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A
multi-institutional team of engineers, scientists and clinicians
from the University of Wisconsin-Madison will study large-artery
biomechanics that could play a role in heart failure in patients
with pulmonary arterial hypertension. |
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June
Is Scleroderma Awareness Month
June
is Scleroderma Awareness Month, and to help raise the public
profile of the disease, now through June 30 the Scleroderma
Foundation is offering its signature teal wristbands for the
special sale price of $1—that's half off the regular price.
To order, please call our toll-free number: 1-800-722-HOPE. |
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During
the week of June 4, support an increase in funding for the
National Institutes of Health.
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Investigators
from The University of Texas Southwestern Medical Center at
Dallas will attend the Scleroderma Foundation National Conference
for the first time this July. Dr. Heidi Jacobe is the primary
investigator for a new study establishing a DNA repository
aimed at people with morphea (localized scleroderma). |
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Emily
Woods and daughter Emma |
Foundation
to benefit from her new online greeting cards business
The
June issue of “Readers Digest” features a story
on Emily Woods, who chronicles her experience with a stem
cell transplantation procedure for systemic sclerosis. |
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"Scleroderma
in the Workplace"
~ AND ~
"Sjögren’s
Syndrome Management"
This
series will appear weekly until the conference in July. |
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SCOT
Trial Still Seeking Patients
Information
on the SCOT (Stem Cell Transplantation or Cytoxan). See
PDF for information.
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SAN FRANCISCO—(BUSINESS WIRE) – Gilead Sciences,
Inc. (Nasdaq:GILD) announced results of two long-term studies
evaluating ambrisentan, an investigational endothelin receptor
antagonist (ERA) for the treatment of patients with pulmonary
arterial hypertension (PAH). |
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| Kellie
Martin was the keynote speaker at our 2004 National
Gala |
WASHINGTON
/ PRNewswire / – The American Autoimmune Related Diseases
Association (AARDA) today launched its first-ever national
public service (PSA) campaign titled, "Know Your Family
AQ," starring well-known actress and longtime AARDA spokesperson
Kellie Martin.
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Do
your patients know everything they need to about GERD?
Requires
free login and password to Medscape. |
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Watch
David Gilliland Race!
Watch
David Gilliland and the No. 25 car race tomorrow in the Dover
200 on ESPN2 at 2:30 p.m. The Scleroderma Foundation is an
associate sponsor of the vehicle. |
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Upcoming
Events |
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June 1 (Fri.): Third
Annual Drive for a Cure Golf Tournament
(Ada, Mich.) |
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June 2 (Sat.): Stepping
Out to Cure Scleroderma Walk
(Boardman, Ohio) |
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June 2 (Sat.): Stepping
Out to Cure Scleroderma Walk (Denver, Colo.) |
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June 2 (Sat.): Stepping
Out to Cure Scleroderma Walk (Rochester,
N.Y.) |
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June 2 (Sat.): Stepping
Out to Cure Scleroderma Walk
(Chaska, Minn. – AND – Park Point, Duluth,
Minn.) |
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June 2 (Sat.): Stepping
Out to Cure Scleroderma Walk
(Corpus Christi, Texas) |
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June 2 (Sat.): 10th
Annual Ellen Ehrhart Medical Symposium (Pompano
Beach, Fla.) |
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June 3 (Sun.): Stepping
Out to Cure Scleroderma Walk (Omaha,
Neb.) |
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June 3 (Sun.): Stepping
Out to Cure Scleroderma Walk (Belmar,
N.J.) |
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June 3 (Sun.): Stepping
Out to Cure Scleroderma Walk (Hamburg,
N.Y.) |
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June 3 (Sun.): Stepping
Out to Cure Scleroderma Walk (Binghamton,
N.Y.) |
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June 3 (Sun.): Stepping
Out to Cure Scleroderma Walk (Leonia,
N.J.) |
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June 9 (Sat.): Stepping
Out to Cure Scleroderma Walk (Nashville,
Tenn.) |
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June 9 (Sat.): Stepping
Out to Cure Scleroderma Walk (West
Hartford, Conn.) |
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June 10 (Sun.): Stepping
Out to Cure Scleroderma Walk (Los
Angeles, Calif.) |
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June 10 (Sun.): Stepping
Out to Cure Scleroderma Walk (Albany,
N.Y.) |
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June 10 (Sun.): Stepping
Out to Cure Scleroderma Walk (Long
Island, N.Y.) |
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June 10 (Sun.): Stepping
Out to Cure Scleroderma Walk (Liverpool,
N.Y.) |
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June 10 (Sun.): Stepping
Out to Cure Scleroderma Walk (Birmingham,
Mich.) |
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June 12 (Tues.): Flatbread
Evening To Benefit Scleroderma Foundation New England
Chapter (Bedford, Mass.) |
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July 20–22 (Fri.–Sun.):
Scleroderma
Foundation's National Conference (Philadelphia,
Penn.) |
| SF
June Calendar |
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| Scleroderma
Foundation, 300 Rosewood Drive, Suite 105, Danvers, MA 01923
Phone 978-463-5843 ·
800-722-HOPE (4673) |
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