-year-old is utilizing the power of a new media tool to raise money on behalf of his father, who has scleroderma. Matthew Mace, an 8th grader in New York, earlier this year created a group on FaceBook, the wildly popular social networking site, in honor of his dad, Jeff, who has had scleroderma since 1992.

Need to Find Something? Try Quick Links

Earlier this year, the Scleroderma Foundation Web unveiled a new look for its home page. One of the highlights was a A new Quick Links button at the top of the page. The button will enable browsers to find information on a range of commonly sought out topics such as Become a Member, About Scleroderma, and Frequently Asked Questions.

SAVE THE DATE

2007 “Swing for the Stars” National Gala, New York
November 29

Grand Hyatt Hotel in mid-town Manhattan

The Scleroderma Foundation’s National Office and the Tri-State Chapter will kick off the holiday season this year with the second "Swing for the Stars" gala, which will be held Thursday evening, November 29, 2007 at the Grand Hyatt Hotel in mid-town Manhattan.

Family

Planned Giving: A Meaningful Way to Give

The Planned Giving section of our Web site has recently been updated. You will find a host of information regarding planned giving such as:

  • Providing gift plans that benefit you and your family
  • Bringing immediate and deferred tax advantages to both you and your heirs
  • Having a meaningful impact on our mission, beyond your lifetime and far into the future

If you have any questions or would like to discuss your gift plans, please contact Robert J. Riggs at 800-722-HOPE (4673) x11, or via e-mail at rriggs@scleroderma.org.

Upcoming Events

October 13 (Sat.) Annual Patient Education Workshop at Virginia Mason (Seattle, Wash.)
October 13 (Sat.) Southern California Chapter's Fall Education Day, UCLA (Los Angeles)
October 13 (Sat.) Scleroderma Foundation/New England Fourth Annual Harvest Dance (Plymouth, Mass.)
October 19 (Fri.) Tennessee Chapter's Fall Educational Seminar (Chattanooga, Tenn.)
October 20 (Sat.) Tri-State Chapter and Delaware Valley Chapter – Joint Educational Form (New Brunswick, N.J.)
Complete SF October Calendar

Scleroderma Foundation, 300 Rosewood Drive, Suite 105, Danvers, MA 01923
Phone 978-463-5843 · 800-722-HOPE (4673)

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