Scleroderma Foundation eLetter

Archive

Raynaud's Phenomenon Brochure Available

The most recent addition to our library of redesigned brochures is now available as a PDF you can download and in our store for purchase.

You need Adobe Acrobat Reader to open these files. If you don't have Acrobat Reader, download it FREE, right now.


Friday, August 31, 2007– Issue #208	eLetter Archive

National Invisible Chronic Illness Awareness Week, Sept 10–17

National Invisible Chronic Illness Awareness Week held September 10–17, is an outreach to increase awareness that living with an invisible illness can be an emotional challenge—as well as physical—and that more people than we would imagine are suffering silently.

ACCP Issues New Treatment Guidelines for PAH

Pulmonary arterial hypertension (PAH) is a term we didn't hear much five or 10 years ago, but it's cropping up frequently in the news.

Scleroderma Patients Need Annual PAH Screening

Increased age at scleroderma onset is a major risk factor, and in patients over 60 that risk doubles.

BALTIMORE — Scleroderma patients should have yearly screening for pulmonary arterial hypertension with echocardiography and tests of pulmonary function, Dr. Kwas Huston advised at a conference on rheumatic diseases sponsored by the Johns Hopkins University.

Scientists Discover Important Beauty Secret for Balanced Skin Color and Tone

In the timeless quest for healthier, younger looking skin, scientists from the University of Cincinnati and Tokyo Medical University have made an important discovery toward manipulating skin tone and color. The implications of this research range from helping doctors develop more natural looking bioengineered skin grafts to helping cosmetics companies develop new products for achieving the “perfect” sunless tan.

Angelo DiVincenzo Is Close to His Goal—Raising $10,000 in Honor of Alyson Who Has Scleroderma

Only nine weeks away
Angelo says, "This November, I will compete in the Ironman Florida Triathlon, a 140-mile endurance race that begins with a 2.4-mile swim, followed by a 112-mile bike ride, and finishes with a full 26.2-mile marathon. To make the experience even richer, I am raising $10,000 for the Scleroderma Foundation in honor of my best friend since high school, Alyson."

Pulmonary Arterial Hypertension - Current Approaches and Future Expectations for Clinicians and Patients.

Dates and locations: Sept. 8, New York, Sept. 8, Baltimore, Sept. 15, Minneapolis, Sept. 15, Los Angeles, Oct. 6, Dallas, Oct. 6, Miami

Watch David Gilliland Race!

David Gilliland and the No. 25 car will be racing in the NASCAR Busch Series Camping World 300 tomorrow night (9:30) on ESPN 2. The Foundation is an associate sponsor of the vehicle.

Upcoming Events

	September 4 (Tues.): Missouri Chapter's Education Symposium (Kansas City, Mo.)
	September 8 (Sat.): Pulmonary Hypertension Symposia – Two Locations! (New York, N.Y. and Baltimore, Md.)
	September 8 (Sat.) Mississippi Support Groups Host Stepping Out to Cure Scleroderma Walk (Olive Branch, Miss.)
SF September Calendar

Labor Day Holiday Schedule for National Office

In observance of the Labor Day holiday, the National Office will be closed Monday, Sept. 3. We will reopen on Tuesday, Sept. 4.

Scleroderma Foundation, 300 Rosewood Drive, Suite 105, Danvers, MA 01923
Phone 978-463-5843 · 800-722-HOPE (4673)

If you cannot view the eLetter, or the links do not work, you can read it on the Web at www.scleroderma.org/e-letters/eLetter_208.htm. If someone has forwarded this eLetter to you, and you wish to subscribe to this FREE weekly publication, go to www.scleroderma.org/e_letter_signup.shtm.