Scleroderma Foundation eLetter

Archive

Richard M. Silver, M.D.

Research Advancements Could Lessen Scleroderma Complications

The ultimate weapon for scleroderma treatment would be “a silver bullet” that specifically targets problem cells and their signals stopping the over-production of collagen. With the accelerated pace of learning at MUSC, physicians will soon be using these specialized agents as safer and more effective means of therapy.

June Is Scleroderma Awareness Month

June is Scleroderma Awareness Month, and to help raise the public profile of the disease, now through June 30 the Scleroderma Foundation is offering its signature teal wristbands for the special sale price of $1—that's half off the regular price (S&H: 50¢ for 1–9; 75¢ for 10. Over 10 please ask when you order.). To order, please call our toll-free number: 1-800-722-HOPE.


Friday, June 22, 2007– Issue #199	eLetter Archive

Holiday Inn Express Midtown, Philadelphia, Pa.

Important Conference Information!

Conference host hotel sold out. Neighboring hotel taking reservations at conference rate–$159/night.

FDA Approves Ambrisentan (Letairis) for Treatment of Pulmonary Hypertension Patients

Foster City, Calif. – Gilead Sciences, Inc. (Nasdaq: GILD) recently announced that the U.S. Food and Drug Administration (FDA) has granted approval of LetairisTM (ambrisentan) 5 mg and 10 mg tablets.

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Bosentan (Tracleer) Receives EU Approval for Reduction of Number of New Digital Ulcerations in Systemic Sclerosis Patients

ALLSCHWIL, Switzerland, (PrimeNewswire via COMTEX)—Actelion Ltd (SWX:ATLN) announced recently that the European Commission has granted marketing approval for Tracleer® for the reduction of the number of new digital ulcers in patients with systemic sclerosis and ongoing digital ulcer disease.

New Support Group in Chicago!

A new support group has formed in Chicago and its second meeting is July 14. Please check its Web site for details.

In the Spotlight – National Conference Workshops and Presenters

"End of Life Issues"

~ AND ~

"Advance Directives"

This series will appear weekly until the conference in July.

Scientists Develop a Mouse Model of Scleroderma

Scientists supported by the National Institute of Arthritis and Musculoskeletal and Skin Diseases (NIAMS) have created a new mouse model for scleroderma, a debilitating disease characterized by thickening of the skin, blood vessels and internal organs. The availability of the new model, the researchers say, will potentially lead to a better understanding of and treatment for the disease in humans. Their research appeared in the journal of Arthritis & Rheumatism.

Watch Richard Johns Race!

Watch Richard Johns and the No. 25 car compete in the NASCAR Busch Series AT&T 250 tomorrow night at 8 on ESPN 2. The Scleroderma Foundation is an associate sponsor of the vehicle.

Upcoming Events

	June 23 (Sat.): Long Island Scleroderma Ed Forum (Huntington, N.Y.)
	June 23 (Sat.): Utah Support Groups Host "Stepping Out to Cure Scleroderma" Walk (Syracuse City, Utah)
	June 24 (Sun.): Tri-State Chapter's Stepping Out to Cure Scleroderma Walks Riverside Park, Manhattan Stamford High School, Stamford, Conn.
	June 24 (Sun.): Greater Chicago Chapter's Stepping Out to Cure Scleroderma Walk (Highland Park, Ill.)
	June 30 (Sat.): 1st Annual Pat McRight Scleroderma Bowl-a-thon (Las Vegas, Nevada)
	June 30 (Sat.): Western Pennsylvania Chapter's Stepping Out to Cure Scleroderma Walk (Fallston, Pa.)
	July 20–22 (Fri.–Sun.): Scleroderma Foundation's National Conference (Philadelphia, Penn.)
SF June Calendar

Scleroderma Foundation, 300 Rosewood Drive, Suite 105, Danvers, MA 01923
Phone 978-463-5843 · 800-722-HOPE (4673)

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